Roll Call (Stop by when you can)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/18/2011 9:40 AM (GMT -6)   
 
Good Morning Chronic Pain Family!
 
 
      It is another beautiful Monday morning! With a little luck you are enjoying warmer weather and getting ready for Easter. Hopefully, you are remembering not to over do it. Regardless of bunnies, candies and flowers.... There are still tasks to complete, jobs to do and appointments that need to be kept.  
 
      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing. Even you old time veterans who are lurking.
 
How are you feeling? 
What was your pain scale over the weekend?
What are your major plans for the week?

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 4/18/2011 11:50 AM (GMT -6)   
I am feeling low again. Family issues have come up that bring peace but also sadness.
My youngest son is going to be 12, has a mustache that must be shaved every week and has begun moping and having teenage mood swings. He asked my fiance and I what the big O was, and whether he was supposed to feel weird when girls walked by. Boy did my face turn red!
My pain scale was moderate, which for me is a 7-8. We enjoyed Palm Sunday as a family with palm fronds that my fiance and I folded with the Pastor and his wife on Saturday. We ate out at a Chinese buffet, the only place we get our money's worth with two boys who are soon to be 12 and 13, and my bottomless pit of a thin fiance~! It was a weekend filled with laughter and love inspite of the extended family issues.
My plans for the week are to pass some school tests with flying colors and rest. We are traveling to the in-laws for Easter dinner on Saturday, right after our church egg hunt. Crocheting to relax too.
I hope everyone had low pain levels this weekend and good plans for the week ahead.
Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw

Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, arthritis, kidney stones, depression, 9 pelvic surgeries for pain, ovarian cysts, adhesions. Fentanyl patch, Vicodin, remeron, trazodone, dicyclomine, Miralax, Colace, Multivitamin.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/18/2011 2:42 PM (GMT -6)   
I feel bad, ill.
I started the prednisone on the 9th April and from the 9th to the 14th I had no bowel
movement, consipated and force one on the 14th then on this Sunday all heck, pain
and bent over the tiolet most of the day then i went finally, but then had diarrhea
last night and was consipated and hurting again today, I'm been reducing the steroids
sooner than I'm supposed to, as that's what causing my problems, will be down to 1 pill tonight
and hopes that will help, drinking lots of water eating raisins, you name it I've tried it, I hope this clears up
soon...stomach hurts, don't even want to eat ever again.....
Hope everyone else is doing good...lots of well wishes and healing hugz...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/18/2011 2:52 PM (GMT -6)   
            Hello Chartreux!
 
                   I know it's not easy to get use to some of the med changes, and I have heard more than one member complain about the effect of Prednisone. Thinking about you and hope you can soon get through this.
 
      Hang in there!
 
     SE wink
 
 
             Monty's Mom, you hang in there too! wink
 
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

lolly808
New Member


Date Joined Apr 2011
Total Posts : 14
   Posted 4/18/2011 4:14 PM (GMT -6)   
Happy Monday to you all,

I had a pretty good weekend. Sleeping is always an issue with me. I get up around 4:30 am because my back is screaming at me to get out of bed. Even on weekends, when I could sleep in, I just cannot.

This morning was wicked. But I'm feeling better now. At work and trying to keep busy.

Hope everyone has a fantastic week and lots of low pain days!

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 4/18/2011 5:59 PM (GMT -6)   
I successfully coordinated a move this Saturday and didn't even get hurt. Sunday I was stressed, but with meds and a nap I felt better, and that never works! Today I moved a bookshelf from the first floor to the second, pulled a bookshelf from the den to my bedroom and tried to pull the grill up the outside deck staircase. I don't wonder why my back hurts. Tomorrow my husband has an interview with the local childrens hospital as a nurse on their pediatric inpatient or pediatric ICU floor. I plan to ride with him there. It is in the next large town over, so he would have about a 45min drive there. I went to physical therapy today, so my right arm hurts. My left knuckles hurt too, so when she gave me the icepack at the end I held them in there too. All my ice packs are packed away somewhere.
Treatments: gluten-free diet, Cpap
Medications: omeprazole, probiotic caps; multi-vitamin supplement; docusate sodium, fiber chews; zertec, ferrous sulfate, cymbalta, lamotrigine, ambien, alprazolam, plaquinil, sulfasalazine, methotrexate, leucovorin calicium, folic acid, motrin, tramadol, pennsaid, aspercream, nasonex, albuterol sulfate inhaler

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 4/19/2011 1:23 AM (GMT -6)   
Hi everyone

Saturday was pretty good. Pain wasn't bad. Yesterday and today are a different story. It has been cold and snowing the last couple of days. I guess mother nature forgot to give us Spring. I don't have anything planned this week. I'm waiting on my dr. to get the reports from the catscan and MRIs I had last Friday. I'm going to call tomorrow and see if they have received the reports. If they have, I'm going to make an appointment to see what the reports say. Wish me luck that there's not more wrong with my back and that the catscan turns out ok. I'm pretty nervous about it. I didn't realize that thorax meant chest. Now I'm wondering what they found there in the MRI I had last year.

