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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/30/2011 6:43 AM (GMT -6)   
First again thank everyone for response concerning Neurostimulars.  I would like to let all know not only am i new tto healingwell, i am ashamed to say i am just as new to computers.  Yesterday 3-29-11 i attempted to thank all who responded and found that one wrong move of my fingers and i lost complete paragraphs, it is very frustrating and i am just asking for some patience, which i know us all being cp suffers patience is one of the first lessons.  I am wondering if anyone has a problem month to month making sure your meds last.  I realized this winter that i need to increase the amount of meds i take each day, i have been scared to ask my doctor, although one of the reasons i keep going back even though he messed up my surgery, last febuary 2010 i did run out early i was terrified to ask, but i did and he was very understanding and had know problem giving me perscriptions, this was prior to the surgery.  When I started with him it was nov. 2010 at that time part of the paperwork i had to fill out included a contract stating i would not be given meds prior to the time they were due aknowledged that and of course signed the contract. So although i signed this contract he knew i wasnt trying to dupe him in any way these things happpen.  Of course if i had been habitual abuser thats another story.  At any rate this is one reason i would hate for him not to be my doctor, in 11+ years of this any many doctors i dont want to lose him.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/30/2011 7:49 AM (GMT -6)   

 

    Morning NiN53!

        You know.....I have done this very thing! Wrote some pretty legthy articles only to loose them at the last moment. Grrrr!

         Well, .....I found that if I highlight and copy it, my aggravation was a lot less if I lost it all. Just highlight your work and click your right mouse button and click copy every once in a while. If you loose it, you can then repost and hit paste. Another thing I have done in the past is to write your post out on Word or a similar program. You can proof read it right there and make corrections...then again copy and paste into the topic you desire.

      I'm thinking that maybe you should look into having your Dr, put you on an Extended Release Medication, and then using an IR med for BT. This may well indeed give you a chance to save up a few BT med's when you get in a tight spot. I'm thinking mrsm123 or straydog wrote a pretty good reply to a member here recently about this. It was spot on!

      Hopefully one of them will have a good reply for you on this. I just now myself got my med's adjusted properly and am able to use the BT med's in this fashion, thus I now have a few left over for a rainy day.

      Many of the members find that when they call in a refill, their Dr is out of the office for one reason or another and it can cause problems when you only have enough for the day of the refill due date.

     Good luck! If you need more help about saving your work, just holler. One of the other members or Moderators will be happy to help you.

     SE wink

 

 


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 3/30/2011 7:58 AM (GMT -6)   
The good reply you are talking about is on "when are you done with pain meds?" It's on the 2nd page on the forum. At the top and bottom of the list that lets you choose the page. Right now it is on #2.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/30/2011 8:17 AM (GMT -6)   
tongue  Thank u for your response, i take 60mg. ms contin which are extended release, then percocet for bt.  In the past say yeas r 2000 until maybe 2004 i was really having problems making the meds last.  At some point during this time i decided to stop taking all narcotic meds i then went through the worst nightmare of my life, that being withdrawal, i wished i was dead it was so awful.  After 1 month of that i went back on meds, at that time i was taking methadone 10mg 5xday.  The one thing that came out of that was to make sure i never ran out again.I even went to NA meetings, but since the theme is total abstinacse i was so out of place being told the pain i was feeling was maybe in my head, no harm to NA but i do have mri s to prove it is not my head.  With cp suffers it is a very fine line between taking the meds to improve quality of life or addiction.  When i was on methadone, i made about 2 visits to er for different things, as soon as i mentioned what meds i was taking everybody started looking for my arms u know inside like the elbow area and in between my toes for needle marks, of which i have none. Methadone was the best medicine for pain i have ever taken but the stigma of being on methadone was getting more difficult every year, the doctor i had before the doc i have now refused to prescribe thats when i wass forced to take what he offered which was 60mg ms contin 3xday. and the percocet for bt pain, methadone is not expensive like the other narcotics med out there,  one of the best things about this whole process is through medicare i have great prescription coverage.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/30/2011 8:29 AM (GMT -6)   
 
  NiNi, when you came off the methadone, was it under a Dr's care and guidance?
 
     From some of the reading I have done here on Methadone, it is the one medication that you must be very careful with, not only getting on it, but comming off of it as well.
 
       Many of the members here will advise you to only do this under a Dr's care, and I would advise the same for your sake.
 
       Take care!
 
