New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 5/3/2011 7:32 PM (GMT -6)   
Hi Guys,
Tomorrow I go back to find out the plan for surgery. I had to go get some of the tests done that the neurosurgeon wanted prior to surgery, so I took care of that Thursday.
He wanted me to call him Monday but I put it off, still trying to pretend if I ignore things long enough, the problem will disappear.....
Anyway, I finally got around to calling him this morning and he wants to see me tomorrow @ 11 am. Seems funny to me, that this top neurosurgeon at a major NYC hospital can manage to fit me in so quickly. If this weren't so serious, I would wonder about all of the other times that you try to get an emergency appointment and are put off weeks or months before you can get in. Things that make you go hmmmmm.....
Anyway, once I get back home I will post again and let you all know the verdict. Somehow I think that this is going to happen a lot faster than I am prepared for.
Sandi

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/3/2011 7:54 PM (GMT -6)   
Hi Sandi....

I've been thinking of you and wondering what decision you had come to.  I'm sorry I haven't e-mailed or posted that - but I've definitely been thinking of you....
 
I hate that you are even having to deal w/ any of this.  That said, we both know it can't be put off forever.... so I am glad you are going to the doctor to make some decisions.  It seems like you are seeing a top doctor - and that's a really good start.
 
Please know you'll be held in my prayers.... I'll be really anxious to hear what your doctor has to say - so please post as soon as you can.  Again, Sandi, I'm sorry you are having to deal w/ all of this.  I really am. 
 
Many hugs, and lots of prayers, my friend.  Love, Tina

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/3/2011 9:13 PM (GMT -6)   
Hello Sandi!

I too have been wondering when things would begin to roll, and I understand the torn decision you will have to make here, and that it has not been a light hearted one.

You know, we are all family here, and we are concerned deeply for you're well being. I offer prayers to you and that all will go well.

Tina is right, in that we are saddened that you have to deal with this. Although you're road must seem to be a lonely one, I assure you that we are here, and will always be here, ready to embrace you with love, comfort and support.

Our deepest wishes of well being for you!

Good luck on you're appointment tomorrow,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!
"When the character of a man is not clear to you, look at his friends."

Post Edited (Screaming Eagle) : 5/3/2011 8:17:42 PM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 5/4/2011 12:18 AM (GMT -6)   
Sandi

I will keep you in my thoughts and prayers and hope that all goes well with your appointment!

Good Luck to YOU!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16787
   Posted 5/4/2011 3:35 AM (GMT -6)   
Well, I was getting ready to send out a wanted sign for you, lol. Had not heard anything about what has taken place since the last post from you. I think then you were procrastinating on whether to call the surgeon back. You have to admit when a top surgeon can get a patient in on a days notice something is up and its something that should not be ignored. It really says something that this dr is at least interested in you, I doubt very seriously that he is hurting for business.

So, now we will wait until after you get back home.
Moderator Chronic Pain Forum

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 5/4/2011 8:41 AM (GMT -6)   
Well I am on the train,  heading to NYC. My appointment isn't until 11 am, so once I get to Grand Central, I will catch a cab to the hospital.
Tina, I understand , so don't worry. It's taken me some time to adjust to think about this whole situation and come to the conclusion for myself that I really don't have another option.
It is a case of definate paralysis if I don't go ahead with the  surgery and possible paralysis if I do......I figure my odds are a little better if I go ahead with the surgery and maybe I can at least delay the onset of paralysis for awhile. I hope, anyway.
I have to admit, this is nerve wracking, trying to make myself go ahead with this and I don't guarantee that I won't back out before any surgery.I am worried about what he and the ortho will have to say today.It's funny how the tone of someone's voice can relay far more information than anything they have to say does. When I called yesterday, and said that I thought that he must have the results of the CT scan by now, his secretary said, yes, he had them shortly after the CT scan was done on Thursday and he was just waiting for my call, but you could hear the concern in her voice. cry
Anyway, I will let you all know what they have to say once the appointment is over and hopefully I will remember it all.
Love,
sandi

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 5/4/2011 8:47 AM (GMT -6)   
Thanks SE, I know, that you all are here. You are absolutely right, this isn't an easy decision to make. Either way, I can loose more than I have ever lost in my life. And the idea of having to have someone to care for me, for the rest of my life scares me to no end.
I use a wheelchair sometimes now, but havingn to rely on one , all day, every day, just isn't how I thought this would turn out 5 years ago when I first had surgery on my back. And it upsets me to no end to realize that two surgeons left me in such a state that paralysis on either side of the coin is the outcome. No one told me that having a fusion would lead to my lower spine looking like a baby stacked blocks and they are just a mili second away from toppling over. I wish that I could go back and do it again but I can't, and now have to hope that these two surgeons can repair some of the damage, enough so that I don't become someone's obligation for the remainder of my life and theirs.
My husband loves me, no question and I know, beyond shadow of any doubt that he would take care of me, no question asked, but that isn't what either of us planned for our "senior" years....sigh
Anyway, I don't want to get all emotional before the appointment, so I will end this for now.....talk to you all in a short while. And thank you all for caring.
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 5/4/2011 8:49 AM (GMT -6)   
Thank you WB,
It means alot . I thank you all for caring. This is probably the most life altering decision that I will ever have to make. At least I hope that there are no more surprises....I don't think that I can handle anymore of them......
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/4/2011 10:17 AM (GMT -6)   
Hugs, Sandi.  Will wait for your update. 
 
Much love, my friend.  --Tina

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/4/2011 3:28 PM (GMT -6)   
Hiya Sandi

Just wanted to pass on some gentle (((((hugs))))) lovie, I will be thinking of you and I hope all goes well for you. Catch you later when you post an update.
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 4:19 PM (GMT -6)
There are a total of 3,005,521 posts in 329,236 threads.
View Active Threads


Who's Online
This forum has 161781 registered members. Please welcome our newest member, Grey Eagle1.
254 Guest(s), 9 Registered Member(s) are currently online.  Details
Deep_sleep, Mind body spirit, Kent M., Michael_T, Alxander, Fairwind, ddyss, kittytalk371, jwebb