I hope all are having a good sleep tonight and are low pain.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/19/2011 9:43 AM (GMT -6)   
 
 
  
   After all the very hard blows from my doctors have been grateful to loose myself in Easter preparations. Birthday plans for my husband. He has a sweet tooth so cinnamon peanut brittle, butter cups and a new recipe I have tried 2 times now to get right.  It is espresso candy bars with espresso buttercream and chocolate covered coffee beans. I had a thought that if it goes well I might include it in the Christmas baskets this year. I love making candy but my back is screaming.
 
    The girls classrooms are all getting candies and chocolates as well. Each of them has 4 friends they want me to make charm jewelry sets for. I have many little butterfly, bumblebee, dragonfly and flower charms. Swarovski crystals over every color imaginable. I have been trying to get that done late at night. I hope they like their Easter gifts. Easter of course comes with quite a bit of preparation just for the family, but it is always so much fun baking and cooking with my little Bumblebees. I always laugh that soon they will be better cooks than I am.  :-)   It is hard to remember to pace myself. Partly because I am eager to dive into a project and also, selfishly, I am eager to distract my mind.
 
     Pain wise... well, what can I say? I have had quite an increase in pain where the smallest deformity is, T2-T9. It looks like the part of my upper chest that sticks out on the upper left hand side, under my arm pit, is getting worse. Suppose there is no use worrying over it. June is my 6 month x-ray (I get MRIs the length of my spine each January and plain x-ray the length of my spine every June to measure my deformities). I suppose we will see then. Still I do hope this increase in pain will settle down soon or I can become accustomed to it quickly.
 
     I have had another bout of pain deep in my right hand side. This lastest "bout" lasts 6 days. It is my understanding that this caused by my kidneys. It is very tiring when it comes. It seems none of my pain medications touch it at all. Heat helps tremendously. At first, over winter, this untouchable pain would only last a couple of days once or twice a month. No big deal. Now it lasts up words of a week. I cant deny that it has me a bit spooked. I know nothing of kidneys or what problems there mean except pain and terribly swollen legs. Thanks to a couple of tips from Betsey last night was okay. I was even able to fall asleep rather quickly.
 
    My eyes are. Gosh, there I go again. When will I be able to just talk about it? Without crying? I have tried so many times and it ends up like it is now.. My friend told, "After everything you have been through, your spine deforming and all the pain, all your problems, your eyes are too much? You can get through this, look at everything else you've been through." He is right. I know in my heart he is right. ugh, see? there I go again. Crying. I hate to admit defeat but I have had to go back into therapy. I know, its just my eyes. It is just a hard part to swollow. 
 
     Heres hoping I can get the last of the jewelry done today.
 
*hugg*
   dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/19/2011 1:21 PM (GMT -6)   
Thank you SE, it's so nice of you, and I sure hope you are doing good.
I went to my pcp this morning and he said if It get's worse to call him..'
Well wishes and healing hugz to you ....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/19/2011 5:50 PM (GMT -6)   
Dani,
 
I'm sorry you carry such a heavy burden.  I hear the stress in your writing.  Gosh, I'm sorry your situation brings you to tears, but I certainly understand.  I have been there many times myself, so you have my empathy, dear girl.
 
I am sorry to hear all of your struggles here as well.  It stinks to be in pain.  I have so suffered with this fibromyalgia for many, many years, but especially the last ten years, since I have retired. 
 
I went to the pain dr last week and she had increased my oxycodone, so for the past week, I have been doing so much better.  It doesn't last me the six hours as written, but it lasts about five and it DOES work better, so I am praising God and feeling very grateful.
 
I will, as I always do, pray for all of my friends here on healing well.
 
God bless and remember I care for all of you.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 4/19/2011 11:10 PM (GMT -6)   
Dear Dani I have to let you know that I'm thinking about you too. So much to have to go thru. I am so very sorry that you're having to go thru this. You're such a dear dear friend. Please know that I'm praying for you and that you can get some peace. ((((((((((Dani)))))))))

love ya
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 4/20/2011 9:41 AM (GMT -6)   
I got my date for my SCS surgery last week; Wednesday, May 11th. This friday I will get all the nitty gritty details of where and when, what I must do before hand, what I can't do the night before. Aside from my surgeon my fantastic pain management doc will be there, as well as my sweet rep. At least this time I'll get to be out for the procedure, given they're taking off part of a vertibrae as well as everything else.
 
I've hit excited and scared as I try to wrap things up. I have three projects I want finished and out the door before the date but I fear I have lost motivation to work on them. The summer heat is coming and it not only saps my energy, but it causes my CRPS to flare to levels that make me question if I've taken my pain meds or not given they don't seem to help.
 
