Nana, another way to check if it's CRPS or Fibro is the fact that one is localized (CRPS) and the other is wide spread. Usually CRPS results from an injury; say twisting your knee while hiking, or pulling a tendon while lifting heavy objects. The injury heals, but the pain remains. Physical therapy seems to make it worse, but so does not useing it. Infact the worst thing you can do is /stop/ using it.
As you may have read in my previous post to Patsy mine was diagnosed through a nerve block. If you've not yet seen a pain specialist, do so; they should be able to tell you if you've got fibro or CRPS. Some pain doctors use similar medications for fibro to treat CRPS, like Lyrica. Generally though when you get to a certain point narcotics are really your only option.
The hair growth is more then likely your steroids, as usually it's the affected area that has the hair/skin issues. I have not had any yet, though my arm does run the typical different tempature, obvious swelling, and different color as a result. While it's never been scientifically proven my pain doctor feels the fact that I take a daily hair/skin/nail supliment has probably helped me. I had originally started taking it to help my hair -- the high desert wrecks havok on long hair -- and have just kept taking it over the years.
Your throat and tongue could be totally unrelated. It could be anything from something like strep throat to an allergic reaction. I'm not a doctor though, so I can't honestly tell you.
However your burning pain, and coldness in the one foot does sound like CRPS. I know for me it's strictly my right arm. My hand and wrist gets swollen, and the pain is so bad I'd swear someone is twisting a red-hot corkscrew into various joints. Some days I can't even type or hold anything.
If you have any more questions feel free to drop me a line, or post them here; Laura has far more experience then I do as I've only been battling this for over three years. Besides, I think I've hit my limit for typing tonight as with the coming heat of summer where I'm at I'm being affected more and more; I hate being so sensitive to the tempatures. Remember most importantly... you're not alone. *gentle hugs*
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery