My Update--Lindaloo

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Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 4/15/2011 8:53 PM (GMT -6)   
A couple of people have asked me to post an update on what's been going on with me, so that's what this is.
I have been having a good amount of discomfort from the fibromyalgia and back pain lately.  I have been trying new medications, but the problem is, I don't respond well to most medicines.  It seems I have tried them all, well, not all, but quite a few of the pain meds, especially the long acting ones.  They give me headaches and I have a general feeling of malaise when I take them, so I end up going back to what I have been on for years, the Percocet 10/650.  The only thing is , it doesn't always work on the pain.
So to make a long story short, I went to the pain dr office this week and met with yet another ARNP who didn't know me from Adam, but who took the time to listen to my history.  To his credit, he went and relayed our conversation to the dr and she came up with changing to Oxycodone 15 mg every six hours.  I felt kinda of sheepish, as i didn't realize that oxycodone (without the tylenol) came in a higher dose.  I am a retired RN so I should have known I think, but oh well.  Anyway I took it today for the first time and the first response is excellent.  The pain is relieved and I don't have untoward side effects.  Plus, I don't have as much acetominiphen in my system to plague my liver!  I think this will be a win-win situation.
As for the cancer (endometrial and cervical), I am doing well.  I finished all my treatments and am getting my energy back and my hair, though short, is growing back in.  I even got it dyed a dark blonde from the gray just a few weeks ago.  I am feeling good, so don't worry.  I will follow up with my doctors and let you know how it all goes.  Thanks for your ongoing interest this past year.  It has been a year now too.
TMJ, aka Suzane, is coming to visit me in a few days for a vacation and she will stay with me here in Ocala, Florida.  I am so excited about this.  We are like two peas in a pod and I am looking forward to having my good friend here with me.  This will be so much fun, I just know it.  I don't think I will let her go home.  LOL.
My granddaughter, Kelly,  is turning 7 this next week and her party is Sunday.  Many of you have heard me speak of her and her sister Anna (age 2), over the years.  They remain my heart and I live for them.  (Very co dependent I know, but still.......)  They are both beautiful and healthy, praise God.
So my dear friends, that is my update for now.  I will continue to post and plan to keep in the loop.  Thanks for missing me.  I have missed you too.  I love you all.
Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/15/2011 9:05 PM (GMT -6)   
Hello Linda!

Hey! sound a bit better! I'm so happy that you are recieving a better form of pain med. Isn't it great to get some relief! smilewinkgrin

I always continue to keep you in my prayers, and if you don't mind, give Pete a call once in a while and check on him too!

Take care!

"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 4/15/2011 9:21 PM (GMT -6)   
Linda what a great post from you and so uplifting. I can see you sort of smile as you were typing. I know myself and a lot of others here at the forum are always interested in your updates.

Isn't it amazing how you feel when you actually have some pain relief and not have some lousy side effects mess it up. I do not tolerate medications of any kind well at all, so I understand fully what you are saying. I once became toxic on a blood pressure medication and another medication and did some time in the hospital sick as a dog. My dr at that time was an awesome dr and he told me if it was going to happen to anyone it had to be me, lol. He laughed and said normal people do not have those sort of things happen to them, I said I have been telling you from day one I am not your normal patient, lol.

I totally understand the grandchildren thing. We only have one and there will be no more. This does sadden me somewhat because my little guy will be 6 this month and I do not want him growing up so fast. I want him to stay little longer, lol. We do have a wonderful time together and when he is with me the world and everything in it is totally tuned out. He is the best medicine I could ever ask for.

I hope that you and Suzane have a great visit, just remember to slow down and rest when you need to. Keep us posted.
Moderator Chronic Pain Forum

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 4/15/2011 9:33 PM (GMT -6)   


   Thank you for sharing such wonderful news! It is really good to hear an update from you. I hope things continue to get better by the day. Your a wonderful woman with a heart of gold.


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 4/15/2011 10:35 PM (GMT -6)   
Hi Linda It's so good to hear that you're feeling a bit better with the pain. I'm very glad to hear that the cancer has been gone for a year. That's wonderful. Please keep us updated. Take care. I hope you're having a low pain night.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 4/16/2011 12:57 AM (GMT -6)   
I'm so glad to read about your improvements in many areas. I haven't been around regularly, so didn't know how you were doing until now. It's great your cancer treatment is in your rear view mirror now, although I know you'll need to be followed for awhile on a very regular basis.

My cousin is doing great, too, and her hair grew back in curly and whiter than it was. It really looks cute! She's been so busy and active....I think it has made a difference in how she lives life, although she was always active. I just visited her last night to bring her a thank you gift, as she helped me through my recent knee surgery.

And I'm also glad to see you finding something for improved pain relief. This is such a journey we're all on, isn't it?

Hugs and Cheers!

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 4/16/2011 3:07 PM (GMT -6)   

I am so glad to see your post, I read it right after you had posted but did not write then, I have thought of you allot of times and wondered how you were doing and how your treatment came out! I know that time is the determining factor on this, and that will be the test of success! With God's grace and your treatments everything will be fine for you! I pray that it will be so anyway! Take care of your self and enjoy your friends, family, and especially your grandkids! I continue to keep you in my prayers! And know that we are all here for you!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Forum Moderator

Date Joined Jan 2005
Total Posts : 9249
   Posted 4/17/2011 1:20 AM (GMT -6)   

We LOVE the good new and of course we love you too! Keep up the great reports and have a ball when Suzane is there.

Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
Against the assault of laughter nothing can stand.
Mark Twain

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 4/17/2011 1:31 PM (GMT -6)   
Linda you already know how thrilled i am that you are feeling much better. You have been thru some tough battles but with your strength and courage you came out with flying colours.
I can't wait to be with you and spend some quiet days talking and sipping on lemonade.

Love you tons.

One day at a time!!

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 4/18/2011 2:28 PM (GMT -6)   
Linda, wow your posts sounder so much more cheerful and
I'm so glad you posted...missed you a lot. Keep us posted on your
days with tmj...Hopefully this year will be so much better for you.
healing hugz, well wishes and prayers
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Dec 2007
Total Posts : 1235
   Posted 4/19/2011 12:57 AM (GMT -6)   
Hi Linda,
It's so good to read good news from you! I am glad that you are feeling a lot better overall and that you are finally getting some decent pain relief......this is good news.
The fibro, hopefully will ease some in the coming days and weeks, now that the rest of the problems are coming down too.........
I hope that you have a great time at your grand daughter's party.....even if it's co dependant, there is nothing wrong with that , when it comes to your grandkids!
Glad that you are doing so much better overall!!!!!
Stay that way!

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 4/19/2011 7:52 PM (GMT -6)   
Thanks you all for your kind words.  It's good to hear from some of my friends here.  God bless you all and thank you for thinking of me and praying for me.  I can't express how much that means to me.
Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
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