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Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 4/4/2011 9:36 AM (GMT -6)   
Good Morning Chronic Pain Family!
     It is another beautiful Monday morning! Time to start another busy week. If we are careful and patient with our bodies we can make it through the week without biting off any heads! Which is always a plus   smilewinkgrin Regardless of tired, sore and exhausted bodies....  There are still tasks to complete, jobs to do and appointments that need to be kept.  
      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing. Even you old time veterans who are lurking.
How are you feeling? 
What was your pain scale over the weekend?
What are your major plans for the week?

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 4/4/2011 11:29 AM (GMT -6)   
Just another week of the usual hecticness and such.  Stuff going each day. 
I've had to let doctor appointments and working on my health issues go for the last few months w/ having the girls.  I've got to get caught back up.  I had a blood transfusion in September and am still very anemic.  My Vitamin D levels are still way too low.  I go on Thursday to get cortisone injections in both wrists and am getting cervical trigger point injections w/ my PM. 
Wishing everyone a good week.  --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 4/4/2011 12:48 PM (GMT -6)   
Pain has been the same, but that is mostly my fault at this point.

Clarity has come and I have slowed down the volunteering to better care for myself and family. It was not an easy decision to make. We sat down as a family and worked out which ones are most important and are working together to only help where we agreed to and to address any changes as a family. I didn't get to go to church or do much this weekend because I had a stomach bug. My youngest son brought it home and kindly shared it with me. We are feeling better, but I forget how much illness takes out of me.

This week is full of rest, school, and crocheting. Gardening in the afternoons with the boys if possible, mostly prepping the soil for flowers and vegetables. I am hoping to hear from the PM doc today about increasing meds. I have had to use breakthrough meds each day.

Regular Member

Date Joined Mar 2011
Total Posts : 22
   Posted 4/4/2011 1:26 PM (GMT -6)   
Mrs. Dani said...
How are you feeling?
What was your pain scale over the weekend?
What are your major plans for the week?

Pretty tired today, but my pain level is better than it was last week (at least so far).

My energy level seems to be improving -- I was actually able to spend the day out with friends on Saturday AND got my nails done and went to the grocery store with my husband yesterday. Usually, I can only have one day of activity, and then I need to rest for a day or two... so this is good.

Only major plans so far: Housekeeper is coming today, and tomorrow morning, I'm having my first meeting with my new PCP. A little nervous, but hoping for the best. Did a lot of research to find the best PCP in the area when I found out my previous (and terrific) PCP was switching to a new medical group that doesn't take our insurance. Wish me luck.

I ordered and have been trying a new raised sleep pillow for my legs to help my lower back. So far, I'm finding it uncomfortable. I keep kicking it out of bed during my sleep. Before, I just put a couple of regular pillows under my knees. Anyone have any experience with these things?


"No one can make you feel inferior without your permission."
—Eleanor Roosevelt
DX: Fibromyalgia, myofascial pain syndrome, spinal stenosis & compression, bulging disks, headache, osteoarthritis, facet joint pain, tendonitis, genetic condition making me prone to clots, dizziness (from blood thinners). MEDS: Lyrica, Celebrex, amitriptyline, hydrocodone, oxycodone

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 4/4/2011 1:27 PM (GMT -6)   
This weekend was bad for me, though it's largely my own fault. Sunday was my Dad's birthday but we decided to celebrate on Saturday night and because of the rest of the family being caught up with other things I ended up having to prepare and cook dinner and do his birthday cake. Saturday started out okay, but by the time dinner was done my pain levels were skyrocketing. Saturday night was one of those nights where I just wanted to curl up in a corner and cry with the pain - enough to make me feel dizzy and nauseated and just horrible. My knee is playing up badly too - my legs are always badly swollen with the CRPS, but my knee is more than twice normal size right now :(

Sunday and yesterday weren't much better. I still haven't been to sleep and it's 4:30 Tuesday morning. Seeing my physio in a few hours though, so hoping like crazy that she can ease things for me a bit.

I don't have any serious plans for this week. Just resting at the moment and waiting for this flare to pass, I think.

Hope all of you have a good week.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Regular Member

Date Joined Jan 2011
Total Posts : 230
   Posted 4/5/2011 1:17 AM (GMT -6)   
This past weekend was okay, the weather kinda stabalized so it wasn't super hot, however where I keep my horse the owner had gone out of town for a few days, and as a result I had to take care of her critters for her. The first day was after my MRI and that morning I'd already had to deal with having my horse's hooves trimmed, so I went right afterwards -- it was 86 degrees, and my body doesn't regulate heat well. Combine that with how baddly my CRPS flares up in the heat... I was out there for 2 hours, feeding and watering everyone, and by the time I got home I was red faced, swollen, and ready to pass out. I did my best not to collapse onto the tile floor infront of the AC vent and try to get my body tempature to lower. The second day the temps were higher, 90, but I'd prepped all the feed early in the morning, and took my Mom with me when I went in the afternoon; we were only there about an hour, and I wasn't nearly in as bad a shape as I'd been the day before.
Saturday was hectic as I was supposed to make the hour drive to see my boyfriend and meet some of his family; very nice people, and we had a wonderful few hours just chatting over coffee. Ran errands, and had a two hour indecisive attack in the craft store over what yarn I wanted. I'm still not happy with what I picked up and will probably return it next week when I'm back there for a doctor appointment. By the time I hooked back up with my boyfriend I was so tired and sore I passed out for almost two hours; my arm was horridly swollen and I felt disoriented. When I woke up though he had coffee waiting for me and could tell I wasn't happy. I just wanted the comfort of familiar things and decided that instead of staying the night I was gonna push myself and make the hour drive back home. He understood why, but was worried about all the driving I'd done. Made it home safe and sound however. We did get to spend a couple hours talking, trying to iron out some things to see if we're going to be able to continue to make things work.
This week will be quiet, mostly just trying to catch up on projects. Trying to help my Mom plan out a small water feature in the back yard near where we have the duel-hook bird feeder so that we can offer up water to the cotton tails and chipmunks that frequent our yard. The doves, finches, sparrows, and even the hummingbirds like to drink from my pond's waterfall, and also take baths there. It's really cute to see the bright sun beating down on this metallic little hummingbird as he happily splashes in the top level of my fountain. :-)
Next week will be the exciting week. I see the surgeon to review my MRI films (which I will pick up tomorrow or Wednesday) to see whether or not we can do my SCS surgery. Two days later I'll see my PM doc for my monthly script and hopefully have good news to share with him. In the mean time this week will be Parent/Teacher conferences and school book fare.
I hope everyone had a good weekend and that your pain is being kind to you.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled, on Percoset.
February 2011 successful SCSU trial
No surgeon willing to do my SCSU Implant

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 4/5/2011 10:01 AM (GMT -6)   
Well, going to try and have a slow week...taking things easy...
will be starting on prednisone on Saturday, my rheumy wants to see
how it'll help, it's a large doseage tapering over 5 weeks, it's
not the medrol dose pack. I hope it won't effect me here, but I
do have anger issues on steroids, so please know I mean well...
The weather is nice today, with getting hotter by the weekend in the 80's...
will get my shorts out soon, eh...
I'm doing okay just having some sjogren's flairs at night...
and I'm hoping to get into a needlepoint class in August, finger's crossed,
will be a way for me to get out and have some fun, so far only dropped one thing this week
with my left hand and that hand doesn't have the Arthritis in it.....
Wishing everyone well and warm spring weather...
(((((((((((((((((((((((((((Hugz to All))))))))))))))))))))))))))))))))))))))))
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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