  SE wink

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/30/2011 8:32 AM (GMT -6)   
I forgot one other medicine i take is for my fybro. it is neurontin 300 mgs 3x day. This i found to be very effective in helping with fybro.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/30/2011 11:08 AM (GMT -6)   
screaming eagle yes i was prescribed by a doctor for the methadone. The thing is he was my gp, i was taking narc meds before pain management. i loved my doctor but he was almost to compassionate, by the time he left to take a job that was financialy better for him. saying that i had been on methadone in very high doses approx. 5 years, when i left him i was taking 10mg. 10xday until i had to go and find a new doctor i choose a pain management doctor. i went from 100 + mg meth a day to 140 mg. for the month, when i showed the doctor the last bottle i had and he realized how much i was taking, honestly intill that time i though it was normal after my first visit to new pain management and the look he gave me when he saw what i had been prescribed was enough to tell me it was not normal. at any rate of course i went through some withdrawal and had to adjust to the amount new doc gave me sadly for he was just the 1st in a long line of pain management docs i went to before i found the doctor i am with now. also my search for pain doctors was not doctor shopping, the first doctor passed away after, second well just let me say i never went to more than 1 doctor at a time. by the time i found the doctor i have it has been a rollercoaster ride and not one thats fun although i have never been on one im told they are fun. thank you

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16295
   Posted 3/30/2011 4:01 PM (GMT -6)   
NiNi53 congrats on entering the computer age, lol!!! Oh, I can remember when I first got a computer at work. It sat in my office for one year untouched-never turned it on, lol. I still used my old word processor and was the last one to start on the computer at the office. I took a lot of ribbing over that. I was terrified of the crazy thing, now its like what did we do without them. When they finally converted our bookkeeping over to the computer I had to learn how to use the computer. Most people I know are self taught and once you get over the fear of them its great. My daughter use to say to me, mom all you do is just hit the buttons, it is not going to eat you, lol.

Something you may need to consider if you see you are running short and it keeps happening then it may be time to either increase your pain medication or be placed on something different to help control your pain. That is a pretty good indicator your current medications are no longer being effective on your pain. You may have a great relationship with your dr but if he see's a pattern begin to develop with you running short, you are risking being fired by him as a patient and being kicked to the curb. With all of the hype these days over drugs that is a very real possibility. These drs are running scared when it comes to pain medications. That is another little stigma attached to CP patients. I think now that REMS is in place with pain mgt we will see all drs that are prescribing narcotics have their patients sign Contracts. My PM dr did not do this, she did not believe in them, however Jan 1 of this year because of REMS she got a dr friend to give her a copy of the standard Contract and all of us signed one to go in our charts.

You are so right about Methadone being a good pain reliever for some people. However, it is not for everyone as we all know when it comes to medication. It is a what I call a last resort type of medication to go on because of the stigma placed on a person that is on it for pain control. Some people are not responsible enough to be on a medication like Methadone because of the half life issues with it and the chance of over-dosing. It is not one of those that you can take an extra pill for pain because a person runs the risk of not waking up again. Some pain medications if taken more than prescribed will not have any effect on the pain too and then an extra pill was taken for nothing.

It is so hard to find good drs these days that is for sure. Take care.
Moderator Chronic Pain Forum

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/1/2011 2:00 AM (GMT -6)   
Good morning NiNi53!

I thought a little more about your question of running out of med's too early, and offer this suggestion to you. Most insurance company's will fill you're script within 48hrs of the last refill date.

However; this will take some planning on you're part and you will need to call in the script into you're PCD a few days in advance so that you can hand carry it to your Pharmacy. Some Dr's just won't do this for you, but then again some will. I myself always call three days in advance, just in case the Dr is out of the office on my refill date. Usually the PCD office will have the script ready to pick up the following day, and I promptly have it filled. I don't always do it this way, but have on more than one occasion. By all means, do call in your script in early, but it will then be up to you when you have it filled.


This gives me a two day advance and I then have enough just in case the DR is out of the office or is late getting my script signed the next time. It can be a comfort knowing that you have a couple of extra days of backup med's. I wouldn't necessarily practice this every time as it may alert your PCD and then your intentions might be questioned for doing so.


As straydog suggested, please do be careful about running out all the time and calling in because of it. It really does sound like you need an adjustment here soon. It is no fun running out of pain med's and that in it's self, can add extra stress to an already difficult situation for you.

Take care,

SE wink
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."
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