Need good thoughts/prayers, etc...

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Trudy2
Regular Member


Date Joined Dec 2010
Total Posts : 213
   Posted 4/21/2011 2:27 PM (GMT -6)   
Hi all,

I do not post here very much, but I do read the topics everyday. I originally had Acute Myelogenous Leukemia in 2004 and went through chemo and a bone marrow transplant. I have several complications left over from the bone marrow transplant and never made it to go back to work. I used to work as a restaurant manager, owned my own candle business, and also worked in a distribution center. All of those are very active jobs and I would never had been able to go back to any of the fields that I had experience in. I would have needed to be retrained to do a sedentary type of job. Due to chronic pain I cannot sit/stand/walk for extended periods of time. I need frequent rest breaks. My pain management doctor told me that I am disabled and not to worry about social security disability.

They originally awarded my disability on the first go around because AML is considered a terminal and very fast moving cancer. When I came back up for review after my bone marrow transplant, they denied my claim. Of course I appealed and continued my benefits. I also went for my appeal and had a face to face interview in my local social security office. This person continued to deny my claim. SO - I once again filed an appeal and to continue my benefits.

I am now at the Judge Advocate Hearing level of my appeal and I have secured an attorney. Today I just got the information in the mail for the new hearing. It is scheduled for May 9th and will be done via video conference because I am in Ohio and the ODAR's office is in California. My attorney is on vacation until April 25th - Monday. I do not know exactly why, but I am a nervous wreck over this hearing. We have been fighting for my benefits since they turned down my first review - that was in 2007. It has taken me 4 years to get this far.

Please, anyone that prays - please do so. Even good thoughts for my sanity between now and the hearing would be great! I would be most appreciative!!

Thank you for reading my ramblings!
Trudy
DX pyoderma gangrenosum, Acute Myelogenous Leukemia, Bone Marrow Transplant, Chronic Pain syndrome, Chronic Kidney Disease Stage 3, Major Depressive Disorder, Radiculopathy, Bilateral Hip Pain, Insomnia,Left Groin Hernia, Bulging Disk in Lumbar Spine, Tear in Lumbar Spine, Tendonitis and Bursitis in both hips.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/21/2011 2:34 PM (GMT -6)   
 
 
     Trudy, I will do for sure, as this issue is dear to my heart for some reason.
 
           It is horrible how they handle this type of claim.
 
         Take care,
 
      SE wink
"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/21/2011 3:02 PM (GMT -6)   

 

                Wow Trudy I can't believe what they are putting you thru with all that you

                are suffering. This is just so wrong.

                 You definitely have my prayers. So sorry for all your heartache. Just

                      remember to do one day at a time so you don't become overwhelmed.

                Good luck and let us know your outcome.

 

                     Suzane  turn wink


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 4/21/2011 3:42 PM (GMT -6)   
Hi Trudy, wow, I just read your post and I am so sorry that you have been put through the mess you have been. It is just crazy how the SSD people and all the red tape involved can get so messed up. I feel quite certain that once you have this hearing it will all be straightened out and some judge is going to be shaking his head wondering how and why your claim was denied. It is such a waste of their time when some idiot makes a bad decision on a claim such as yours.

My sister was denied and at the hearing which lasted less than 5 minutes the judge told my sister he had no idea why her claim had been denied because it should not have been. That statement is part of the record too. He told her in front of her atty on record that he was awarding her benefits and all past due benefits and that it should have never been denied.

Please do come back and let us know how things go at the hearing and please, try to calm down some.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 4/21/2011 4:02 PM (GMT -6)   
hello trudy, once again we are asked to convince the officials of our disabilities.  i think i find this almost as bad as being a cp patient. over and over we are accused of being anything from drug addicts to just lazy people wanting to live just to receive this oh so small pittence of monies.  its mind boggling, i will surely pray for you, i wish you had retained a lawyer several years ago, but as i always tell myself you cant go back. anyway since you have a lawyer im am very confident you will get what you so deserve.  after 2 years of trying on my own, i retained a lawyer, i am not sure if the same rules apply in ohio, but here in md., and dc the one thing you can be assured of is if a lawyer takes your case, you will win. these lawyers work only on disability cases, and are only paid if they win the case. once the lawyer looked over my files (all 500 or so pages) he took my case and in less than 3 months after starting i was receiving checks once a month and had already been signed up for medicare.  he was and i am sure still is a wonderful lawyer.  he had no personality at all but he was not going to be a lifelong friend, he did his job and did it well. i will send all prayers i can your way, even in getting this small amount of money it remains only one journey in a long line of journeys. i dont wish any ill will on anyone, but sometimes wish the people who sit in judgement of our financial lives walked in our shoes one day, its not pretty. along with not being able to work outside the home, the amount of money from ssi is not enough to live on, so we lose again and again. please do not forget that you paid into social security all the years you worked outside the house, its not charity.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/22/2011 12:39 PM (GMT -6)   
Trudy,
Many prayers that this will happen for you and that you will get approved...
Well wishes and keep us posted on this...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Backpain Sara
Regular Member


Date Joined Apr 2011
Total Posts : 30
   Posted 4/27/2011 4:01 PM (GMT -6)   
Trudy-Saying a prayer for you you get this SSDI. Sara
Chronic back and leg pain. Degenerative disc disease for 3 years and unable to work since injuring my back. EMG/nerve test shows peroneal sciatic nerve is being irritated from L4-L5 disc area. Meds-Oxycontin, Cymbalta, lyrica, flexeril,Wellbutrin, Oxazepam for sleep. TX-facet joint, trigger point, nerve block and epidural injections every year x 3 years with temporary relief only. Did PT.

Trudy2
Regular Member


Date Joined Dec 2010
Total Posts : 213
   Posted 5/9/2011 11:30 PM (GMT -6)   
I have wonderful news!! My ALJ hearing lasted a full hour and at the very end of it, the judge gave my SSDI a fully favorable decision that dates back to 2007. This is when they first attempted to deny my benefits.

I have had a huge weight lifted off of my shoulders! I never expected to get an answer today at the hearing, I figured I would have to wait by the mailbox. I am very happy!!

Thanks for all of the prayers and good thoughts from all of you!!
Trudy
DX pyoderma gangrenosum, Acute Myelogenous Leukemia, Bone Marrow Transplant, Chronic Pain syndrome, Chronic Kidney Disease Stage 3, Major Depressive Disorder, Radiculopathy, Bilateral Hip Pain, Insomnia,Left Groin Hernia, Bulging Disk in Lumbar Spine, Tear in Lumbar Spine, Tendonitis and Bursitis in both hips.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/9/2011 11:51 PM (GMT -6)   
Hey!...that brings a smile to our faces!smilewinkgrin

Congrats! Excellant!

SE wink
Moderator Chronic Pain Forum

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CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/10/2011 2:14 AM (GMT -6)   
Congrats. That's excellent news :)
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/10/2011 6:34 AM (GMT -6)   

 

 

   

          Yiiiiippppppeeeeeee!  yeah yeah yeah yeah yeah yeah yeah yeah

 

 

suzane

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