I AM NOT ASKING YOU TO READ THE ENTIRE THING, I just know for some its easier to articulate a response when given a vast amount of information; when at extremes such these I tend not to cover anything that may be seen as beneficial. I have already seen the effects of "covering up" symptoms I had just because it showed signs of weakness. If you wish to read the entire thing I think it may help understand more (obviously) but I am not asking you to. Feel free to skip to the bottom where I reiterated the questions in a smaller more condensed form which require less than a minute to read. Thank you for your time and hope you will find the same relief and healing we all desperately crave.
I have been gone for awhile as I tried to separate myself from any online pain support forums as a test for myself. My parents think all my symptoms are in my head and my mom (whom I still believe is bipolar) even went as far to swear I was a hypochondriac. She called my doctor and told her she'd stop payments if she was not allowed in one of my appointments. I recently turned 18 past August so legally I don't need her in the room as before; I continue to keep her informed on whats going on but if you cant tell shes not one to believe what I am saying. Bla bla bla bla she meet the doctor, I have never seen a doctor be so disrespectful to another adult and even told her in the nicest way possible that she strongly urges that she (my mother) never go to an appointment with me again. My dad (who is actually paying for this) fully believes me and just tries to deal with my psychotic mother. I will say my mother has made my condition much worse and even go as far to say she the point source of it but I continue to tell myself otherwise. I ask not to try to persuade me because I am leaving out some very key personal details of some abuse issues from when I was an infant which correlate to some permanent brain damage I still sufferer from but was told at a young age I should never worry about it. But I am back for now! I just wanted to take a lapse to see if I really was a hypochondriac and if reading about others in pain just made things worse.
My question for today is when you are in intense pain does nausea often come with it? I know many of you take narcotics for break through pain and the nausea can be an unwanted side effect of the medication and I am not talking about that. I am currently medication free minus my nighttime cocktail. I stopped the medications I was on with my doctors approval as I received little to no relief and I have spent nearly $3500 in this year alone on doctor visits and medication. I know there is no magical pill which will fix everything and thats why I cut the medication out and resort my spending to treatments and doctor visits. Its not my family cannot afford the medication we have (according to our pharmacists and doctors) very impressive health coverage and my father has recently received much needed financial success. I just have a sudden sense of urgency to figure this prolonged problem out and feel bad wasting my dad's hard earned money on something he hates and that doesnt work in the first place. I only take medications that my doctor pleads me to take one being Zanaflex however today is probably my last day on it. I only take it at night and have taken it during the day as requested by my doctor however like many medications I feel like its just a sugar pill after 5-6 days. I don't receive any relief from it however when coupled with my new portable tinge unit, yoga, physical therapy, heat pads, and self hypnosis, I and my therapist have noticed some muscle tension relief. I can't see how much the relief is but I can feel is when I massage my shoulders. According to my physical therapist, the first day I came in she had never seen such muscle tension and stiffness in a patient this young since Med School and actually erased my personal rating of muscle tension from an 8 to 10. She has now separated the muscle tension into separate portions of my back and 3 weeks of 3-5 daily use of Zanaflex along with seeing her 3x a week has lowered my back tension in the shoulders from a 10 to a 9! This is the first sign of any improvement and you don't understand how happy this made me! Days like today she teared up when she had to write down a 10 for my shoulders as I have worsened for no apparent reason. Tomorrow I am receiving my 4th treatment of Pinpoint injections to relieve this muscle tension and she wants to try Cortisone instead Lidocaine (what i used with my 3 previous treatments). So far we havn't noticed any improvements and infact days like today make it seems like its getting worse.
