Difficult problem

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Betsey Ross
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Date Joined Mar 2011
Total Posts : 1056
   Posted 3/27/2011 2:52 PM (GMT -6)   
Hello-Still waiting for my doc to give me a script for a caregiver to drive me to and from PT which then can be paid by WC,  No neighbors are available and it is difficult for me get my mind clear enough to drive myself there since I have been on butran patch and vicadin.  So far nothing has happened but I am getting anxious over this situation.  I cant cancel PT -I need this to maintain my leg movement.  I am stuck at 72 degrees for knee bending.  I am to young for office of aging to get involved.  I dont have enough money for a taxi or pay a caregiver myself.  That isnt happening.  I will stop by doc office on Mon to see if I can expedite the process for a script
I am depressed today---the realization of me never to be working is mind boggling. How do you cope with that?
(I added a title to your topic)

Post Edited By Moderator (Mrs. Dani) : 3/27/2011 4:45:15 PM (GMT-6)

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 3/27/2011 4:42 PM (GMT -6)   
I'm so sorry that you're dealing with so much. I myself do work, but it is quite difficult. My hours aren't that long because of the type of job that I have, but I do have a lot of at home work that I do from my bed. Sometimes, I just don't do it because it's too much.

That said, I didn't work for some time after my injury, and it was difficult for me because even though I had terrible pain, there were still times that I felt like my mind was bored--if that makes sense. I would love to not work right now, but financially we can't afford it and because of my medication and other treatments, I can handle it, even though every day is a struggle.

So, I guess I can tell you how I dealt with not working and being home alone...I got to the point where I really realized that even though I was home and in serious pain, I still needed to do something.

I found a lot of television shows that I rented from Blockbuster--whole series--that had already ended, and I watched them. I got series that were already over so that I had a ton of shows to watch on DVD and I would have the satisfaction of seeing the whole thing.

I read a lot--the Bible, and other books that I enjoyed reading (like girly books, lol).

I have an iPod, so I'd listen to books on tape because it's difficult to hold a book for too long.

I tried to learn to crochet, but I wasn't great at it. I took a jewelry making class, and beaded jewelry from bed. I started drawing pictures. I went online to learn how to draw, and just did it.

That is how I dealt with not working. I know it is not the same thing as dealing with never again working, but maybe it is similar enough at least to give you some ideas.

I know that it must be a big loss for you, emotionally, to know that you won't work again, and I am sure that it is difficult to not focus on it, but maybe it will help a bit to try to do little things (like crafts, or things that you enjoy). Sometimes, for me, a little bit makes a big difference.

There are so many creative people here at HealingWell who have chronic pain and still do their hobbies. When you always have pain, I think it's important to still do things that you love to do, even though you may not be able to do what you used to, there are still probably new things that you could do to have fun.

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 3/27/2011 7:05 PM (GMT -6)   
If I may offer a suggestion. Contact your PT office and let them know of your difficulties getting to and from therapy. They may have or know of resources that you don't that can help you out even if it is just another patient who can give you a ride to and from therapy.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16776
   Posted 3/27/2011 9:00 PM (GMT -6)   
Betsey, what are the chances of you being retrained into a different field other than what you were doing before the injury? Many times, in my state which is Texas, if a person is disabled from their regular job, they can get retrained into something that will fit with their limitations. Have you checked into any state agencies about this? If not you may want to do some checking on this.

Yes, it usually is a bitter pill to swallow when someone tells you this, however, it does not mean that you are done. If I remember correctly you are young and retraining may be an avenue for you to check on. If you find the depression is getting out of hand, please talk to your dr about this. Sometimes we need a little help with dealing with depression and there is nothing wrong with needing this extra help. It is not a sign of weakness either. You will find that people that suffer with CP are some of the strongest people you can imagine. Not just anyone can survive and deal with what we have to every day. Something to occupy your time would really be helpful, whether it is reading, listening to some music, or even working some puzzles. I think picking out some small goals each day helps, trying to do too much at once is just not a good plan for us many times.

