I'm new here to the Chronic Pain Forum

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Grateful Chicago
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/1/2011 2:16 PM (GMT -6)   

Hello everyone! I'm new here to the chronic pain forum. I was introduced to these forum and website by Whitebeard who I know from another chronic illness forum.

I am a single guy, 66, living in Chicago in a City Senior Apt. Bldg. I have spinal stenosis, degenerative disc disease, osteoarthritis to start with. (That should be enough right?). I have been living in daily chronic pain since 2003. I have had many session s of physical therapy as well as steroid injections in the lumbar area. I have had two spinal fusions (both lumbar) in 2005 and again in 2010. I am grateful to be treated at Northwestern University Hospital in Chicago as well as the Rehabilitation Institute of Chicago.

Right now, today, my chronic pain really is annoying me and wearing me down. I'm not sure that anymore PT at this time would be helpful. I am doing stretching exercises at home and that's about it. I did complete 8 weeks of pulmonary rehab which included alot of cardiovascular exercise (recumbent exercise bike and treadmill or Nustep) but that seems to have aggravated my foot and leg pain. So I am taking a break from that.

I also participate in a 12 Step Program for people living with chronic pain and illness. It's called Chronic Pain Anonymous and it helps us deal with the emotional debilitating effects of living with chronic pain.

Well, I've gone on too much but I would be happy to begin to engage with others here in this forum. Sometimes only we folks with chronic pain can understand and relate to what we are going through and that's why I am here!!

Chgorich

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/1/2011 2:37 PM (GMT -6)   
Hiya chgohelp

I wanted to welcome you to the forum and pass on your gentle ((((((hugs)))))) as we all need them from time to time. I am sorry you are feeling worn down today lovie and can only hope you get some pain relief soon. You are right though that people who suffer with chronic pain are the best people to talk things through with, as they are in the same boat and may even be able to help. I have suffered for 3 and half years now with my back problems and I to have found that if I over do it, whether it be PT, work or just plain getting normal everyday things done I too make myself worse pain wise that is. So that is why I now try to get through each day the best I can, like most of us on this site. I look forward to chatting and catching up with you and hope you get some relief soon. take care lovie and its lovely to meet you
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 5/1/2011 3:13 PM (GMT -6)   
Hi chgohelp

Welcome to the chronic pain forum. It's really good to have you. I'm glad that Whitebeard introduced you to our family. There are some awesome people here. I'm sure you'll feel right at home pretty soon. I have the spinal stenosis, degenerative disc disease, and osteoarthritis as you have plus other things. I know the pain can really get you down and really wear you out some days. I hope your pain gets more bearable today. You take care.

love and hugs
Loretta

ps. It's true that only those of us with chronic pain can understand what each other are going thru.
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/1/2011 8:42 PM (GMT -6)   
Hello,
nice to meet you but sure wish it was under better circumstances than chronic pain...
Wow, seems like you get out which is good, better to keep moving...
I think PT could help, but let them know about the leg and foot pain, also
let your pm doctor know about these new pains, maybe ask about ultra sound
treatments or water PT...Water PT should help as it'll take the pain directly off your feet...
Also maybe try aspercream on your foot or a topical cream that helps...
Maybe a mri of your feet....
Hope your feeling better soon with low pain levels...
well wishes
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Grateful Chicago
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/1/2011 9:35 PM (GMT -6)   
Chartreux,

Thanks so much for your message. Thanks for the suggestion of
water therapy. The hospital I go, Rehab. Institute of Chicago, most definitely has hot water therapy and I am going to ask about that. Also with all the spasms I have been having , the hot water idea sounds perfect. And Aspercream on the feet sounds good too.

I want to thank all of you who have responded and welcomed me to this Chronic Pain Forum at HealingWell.com You are making me feel right at home.

Richard

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/1/2011 9:50 PM (GMT -6)   
Good evening Richard!

Hey!...if you have been visiting White Beard, then you have been in good hands already. He knows his stuff thats for sure!

