Please welcome Sore42long~

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Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 4/12/2011 11:02 PM (GMT -6)   
I found this first post of 'Sore42long' in the middle of a thread so I moved it out here so everyone can welcome you to the forum....so here it is....

Chutz

hi ,I am new to this group and glad I found it !I also read the rules ect. Its good to know others who may understand what your experiencing.Ihave thorcic outlet syndrom most painful thing Iever experienced ,somedays I dont get up for long as everytime I move my arm hurts ,or ice cold hand or cramps ,its nasty.Lucky I'm going for surgery soon!Till then Ifeel my life is on hold .Pain meds help manage but also make me tired.I was a very active person now all that changed.Last time Idrove my car ,I had a huge cramp ended up going in wrong lane!So I stay home alot and restrict most activies due to pain.
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
~~~~~
Against the assault of laughter nothing can stand.
Mark Twain

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 4/13/2011 5:49 AM (GMT -6)   
Hi Sore42long

Welcome aboard. i am glad you found us. Even tho I dont have what you have, i to am in pain throughout a 24 hour period. each of us have pain and we have reached out to one another to seek out pain management. i really hope that your surgeries help you. Keeo us posted before your surgery- and after the surgery. We are here for you.

Soft hugs

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 4/13/2011 8:58 AM (GMT -6)   
Welcome. I'm sorry that you have so much pain, but this is a great place for support! I hope to see you often.

Hugs,

Flower

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/13/2011 9:04 AM (GMT -6)   
 
 
  I found sore42long on an old thread, and was hoping he or she would make it over here. Chutz stepped in and started this thread in hopes sore42long would see it and we could give a warm welcome.
 
      Sore!...if you do make it, "Welcome to the CP forum!"
 
           Take care,
 
    SE wink
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16303
   Posted 4/13/2011 3:53 PM (GMT -6)   
Hello Sore and I too would like to welcome you to Healing Well's chronic pain forum. I am glad that you found us but sorry that you have to be here. At least by coming here you know that you are not suffering alone, there are a lot of us like you suffering with pain of some sort.

So, you have thoracic outlet syndrome, you have a very painful condition to say the least. A very good friend of mine had thoracic outlet and ended up having surgery. It took some time to find a dr that was willing to do the surgery back then because most drs did not do that kind of surgery. She found the very best one around and did well after her surgery. Her dr specialized in thoracic outlet surgery and he sure knew his business.

I read where you posted in another person's post, you said something about having surgery on your arm. When and what kind of surgery is going to be done on your arm? I am assuming its all related to the thoracic outlet. You also mentioned in that post that you had tried Lyrica in the past but stopped taking it do to the side effects. If you can hang on a couple of weeks they usually will subside. Also, the dr should start you out on a fairly low dose and slowly increase the dosage to get you where you need to be. I do hope you can give it another try.

I wanted to pop on and tell you welcome aboard. Take care and keep us posted on how you are doing.
Moderator Chronic Pain Forum

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/15/2011 11:47 AM (GMT -6)   

 

 

          bump! Sore42long I hope you see this now.

 

         SE wink


"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/15/2011 7:23 PM (GMT -6)   
Hi Sore 42 Long.  I am Lindaloo and I wanted to welcome you to this forum.  I am so glad you found us.
 
This forum happens to be one of the most wonderful places.  The people here are all very supportive and caring.  I hope you will come back over and over again and let us get to know you through your various posts and get to know some of the folks on here as well.  I can't tell you what a fantastic support they have been to me over the years.
 
I don't have thoracic outlet syndrome, but being a former nurse, I know about it and know it is very painful at times.  I have fibromyalgia and deal with the pain from that.  Like I said, over the years I have had my share of pain, and these fine people have been so wonderful to me and have helped me through it all.  I only hope you will find the same results for you.
 
God bless and keep posting.  It's been nice meeting you!
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 4/21/2011 10:13 PM (GMT -6)   
WOW!I thank everyone for the support ,not only am Inew to this site also not that computer illiterate also my thoracic outlet syndrom ,causes my whole right arm ,hand and shoulder to hurt so bad its hard to use the computer.However I saw a commercial for dragon nautrally speaking ,so Iwill not have to type.I plan to buy soon!as now my hand is icecold and blue at this time.Again Iam happy Iwas wecomed and for the good information from you all !I will keep taking the Lyrica which Istarted at low dose was suppose to go to higher dose ,side affect?I will keep reading this site and supporting others when Iam able to use computer . take care everyone !

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/21/2011 11:11 PM (GMT -6)   
Glad you finally made it here Sore!


Welcome to the Cp forum!

