No - not invading my privacy at all. It stands for Complex Regional Pain Syndrome - formerly known as Reflex Sympathetic Dystrophy (RSD). It's hard to explain (even the medicos haven't worked it out yet) but it's a neuropathic pain disorder that usually starts after trauma. It usually affects just the limbs, but sometimes the trunk and sometimes internally as well. It also spreads, as it has with me - mine started with minor knee surgery nearly 12 years ago and it's now everywhere.
They think that it involves the central nervous system - that something goes wrong in how the brain and the rest of the nervous system interpret sensory input - especially pain signals. Which basically means that the injury heals but it doesn't stop hurting - and the pain is usually well out of proportion to what would be expected. It also affects the sympathetic nervous system and so alters things like blood flow patterns so we get skin that's warmer or (usually) colder than normal, odd colours, changes in hair growth, sweating patterns, skin atrophy, muscle atrophy, dystonia. Lots of swelling - my doc thinks that I'm probably lugging about
10kg of fluid around at the moment, not a bad effort considering that I only weigh 55kg overall. I've got a few photos on my website HERE
if you are interested in seeing what it looks like.
You're right about
this forum. I'm pretty new here too and it already feels like I've been here for years :)
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension.
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.