How do I get started on here?

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Joeldriven
New Member


Date Joined Apr 2011
Total Posts : 10
   Posted 4/21/2011 12:59 AM (GMT -6)   
I'd like to know, quickly, how to navigate this sight, get to know people, and when there are chats. I live way out in the country and feel like no one understands me so I could really use the connection. For instance I see people have their DX at the bottom but I can't find my profile to add mine. I'm sure there are instructions on here somewhere but I'm either too lazy or just can't find them. Any help is appreciated. I look forward to meeting all of you.
 
Joel :-)

Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 4/21/2011 1:25 AM (GMT -6)   
Hi Joel, and welcome to Healing Well. If you go to the main page there should be a help topic, and if not, there is a help button up at the top. I'm sure one of the Moderator's can give you way better then I.
As for the "signature" at the bottom, at the top, next to LogOff, is My Profile, through there you can add/change info, like adding an email address if you want folks to be able to contact you that way, as well as create a signature for yourself.
 
The best way to get to know people is to tell us what's brought you here. For alot of us this is the best place to be; with others who can relate to what we're going through, share our fears and our tears with, as well as laughter and good tidings.
 
You say you live out in the country, the truth is that for anyone suffering from chronic pain you can feel alone and misunderstood even in the middle of a big city. The people that cast you odd looks, the doctors that don't believe your pain... we've all been there.
 
For instance I suffer from a rare nerve disease known as CRPS -- or Complex Regional Pain Syndrome. An evil thing that affects my nerves, and has them convinced to send debilitating pain signals to one specific part of my body (in this case my right arm, but it can affect any part). It's turned my life upside down and taken alot of things from me that I used to enjoy. I too live in a little rural town out in the high desert, where the majority of the population are senior citizens and vets, so when they see a youngish looking woman asking for help with her groceries I tend to get nasty looks like I'm lazy or something. But through Healing Well I've gained some insight into how to combat my depression, learned I'm not alone, and even met other wonderful people who suffer with the same issue I have. It's allowed me to ask questions about things my pain doctor wants to do to me, and given me shoulders to cry on when I felt like no one else cared or understood.
 
So welcome again, make yourself at home, and feel free to introduce yourself by sharing your story.

Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9255
   Posted 4/21/2011 1:27 AM (GMT -6)   
Hi Joel~

And welcome to the CP family. It does take a while to find everything so let me help you out. Do you see about your beginning post there's the title in big letters? Above that is a thin blue bar. Lettered on that is 'Log Off' 'My Profile' and 'Admin' on the left side. Click on 'My Profile' and you'll get to where you can work on your profile including a signature line, that's the stuff below people's names. We do ask that you try to limit that to 10 lines. Saving space leaves more resources for more posts and more forums.

And the best way to meet people it to do like you did and post away. Share information you'd like others to know about you and you will have lots of people popping in to meet and greet you. This is a friendly place full of people who really do understand the words Chronic Pain yet compassion for others is at the top of our lists. Who else can share how to live day to day other than someone else who's suffering like you are.

I too live out a ways...I'm in the woods of western Washington state. We're surrounded by forest land and I love it. I can't imagine living any other way.

OK, and if you want information on posting and the rules and regs, etc... directly across from your topic (the one up there ^ in the large letters ~ to the right is 'Forum Rules'. Jump in there and it will help you out.

We try to have weekly chats that are moderated/hosted but as we get into summer we find that the population dwindles and the temperature rises so often we put those things on hiatus until fall. But you are welcome into any chat room...it doesn't have to be the Chronic Pain room...and whoever is in there will most likely be happy to have someone to chat with. You will find, though, that the CP chat room is a bit of a 'catch-all' since most every forum we have includes people in pain.