Take care.
Moderator Chronic Pain Forum

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 3/28/2011 2:34 PM (GMT -6)   
Thanks for your help. I will check into churches for a ride to and from pt and talk to my doc about my depression. Husband is pushing me to make supper and take the dogs out on a leash for them to go potty. i can barely move myself with a walker let alone venture thru a yard with tree roots and holes in it with a sheltie bent on trying to run with me attached to him. i cant stand at the stove and cook. I can put together meals that would be in the oven or crockpot . my left leg is to messed up to do the standing gig. I can push a wash basket with my good leg to the washer and do a small load of wash everyother day and sweep the kitchen floor. I do what I can and then when he gets home from work I get to hear what kind of day he had at work.i cant and willnot pamper him, it takes all I have to get thru a day with no help around.


Regular Member

Date Joined Nov 2010
Total Posts : 108
   Posted 3/30/2011 1:16 AM (GMT -6)   
There should be a county office that offers assistance for limited income. Here it is called RAIL, and they are aides that go to homes, clean, bathe, cook, run errands or whatever. In addition, call county family services, and let them offer suggestions. Some even have taxi vouchers. but maybe they can at least elt you know where to look for help. Good luck

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 3/30/2011 2:11 AM (GMT -6)   
after pt today I will start my search for county assistance. I never thought about that. Thank you so much for your help. Sometimes I feel so not informed about things and I really appreciate all the suggestions and help I have been receiving fromthis forum. I couldnt sleep soundly tonight. So here is is 3:00 am and I am awake. Every time I rolled in bed I woke up. pain patchs didnt kick in yet. i took a vicodin 10-500. now I wait for that to work. Thank you
Soft hugs


Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 3/30/2011 3:25 AM (GMT -6)   
I think we share the same sleep pattern! Wide awake here as well! shakehead

Actually I hit the sack early and missed my nightly pain med, and woke at 3:00am. It just now kicked in!

Good luck to you, in your search! Hang in there!

SE wink

Veteran Member

Date Joined Aug 2005
Total Posts : 617
   Posted 3/30/2011 4:43 AM (GMT -6)   
Dear Betsy,
As far as you doing the household chores and walking the dog, until your mobility is better and your pain in better controlled, tell your "hubbie" to go take a flying leap!  You can't run the risk of injuring yourself further by over-extending yourself doing chores or getting dragged around by an overzealous pet.
Now for your Doctor.  There is NO EXCUSE for you to be waiting on a simple piece of paperwork like a script for PT Transportation.  Get on the phone and call the doctor's office first thing in the AM.  Ask to talk to your DR's Nurse...that's the person that really controls the flow of patients and other tasks that the DR does during the day.  Explain the urgency for you to get the prescription to the nurse, as she can expedite getting the DR to sign off on the script.  I have to go this route myself every time I need to get my pain meds refilled.  If I followed "standard procedure", I would have to call the pharmacy to fax the request to the DR's office, hope they got the fax and matched it up with my chart, put it on the DR's desk, where it can sit for up to 48 hrs before being signed off on, then hope it gets faxed back to the right pharmacy, then wait who knows how long for them to get it filled.  Needless to say, calling my request in straight to the nurse isn't SOP, but she understands my predicament, and doesn't mind me doing an end run around the "proper procedure".  If you don't get through to the nurse right away, say you end up having to leave a message, call them back if you haven't heard from them within a couple of hours.  There's an old saying that the squeeky wheel gets the grease, and that's true when it comes to dealing with DRs these days.  If your DR continues to be inattentive to your needs, you may want to consider finding a new one.  Just a thought.
If you don't get any results in a timely fashion from your DR, by all means, follow up with researching what local programs are available in your area.  Even in rural areas, there are usually programs in place to help with transportation for people in need.
Good luck to you and keep us updated on how things are going for you.
Leigh Ann 
•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 45, spawn-free


Veteran Member

Date Joined Feb 2007
Total Posts : 553
   Posted 3/30/2011 9:17 AM (GMT -6)   
If you live in the united states contact the county health department. There is one for every county in every state in the entire country. (sometimes they double up) I used to work for the health department here in Mclean county in Illinois.
First, they might have the program where they will send transportation to you for medical visits. If they don't, they will have alternative programs to cover that function.
Second, they should have a program that offers non-medical assistance for helping around the house. If they don't, they should know where to find it.
You should be able to find your local healthdepartment by looking in the goverment section of your phonebook. You can also look for it by google healthdepartment and the name of the county you live in.

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