Aloha! I want to introduce myself....

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venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 4/26/2011 11:03 PM (GMT -6)   

Aloha everyone! I just found this forum last week and it is a God send. I've been posting in the RSD thread and a moderator suggested that I introduce myself to everyone in the forum instead of just one thread. I hope this is what he meant.

 

I am 52 and have had chronic pain for about 5 years. I was only diagnosed with CRPS/RSD about six month ago. I was forced to go on disability in 2005 and no longer work. More day’s than not I live with Chronic Pain. I live at home with my long time partner and 10 yr old daughter who both have ADD/ADHD. I also have 3 older children (girls 28 & 33, and son 38) who have given me 8 beautiful grandchildren ages 6 months to 16 years old. I am pretty much home bound and only have one friend with MS that understands what I’m dealing with (other than my doctors). I can do little except watch TV or play PC games. I find it hard to drive for fear that I'll hurt someone while driving. I'm not much fun to be around these days and hate the life I've lived over the past 10 years. What I need from this forum is a shoulder to cry on and a support system that will help me understand & accept CRPS. I want to know how others cope with chronic pain/CRPS/RSD and do everything else they have to do like dealing with family obligations.  I look forward to chatting with everyone and making some great online friends. 
 
My journey to chronic pain is a long story that began 10 years ago when I 42. It happened when giving birth to my daughter and is a rare event that occurs when giving birth. I'll try to keep it short so if you would like any more detail regarding what happened just let me know. => 6/10/00 Uneventful natural delivery of my beautiful daughter; 6/20/00 Angiogram w/Balloon; 6/21/00 Acute MI;  6/22/00 Off oxygen CABG (heart bypass/open heart) surgery; 7/5/00 Sepsis + Staph Infection; 7/00 to 1/00 Antibiotic therapy & wound debridement; Numerous angiograms; 2/05 CVA (stroke); 7/00-present unstable angina, occasional syncope/near syncope; 2010 CRPS/RSD.

Medical Team: PCP, Pain Medicine M.D.; Cardiologist; Neurologist; Psychiatrist.

Medicines: Crestor, Altace, Coreg, Lipitor, Trileptal, Aggrenox, Neurontin, Klor-Kon, Savella, Buspar, Endocet, Fentynl Patch, Nitro Spray/patch. (If you name it I've probablly been on it at some point)

 

 

 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/26/2011 11:37 PM (GMT -6)   
Venus,

Welcome to the board.  I always say that I'm sorry that someone needs this board and has to deal w/ chronic pain.... but as you've already learned - the support and encouragement here has kept me going on many days. 
 
(My baby is trying to type w/ me - so sorry for any typos).... anyway, I have a different diagnosis than you.... but a very similar medical team and could VERY much relate to your - "if you name it, I've probably been on it" comment on meds.  Been there, too.  I've been up and down and around the block w/ my health, doctors, meds, etc.  So, I can relate on many levels....
 
Anyway, I just wanted to welcome you.... hope to get to know you better....I'll write more later when I don't have a "helper" sitting in my lap :)
 
Take good care --Tina
Many, many health and pain issues.
Many meds - including Atenolol, Effexor, MS Contin, Dilaudid, Actiq (oral Fentanyl), Soma, Vitamin D, Iron (for anemia), Synthroid...and on the list goes.
Personal: I'm a Christian wife and mother; I have six sons and identical twin daughters.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 4/27/2011 12:27 AM (GMT -6)   
Hi venus2471
 
Welcome to the Healing Well Chronic pain forum, well if you want a shoulder to cry on, you will have a bunch of them here, and you will find them caring and compassionate shoulders at that!  You have definitely have came to the right place! It is to bad that you have reason to come here, as none of us want to have CP, but with that said you I do not think you could have found a better web site or forum to have come to! I personally think we have the most caring and compassionate people on this site that you will find any where on the internet! We well lend you our ears and when you are frustrated, or overcome with pain, please come here and vent, we all understand and can empathize with you!  You have our support, and again Welcome to our CP forum family !
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 4/27/2011 12:52 AM (GMT -6)   
The others before me gave you what it's all about here. You can vent, cry on our shoulders, scream, get awesome support as you've found out. I have a whole host of health problems. I'm sorry that you have CRPS. That's a dreadful disease to be diagnosed with. I've read about it, and I wouldn't wish it on anyone. Oh yes, welcome to the forum. You take care, and i hope you're having a low pain night.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/27/2011 2:11 AM (GMT -6)   
Good morning venus!

I too would like to welcome you to the CP forum! Were very glad you found us here, and yes we understand the "God Send" it was to you, that you mentioned.

It looks like you and I share some of the same things. I too have a family member who suffers with ADHD and that can be very difficult to deal with, but it is treatable not only with med's, but a good structure plan in place.

Also I see that you carry the Nitro Spray! I do as well, as I had a massive HA in 2002, and still suffer some Angina from time to time. (Kinda scary at times)

Anyway, I will agree, in that you have certainly come to the best CP support group on the web, and we want you to feel at home here with us. Feel free to vent away, or ask questions when you have a need to know something. The members here are warm and friendly and will be happy to support you.

If you have some free time please feel free to read the "Chronic Pain 101" at the top of our CP home page, and we also encourage new members to take a peek at the forum rules while their at it.

Again Welcome and Enjoy!