My pain was pretty bad over the weekend, back up to an 8/9 which forced me to spend most of it on the couch. I've been trying to stay positive and distracted from my pain by helping my friend with all her critters, but I fear my silence here is a reflection of the depression and pain I'm battling; it all seems so hopeless. Tears in my eyes on a regular basis. I keep hoping it's just my body getting used to my anti-depressants I started taking last week, but if not. I'm sure it doesn't help that tomorrow is my birthday, a day I have come to dispise. Plus of course the degenerative status of my relationship. When it rains it pours. cry
 
I know I have no reason to whine and complain, there are so many here who battle with worse issues then I do. I just feel overwhelmed and can no longer see the light at the end of the tunnel. My life has settled back into a predictible rythem and though it's comforting in that regard I feel as far as life is concerned I am just going through the motions.
 
Gah, I read this and realize I should not submit it. I do not want to overly worry anyone here, yet I know I need to vent how I feel instead of bottling it up. So please, do not worry about me.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/21/2011 12:02 AM (GMT -6)   
I have had a lot of trouble with my depression in the last weeks. The docs have me on two antidepressants at double doses so hopefully the crying and hopelessness will go away. Today was better so that is a start. It just needs to continue.
And my head pain remains pretty much the same. Tonight I started on decreasing doses of methadone as this med has not worked and also we will be weaning my gabapentin. It seems there is mothing else to try.

I am going to look into neuro-biofeedback and also gut testing for allergies and heavy metal testing.

Also have an orthodontic appt thurs for my braces.

Friday is Good Friday so church,

No Easter dinner as the kitchen is all ripped up for renovations. Maybe a nice restaurant for hubby and I.

I leave for my florida trip next wed.

Hope you are all having a low pain week.

Hugs to all
Suzane

Post Edited (tmjpain) : 4/21/2011 3:48:44 PM (GMT-6)


Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/21/2011 9:23 AM (GMT -6)   
 
 
         I caught my first cold since my back surgery last March, and I have been dreading getting sick in addition to suffering from Chronic Pain. shakehead ......Just glad its not the Flu! We all feel badly all the time, and then to get sick on top of it is a real downer.
 
              SE 
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

Fyrfli
Regular Member


Date Joined Jan 2011
Total Posts : 41
   Posted 4/21/2011 9:40 AM (GMT -6)   
Exhausted. Pain keeps me from sweet sleep, so 3-4 hours a night seems like my lot in life right now. Ugh. I am now starting to have nerve issues in my arms and hands, and dread what state I may be in a year from now. =( Depression due to pain, exhaustion, and well, just depression comes and goes in highs and lows.

Spent the weekend with my three boys, just hanging out mostly. It was a nice quiet weekend. Trying to clean up my craft room and get some jewelry finished...looong process of cleaning though haha.

Anyway, I hope you all have a great week, with low pain, and that spring is brightening your days!!
***Fyrfli***

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/21/2011 5:03 PM (GMT -6)   
Mikey you were sick just before we left for our holidays remember because you thought you might not be able to go. LOL

Gosh i just reread my post and i can't believe all my mistakes, i just cannot think anymore, my brain cells are slowly disappearing along with the memory.

Suzane

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 4/22/2011 1:00 AM (GMT -6)   
I am in total bummer period: two hospitalizations within six months b/c body rejecting food/water, severe stomach pain any time I put something in, lost a lot of weight--which very soon will get to be a problem--I'm surviving only on nutritional liquid supplements and occasional bowel of cereal. The only way I can eat is if I take pain meds, but I cut them down considerably b/c it was interfering with work (memory, motivation); have a bad problem with energy b/c lack of calories. I've had sooooo many tests, MRI, CT, many ex-rays just waiting for the cancer diagnosis. Posted something tonight on the IBS forum if anyone is surviving on just liquids? It seems the only way for me to live right now. Oh, and I'm pretty depressed, definitely related to all I've been going through (on meds for that too). What's it all about Alfie?



Ulcerative Colitis, IBS, GERD, Fibromyalgia and chronic ruminations about the meaning of life.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/22/2011 2:10 AM (GMT -6)   
lol! Suzane you are quite correct! My memory is bad as well! Isn't that awful!

I should have remembered because my glands in my neck were so sore at that time.

Glad the trip worked out though! We had a wonderful time. I called the renter of the house today, and was checking on her husband, because he has a very bad back. He too had surgery, and is still in a lot of pain.

Her name was Dianne...remember Suzane? :)

SE
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 4:40 AM (GMT -6)
There are a total of 3,005,376 posts in 329,235 threads.
View Active Threads


Who's Online
This forum has 161774 registered members. Please welcome our newest member, Audreyli.
205 Guest(s), 3 Registered Member(s) are currently online.  Details
Deep_sleep, Uniform Charlie, fdgdfhdff8801