I too!..share some of the same health problems as you! Yep! I also suffer from DDD, and just had a double lumbar fusion surgery a year ago this last March. I'm still on pain med's so that should tell you something about how well mine went. shakehead

You are doing one thing that I think many people forget to do, who suffer from DDD, and that is "Home continued self PT" ....maybe we can call it stretching?.... but at any rate, I do believe it should be continued to help strengthen those ever so important back muscles. Don't you? wink

We are so glad you found us, and I have a feeling we may learn a few things from you. Please keep posting and sharing with the members. They are wonderfully great at supporting those in need, and are friendly as you will find on the web.

Again "Welcome"!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!
"When the character of a man is not clear to you, look at his friends."

Post Edited (Screaming Eagle) : 5/1/2011 9:44:52 PM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 5/2/2011 12:28 AM (GMT -6)   
Hi Richard
 
Welcome to our family here at Healing Well, I am glad to see you here! I think you will like the folks here on the forum, they really are a very caring and compassionate group. You know it is kind of ironic, because I to was introduced to this forum by a member that was on the sleep apnea forum!  I think you will find allot of simularities between the two forums,  as they both have really great people and they definitely have some of the  best forum rules of any of the web sites I have been too! I appreciate a forum that is more structured and has rules that insure that the members of the forum are respected and treated with diginity! 
 
Richard I think we have several things in common, besides living in the same state. I am in pulmonary rehab right now, I go three times a week, I have another month or so left to go. I do know what you mean about spasms I  get them everywhere and I am on Baclofen 30 mg every eight hours and it seems to, (for the most part anyway)   keep the spasms under control.
 
Again I Welcome you Richard to our forum! I hope that you stick around and become an active member of our CP forum  family!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 5/1/2011 11:38:30 PM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/2/2011 12:55 AM (GMT -6)   
Richard,
 
Welcome to the board.... it seems you'll fit right in!  It's a great group here w/ lots of support and encouragment.
 
I have multiple health/pain issues.  In the beginning of my pain issues, I also did some classes on coping w/ CP - emotionally, along w/ physically.  Are you finding the classes useful??  I did... although, I admit, the majority of my chronic pain support/information has come right here from this forum (and my own experiences).
 
Oh, and never feel like you've gone on too much!  We want to hear what you have to say.... and, you are right - there are many things that just those of us w/ CP can understand.
 
Looking forward to getting to know you better. And, again, welcome. 
--Tina
Many, many health and pain issues.
Many meds - including Atenolol, Effexor, MS Contin, Dilaudid, Actiq (oral Fentanyl), Soma, Vitamin D, Iron (for anemia), Synthroid...and on the list goes.
Personal: I'm a Christian wife and mother; I have six sons and identical twin daughters.

Grateful Chicago
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/2/2011 6:59 PM (GMT -6)   


Thank you all again for reaching out and welcoming me to the CP Group at HealingWell.com.

I'm jumping in (like I could really jump!?!?!? rolleyes ) to write a little more about what's going on with me tonight and the past few days. I have been having muscle spasms in my legs on and off for 2 months now. In addition, my leg muscles are pulled tight as they can go and despsite doing stretching exercises, they remain tight and painful. I also have been dealing with pain in both feet for the last 8 weeks following 6 weeks of working out on the treadmill as part of my pulmonary rehab.

I had a 2nd spinal fusion last August because my leg and foot pain was very intense (all this eminates from my spine of course due to nerve damage and DDD and stenosis and osteoarthritis).

Bottom line, I feel like I don't know what to do. All I can do right now is stay home and rest. I have the TENS unit on my left leg which is the worse. I also wear an AFO brace on the lower left leg.

I'm sorry for going on and on about all the details of my history. Like most of you I'm sure you have been dealing with CP for quite awhile. Sometimes therapies help. Sometimes they don't. I have pain meds of course. Norco 10 mg and MSContin 15mg 2x day. Also Neurontin 600mg 3x day which I don't think really does much of anything??? Celebrex 200 mg 1x day for the arthritis. And now......Tizanidine for the muscle spasms.

I guess we just have to sit back and take it easy when the pain is bad and there's not much more we can do. I don't like it!! I want to be better!! I went through that darn spinal fusion surgery and I expected to be better.