Hope to see you around the place and get to know you...
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
~~~~~
Against the assault of laughter nothing can stand.
Mark Twain

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/21/2011 9:19 AM (GMT -6)   
 
      Hello Joel!
 
             Welcome to the CP forum! wink
 
                   It takes a little time to get used to the navigation of the forum, but I'm sure you will get used to it soon. We have a good group of members here, and we always welcome new members! smilewinkgrin
 
          Enjoy!
 
            SE wink
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

Post Edited (Screaming Eagle) : 4/21/2011 9:01:59 AM (GMT-6)


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/21/2011 10:03 AM (GMT -6)   
 
Dear Joel,

    Good morning! You are doing great so far. As for chats, we have a regular weekly "Chat Night". It gets very busy though so many members (myself included) also go to chat during the rest of week as well for more "quiet chat". You can usually find us each night in either "Anxiety" or "Chronic Pain". Feel free to join us each night.  Also, if you like I can add you to the email reminder list to notify you when it is "Chat Night". Welcome to Healing Well!

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 4/21/2011 11:21 AM (GMT -6)   
hellow joeldriven, i am so glad you found this site, its a wonderful thing to be with people like minded even if it is in a cp forum.  i dont know much about how long you have been a cp patient, if you are relatively new to this awful disease, you are probably depressed because your life has changed so much and in so many ways. i am glad you found us, i have been a cp patient for appr0x 11-12 years, i have already been through the blinding depression that comes after yu realize just how much your life is going to be.  i spent close to 2 years in bed, only going out for doctors appt.  sometime after and i dont know when, i realized that although my life has changed, i needed to adjust myself to my limitations. it was difficult at best but i muddled through and you will to. i know you cant go back but i wish i had know of healingwell so many years ago. anyway i am here now.  honestly i look at the different stories of so many of us including a 15 year old and i think my how grateful i am that i only have what i have. i mean 15 this child has more strenght than i think i do, what a strong young person. my point no matter how bad you are trust me there are others so much worse off.  on my bad days i try to remember that and count my blessings. so good luck to you, hoping you are having a low pain day, and stay with these wonderful people who chose to share there lives with us knowing more than anyone else what we go through
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 4/21/2011 11:24 AM (GMT -6)   
oh i sorry, about finding the site and getting tuned in straydog and several others will help you navigate through this, sorry i cant help with that, being at almost 58 i am just learning to use my daughters computer, she found the site for me and signed me up, for that and many many other things she has done for me i will always be grateful for my  babygirl.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Joeldriven
New Member


Date Joined Apr 2011
Total Posts : 10
   Posted 4/21/2011 8:40 PM (GMT -6)   
Thanks for all the help. I'm not having any luck getting into the chat, perhaps it doesn't support internet explorer 9 or something. I've had chronic pain for around 14 years. Only the last few years has it become severe. I've been trying to adjust my lifestyle for years with little success. I've always been a busy and active person so it's hard to listen to my body. It seems everything I like to do hurts. I'm trying to restore the floor in my son's bedroom. Even with knee pads I can only stay bent over for 5 minutes at a time. I rode this morning for about 3 hours to move some cows. That took pain killers, a shoulder brace, and a knee brace. Felt like I should've had my back brace on too but it's hard to wear with the shoulder brace. I could barely lift my foot to the stirrup. My knee ached the whole time and I couldn't find a comfortable way to carry my arm so my shoulder didn't hurt. It felt good to be out of the house and doing something though.

Joel
Too many injuries and medications to list.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/22/2011 2:49 AM (GMT -6)   
Joel...

I didn't read all the responses here....but I'm sure you got advice. If you have any other questions - ask away.

I think we have a great bunch of people here that really care about one another and that truly understand what it's like to like with chronic pain. I'm glad you are here. I wish you didn't have CP,,,,but, given that you do, I welcome you.

Look forward to getting to know you better. --Tina
Many, many health and pain issues.
Many meds - including Atenolol, Effexor, MS Contin, Dilaudid, Actiq (oral Fentanyl), Soma, Vitamin D, Iron (for anemia), Synthroid...and on the list goes.
Personal: I'm a Christian wife and mother; I have six sons and identical twin daughters.

ReadDeeply
New Member


Date Joined Apr 2011
Total Posts : 13
   Posted 4/28/2011 11:54 PM (GMT -6)   
Joel,

Welcome! I am new also, and am awed by how many warm, caring (and funny) individuals there are here! I have sort of jumped around from place to place, CP, Fibro, Lupus (haven't been diagnosed, but have nearly all of the symptoms and look forward to exploring this w/ my new doctor and hopefully being able to eliminate the possibility), and that helped me get to know a bit about the forum. Mostly reading peoples' posts has helped me get to "know" a few familiar names, and Chutz did a great job explaining basic navigation.

Enjoy meeting your new friends; I hope you find a source a strength and support here, as I have.

In friendship,

Susi
Fibromyalgia, Polyneuropathy, i.e., both arms, both legs, @ 90%, Hep. C, rheumatoid arthritis, carpal tunnel both hands, mobility problems--use cane to walk, severe vitamin D deficiency

Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 4/29/2011 10:44 AM (GMT -6)   
Joel, as a fellow equestrian do you have any sort of mounting block (either real or makeshift) that you can use? I know if you're a proud cowboy, like me, you don't want to reduce yourself to such things. However that's one of those little consessions you have to make as someone who lives with CP. I'm lucky in that my horse isn't much bigger then a pony; the bennefits of an Arab. Besides, never under estimate the short horse.  ;)
 
I know there's a company called "E-Z Up Stirrup", I don't use one myself, but I've met others with bad knees that use them and they say they work real well. Also for the shoulder, can you wear a sling while you ride? Or maybe keep your thumb hooked behind your belt buckle with your arm draped forward. This problem I understand as I have a bad arm too, and it really can interfer with riding. I actually started teaching my last horse voice cues like one might use for driving a team of horses, as well as weight shifting in my saddle; much like how one rides a motorcycle. It gave me the option to do one last speed event without having to overly rely on my hands.
 
There is nothing in this world to compare to the freedom one feels when riding a horse.

Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery
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