SKIP HERE IF YOU WANT TO JUMP STRAIGHT TO THE QUESTIONS (accidentally got off-topic and here are the root questions)
Sorry for going so offtopic I just have alot on my mind and have only slept 2-3 hours over the past few days so I'm a little out of it. This brings me back to my original question. On days where the pain is so bad you don't know how youll manage to walk from one room to another, do you ever feel nauseous? The past few days my pain has flared up again and without medication to numb it I just try to suffer through it and ignore it. I know the power of the mind and have seen it but I have had constant nausea for days. Its not a stomach bug as I have no loss for apetite infact feel better when I eat. If I am sitting up or moving around my head and body singe with pain and I feel like I am going to vomit. I have had this for months however usually its a dry heave (is that how you spell it) and I can prevent myself from physically vomiting. However recently the dry heaves come every 5-30 minutes and one small movement in a way my body doesnt approve Ill straight up vomit. Dont mean to get into gruesome detail but last night I was walking to my room and my foot was caught around a wire which I didn't see because the lights were off. It wasn't a terrible jerk but it moved my foot about 40 degrees laterally (which causes it to crack). It felt like a rocket with the pain shooting up and out and you can imagine what my stomach did. I was more pissed that now my medication was out of my system than the vomit everywhere as I didnt want to redose for another few hours and thus...I had 45 minutes of sleep if even that night.
Another question involving medication. Does anyone seem to have an abnormal tolerance to just about any and all medication. I have battled with this issue even from an infant and this always bothered doctors as they didn't want to increase my dose at such an age. I tend not to react to any chemical until I reach levels of that of a chronic user. This goes for caffeine, cymbalta, lyrica, zanaflex, prozac, seroquel, ambien, lunesta, prednisone, lidocaine, zyretc, abuterol..you name it. I was up to 120mg of cymbalta daily in just 5 weeks alone as I noticed minimal side effects. I reached the optimum dose of lyrica, zanaflex, prozac, seroquel, ambien, and lunesta and didnt receive its benefits until either the first week of use for medications such as ambien and lunesta, or until the optimum dose was reached in cases such as lyrica and cymbalta. My doctor in fact tells me to take certain medications especially sleep aids sublingually to bipass my liver and kidneys. I personally think my pain, insomnia, and anxiety just mask the effects of the medication but its strange as I have had this problem my entire life. As a child I had to go to high doses of antihistamines to even notice minimal improvements, same is to be said for when I had to be sedated as a child for other treatments. The doses which would normally have a child blacked out like a young girls first experience with everclear instead had me running my mouth and just very tired.
Last question is a quick one. Does anyone know someone/a website/ support group where I can get semi professional advice and possible diagnosis. I need to figure out whats wrong with me fast as I am running out of time and if you can't tell by this long post I can keep talking and talking and talking. Not that I don't receive support from yall, its just I have alot I need to talk about and to see where I can go from and I have not found a doctor who will just not go there course of treatment and then send me to somewhere else. I know they are specialized its just having to reestablish oneself over and over with new doctors just makes it like they look at my file for what I am experiencing then and dont connect the past 17 months of chronic suffering.
SKIP HERE FOR THE TLDR WHAT ARE YOUR QUESTIONS
1. Does nausea come with pain?
2. What else can I do to manage pain (see * at bottom for current practice)
3. Are some people more tolerant to all chemicals and medications?
4. Is there somewhere I can have a long professional conversation with so I can tell my entire story and see what I should discuss with my doctor? I need a condensed more course of action approach then this current one which has gone on for way too long.
5. Is it really even safe to say I suffer from Fibromyalgia with no family history and being a very young male?
*Current pain management: yoga, stretching, tinge unit (electric shock therapy), zanaflex, pinpoint injections, acupuncture, 3x a week physical therapy treatment mangesium, omega FAs, self hypnosis, multivitminin and mineral, along with almost too healthy of a diet.
Previous treatments: every sort of exercise you could imagine, cymbalta, prozac, lyrica, zanaflex (on 2nd attempt currently), seroquel, NSAIDs, Etodolac, psychiatric therapy, phsyical therapy, chiropractic treatments, hypnosis, much more but just off the top of my head.