My husband finally said last night that whether or not we had the gas money to go, he was calling an ambulance and someone needed to see me. They took me to the local ER although he told the ambulance drivers that he did not like that hospital because of the way they had treated me in the past last year when it had gotten bad that time. I think they first of all saw our home, saw what we stand for, and really must have spoken up for me before I ever got there because they even commented on how nice we keep our place and all (I thought it was a mess myself!)
But they took me straight back to a room in the ER when I arrived, and the sweetest angel of a doctor came in and asked me what meds had helped me in the past for pain and symptoms!!!! I told her Decadron, Zofran, and Delotid. That is exactly what she gave me and immediately!!! Then I told her I was scared to go home because I knew I would have relief for a day or two and back to same thing! She said, no, I am going to make sure that doesn't happen. What helps you the most at home?!!!
I asked her to increase the steroid dose and for something for pain that's not tramadol (since fam doc said to stop over the seizure issue) and so she upped my prednisone dose to 40 mg per day (instead of 10 mg) and gave me 10 mg/500 mg Lortabs for pain (15 which should cover me well up to the appt on Friday with the rheumy for both things!!!) Already this morning, I am feeling incredibly good and have had to take NO pain med whatsoever yet!!! The steroid shot from last night apparently has been very effective (the Dekadron I requested!) and she gave me a whopping 8 mg shot of it too!
I can't believe that there are such good doctors left out there after all I have been through! Amazing! I am so grateful that I broke down and went last night. I was just beyond frustrated, depressed, and thinking that I just could not cope anymore with this... (I know I shouldn't but it gets where I am so depressed about it and so sick of telling people I am hurting because then I feel even more depressed about myself bringing other people down that I just can't deal with it sometimes!) I am full of new courage this morning and feeling a million bucks already!
I did have a problem after the visit though because my husband did not have the gas to come get me from the hospital... but they finally got a cab to take me after I sat in the waiting room for several hours and they realized that I really did not have any way home! So I am home now (got here around 5:30-6:00ish).
Believe it or not, the rash already is GONE this morning. Not just down, but completely gone! It is amazing how well the steroids work as long as they are in high enough doses. Even the bruising on my ankle looks much better! My neck was so swollen it was sticking out past my ear last night on the left side!!! And this morning it is almost back to normal too! So it makes such an incredible difference and relief for me! The pain is almost completely gone as well at the moment! It is an amazing feeling to have this much relief! I just wanted to share because I was so down yesterday about everything. I just was in so much pain and felt like I couldn't cope anymore--it has been going on for weeks and weeks now getting worse and worse with one big moment hinging on this Rheumatology visit next friday--I am so scared that what if he doesn't do anything? Then what? I am pinning so much hope and trust in him!!! Thank you all for all the support!!! Nicki