Please do come back and visit us anytime.

Take care,

SE wink
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 4/30/2011 8:03 PM (GMT -6)   
today ,I must be having a bad day !I wish the pain would be gone for just oneday !I've had to give up some many tasks,!I tryed to shop with neighbour and pain makes it unenjoyable ?I feel in someways why bother going anywhere at all,till surgery !Ineed a plan for not letting myself fall into a bad routine of not looking after myself! If anyone has some ideas or advice ,please comment ! thanks

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 4/30/2011 8:17 PM (GMT -6)   
Hiya sore42long

I wanted to welcome you to the forum, its a great place and everyone is so supportive. I hope you get some relief from your pain soon lovie, we all know what it is like to be in pain. ((((((hugs)))))) to help you get through it for now.
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/9/2011 6:10 PM (GMT -6)   
 its been a while since I been on computer,the main reason is my hand goes ice cold &pain gets worst.However Ido read the posts.Thank you Paula ,its amazing you had the perfect advice ,not shuting people out ,going for walks (when possible) also personal care ! I did get my hair cut short last week ,due to its too hard to look after .Even typing with my left hand its ,at the point now Iam getting too sore again,but wanted to thank you ,its  good to know someone understands.Iwill try harder to look after myself till my surgery date .Compared to last year ,Iwonder where myself has gone? I plan to have a shower today ,washing my face  is so painful,I'm lucky to do it every 2nd day.I have other news Iwant to post but must stop here .Again thanks for the support everyone ,take care  from michele yeah

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/10/2011 6:22 AM (GMT -6)   
So glad you found us Michele. But so sorry for all the suffering your are going thru. Sounds awful.

I hope you can find that appliance that helps you with your computer to be able to post. When is your

surgery and what will they be doing? Rest as much as you need to, your body needs that. Whatever little

things you can do is a big accomplishment. Remember to take it one day at a time and even one hour at a

time if necessary. I know how tough it is when pain consumes our body.

Have faith my friend,
Suzane

ps. I detect an accent in your writing? are you french by any chance and where do you live (if you don't mind me asking)

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 5/10/2011 2:07 PM (GMT -6)   
A big welcome from sunny south FL! wink

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/10/2011 4:38 PM (GMT -6)   
I'm going to send acopy of this to my surgeon ,as my main DR. retirered and it is taking so long to get the resaults of tests back.I'm at the breaking point,not a day goes by without Huge pain ,the pain meds help but do nothing for the the icecoldness in my hand ,simple tasks like washing face ect.have become increasingly more difficult!Ican not cook,clean ect.Iuse ice/hot patches ,magic bag  to ease pain /coldness.I still try to do things just take breaks in between,its very frusterating.Seems I'm not so much living but suffering and hoping surgery is soon .At least 6x aday my hand gets ice cold ,the wrist ,elbow, shoulder have flare ups thru out the day ,also shooting pains at all radom times.I would give up all material items Iown for this pain to be gone.Compared to last yr,the pain has more than doubled ,I realize canada's health care is busy and over burdened ,but I need to know there is some hope,that I will be able to return to having some  sort of less painful more mobilitly  in my life. Thoracic outlet syndrome,seems to be the most painful experience I've add!In canada ,not many DRs specialize in this also very over brudened ,congested ,long waitlist .I have to learn cope with this the best Ican!Seems that pain ,can take over yourlife and pain meds ,maycause drowsiness.I seem to have to rest alot! 

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 5/10/2011 4:41 PM (GMT -6)   
Sore, you are definately not alone, and I think you'll see in time that each of us have different reasons why but that we all have similiar symptoms and a shared condition, chronic pain.
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures have decreased the severity of pain but did not "fix" the issue. currently on 75 mgs of Nucynta (tapentadol) 2 to3 time per day. Its similiar to tramadol but with more opioid receptor activity. Can use percocet 5 mgs for breakthrough pain and 10 mgs of flexiril.

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/10/2011 4:46 PM (GMT -6)   
Hello ,sunny south FL...I'm in bc(rainy)canada !its May ,Tomorrow we expect rain storm ?! So have fun in the sun !!!

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/10/2011 4:55 PM (GMT -6)   
Im told,the TOS surgery is extracting the rib ,I'm told its apainful surgery with 80% chance of working.Ibelive the rib is pressing on nevers and bloodvessels.

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/22/2011 7:46 PM (GMT -6)   
Hi everyone ,Its along weekend where Iam.I went out to Prices Right Live game show yesterday ,today I've spent most of day in bed and very sore.Its good to get out of the house,seems being in pain,takes the energy out of me.I do hope every had a bit of fun this weekend!If you get the chance to see Prices Right gameshow ,it was so worth it!I didn't win anything ,someone sitting near me won!The live show is much different than tv show!
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