God Grant me the serenity to ACCEPT the things I cannot change; the courage to change the things I can; and the wisdom to know the difference.

Thanks for letting me rant on. All the best to you folks!

chgohelp (I don't like this username and I want to change it....will do). turn

Grateful Chicago
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/2/2011 7:10 PM (GMT -6)   


Hello again! I want you to know that I changed my Display Name to Grateful Chicago. It fits well for me. So the old name of chgohelp is gone.

Look forward to staying in touch with you all!

Grateful Chicago

venus2471
Regular Member


Date Joined Apr 2011
Total Posts : 32
   Posted 5/2/2011 8:49 PM (GMT -6)   
Aloha! I only recently found this forum and hope you find it to be the God send I have. Everyone here is so supportive and informative. I hope you find it to be so too.

My journey with pain began in Chicago. I loved & miss the great doctors I had there. You just reminded me to send them all a short message thanking them and their staff for the wonderful care they gave me. For those of us in pain, I wish we all had the resources available to us that they have there.

My thoughts and prayers go out to you today. It's so not fun being where you are today. I hope you evening gets better and that you find all the words of encouragement you've gotten so far to be a little comforting. God be with you my new friend!
Aloha & God bless you abundantly!

For you have been my hope, O Sovereign Lord, my confidence since my youth. ( Psalms 71:5 *NIV )

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/2/2011 9:47 PM (GMT -6)   
Why is it only funny to people in pain when we say we can't jump, everybody knows we can't! Anyway, I had spinal fusion because of DDD and it could have been more successful. This is after 8yrs of steroid shots, physical therapy, and every kind of pain med my pm dr wanted to "try". My surgeon is now putting in a permanent tens unit in my back, we already tried the temp tens unit and it did work. To try the tens unit I had to come off my pain meds, it hurt but I was hurting anyway and how am I ever going to get better? After my trial unit, my surgeon found out that my pm dr had me on so much pain meds that they were counteracting each other. He did give me a script for just 1 pain med not the 4 different kind that I had been on but each dr is different. My surgeon also did my spinal fusion that could have been more successful. I didn't know they did fusions twice.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/3/2011 8:05 AM (GMT -6)   
 
 
          Let me pop in here and "Welcome" Kat1611!
 
               Hello Kat! I see that you are a new member here! I'm glad to see you taking part in the conversation and you are certianlly welcome to.
 
      However, we would love to have you post a new topic and introduce yourself to all the members. You will recieve a very warm and better welcome that way.
 
     Just go to our home page and click the "Post New Topic" at the top of the page. Tell us as much about yourself as you can, and what brought you here to this forum.
 
          We all look forward to visiting with you, so hurry please! smilewinkgrin   If you have any questions, just ask and we will be more than happy to help you.
 
      SE wink
 
Moderator Chronic Pain Forum

Weekly Quote!
"When the character of a man is not clear to you, look at his friends."

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 5/3/2011 12:17 PM (GMT -6)   
Hi Richard

Welcome to The Healingwell Forum. We totally understand your pain and frustration and we look forward to knowing you better. Hang in there and be strong. Sending you gentle hugs((((Richard)))).

Betsey Ross
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/3/2011 5:25 PM (GMT -6)   
Thanks, Chicago, for posting.  I found most interesting that there is a 12 step for chronic pain.  I did not know that.  I would LOVE to participate in something like that.  I wonder if they have that in my area, Ocala, Florida.  I will have to look into it.  But anyway, I wanted to say thanks for bringing it to my attention.
 
I have a thirty year  back history too.  Had surgery when I was around thirty, and have been fighting on and off with sciatica over the years.  Treatments, you name it , I've probably had it.  Right now I can't walk for any distance, but I am working on building that strength back.
 
I do welcome you to the forum and am so glad you are here.  God bless you and post often so we can get to know you.  I, for one, can't wait!!
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/3/2011 5:38 PM (GMT -6)   
Welcome to our family here on healingwell. I am sure you will enjoy the people you will

meet. All very understanding and caring individuals.

Hope to hear more from you Richard. I am Suzane and from Ontario Canada. I suffer

from constant headaches.


take care, suzane
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