SE wink
Moderator Chronic Pain Forum

"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 4/27/2011 2:59 AM (GMT -6)   
I know we've done our little introductions in the CRPS/RSD thread Venus, but WELCOME once again :)

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 4/27/2011 3:19 AM (GMT -6)   
Welcome to the forum you have come to the best place It really is a place that you will always find support. Sorry that you need us but glad that you are here. lol



soft hugs

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 4/27/2011 7:39 AM (GMT -6)   
Also with your long history, feel free to offer support to those who need it. If you know the answer to a question or can offer info on a med you've been on, speak up! Sometimes the best way to get help is to help others. Welcome to the family, for we truly are one here.
Christina
Treatments: gluten-free diet, Cpap
Medications: omeprazole, probiotic caps; multi-vitamin supplement; docusate sodium, fiber chews; zertec, ferrous sulfate, cymbalta, lamotrigine, ambien, alprazolam, plaquinil, sulfasalazine, methotrexate, leucovorin calicium, folic acid, motrin, tramadol, pennsaid, aspercream, nasonex, albuterol sulfate inhaler

venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 4/27/2011 11:49 PM (GMT -6)   
Wow everyone thank you so much for the warm welcome. Apparently, I did find the right place. My heart goes out to each and every one of you. I actually am sitting here with tears in my eyes just knowing that there are not only others that can relate to and validate what I'm going through. It sounds like we all were living productive happy lives when all of a sudden the rug was pulled out from under us. I have to think there is a reason for this. I think back to all the times when I was working my 16 hour days wishing I could be a stay at home mom. You know the saying, be careful what you wish for...LOL...anyway thank you so much again for letting me be a part of your group and I look forward to getting to know each of you better.

I suffer from memory loss so if I forget a lot of things. I may chat with you and then can't remember who you are or what we talked about. What I do is I will just ask you agian who you are and what we discussed. Please don't be offended. it's just what I have to do. I call it my 'gimp syndrome'...LOL...

I noticed that there are chats that we can participate in. Since I'm in Hawaii there's a big time difference. When do these chat's take place so I can figure out what time it is here. What time zone is used for the chats. Right now we are 6 hours behing eastern time. I really want to participate. If someone can let me know how it works I'd appreciated it.
Aloha & God bless you abundantly!

venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 4/27/2011 11:59 PM (GMT -6)   
Screaming Eagle: (This is a bit of the subject) My daughter is on Meds and it's great for her ADD. Daddy doesn't take meds and the way he has learned how to cope with his ADD doesn't work. I agree with you about structure. It's so important. The problem is I don't have the energy and such to maintain the structure they need. Right now structure has gone out the window along with the rest of our daily life. She see's a psychologist and daddy takes her. That's my round about way to get him to get help. Anyway, how do you do it? Let me know.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/28/2011 12:21 AM (GMT -6)   
Venus,
 
Re: memory loss/remembering things - no worries at all :)  MANY of us suffer from that here! 
 
Re: time differences - I'm going to let someone else answer because I always mess that one up.  :)
 
Again, welcome....
 
--Tina

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/28/2011 10:07 AM (GMT -6)   
Hello Venus,

I'd like to add my welcome to the bunch. I, too, have found this forum to be invaluable. I have been here for years and I absolutely love the people here. They have saved my life (and my mind) on many occasions.

I have chronic and painful fibromyalgia and lower back pain. As the years progress, I am getting worse and worse too. The past ten years have seen a downfall in in my health.

But enough about me, let's get back to you. I hope you come here often and get to know us and let us get to know more about you. We love new members and especially love when they become "old" members.

You are at the right place and the right time. The folks here are wonderful. The other moderators are great and are here to help and we look forward to you becoming part of our family.


God bless.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 4/30/2011 11:47 AM (GMT -6)   
Thanks Linda and Tina for the warm welcome!
Aloha & God bless you abundantly!

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/30/2011 11:54 AM (GMT -6)   

 

   Just a quick note! Please check the chat room at any time...and you may also find someone there very late at night (all hours) There were four of us there just last night around 3:00am. We had the place rocking with laughter! smilewinkgrin

       One other thing you can do is announce a specific time that you will be there (state time zone) and extend an open invitation to all.

         Good to see you posting again...keep it up please, as we enjoy the company wink

              SE wink


Moderator Chronic Pain Forum

"The clock is running. Make the most of today. Time waits for no man. Yesterday is history. Tomorrow is a mystery. Today is a gift. That's why it is called the present."

NikiS
Regular Member


Date Joined Mar 2011
Total Posts : 129
   Posted 4/30/2011 12:32 PM (GMT -6)   
I would love to chat with some of you! I have been in severe pain for around 3 months now with no answers from my doctors other than "it might be lupus" and "we need a diagnosis before we can treat it" and so he is not giving me any kind of pain relief at the moment and he at first wouldn't even give me any steroids which do help relieve quite a bit, but now he finally broke down to give me a tiny bit each day till I can see the specialist. I am completely and thoroughly discouraged. I feel so alone and sad and cry because I want my life back. I can't do anything any more but lay in bed in so much pain and feel like when I talk to the doctors they make me feel like I am a bad person or druggie if I tell them I'm in pain as if I am trying to get pain pills from them, but they are not willing to give me the steroids I need that take the issues away and then won't control the pain either and I think its really unfair. I am at the end of my rope with all this and turning to you for help! I think you all understand what I am going through after reading so many of your kind and supportive posts you wrote to others. Thank you. Nicki

venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 4/30/2011 12:39 PM (GMT -6)   
My heart goes out to you Nicki. I've been there myself. Actually I fight not to everyday. I'm here if you want to chat. I am new to this forum and don't know how the chat part of the forum works but if you do we can chat there or back and forth here. I've had to cry on many a shoulder so many times. I actually found this forum feeling like you do at the moment. Just let me know what I can do to help and if anything I'll be a shoulder to lean on and offer an ear to listen.
Aloha & God bless you abundantly!
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