Do you not remember me? We used to talk years ago lol. Thats ok if you forgot about me.
No he doesnt give me 60mg and 90mg I dont believe they even make a 90mg pill if I remember correctly, they do make a 80 and I'm actually thinking that that is the highest single pill that they happen to make. Anyway I get 60mg pills AND 30mg oxycontin, then I get 30mg oxycodone. Yes it is a lot of instant release, but the reason he does this is because I dont ALWAYS have to use these instant release...and in that case he doesnt want to replace it with something control released that I'd be on no matter if I needed it that particular day or not.
I have had resection surgery. I've had Crohns Disease since september 2002, and my first surgery was late 2004 I believe. And at that time it was removal of 1/3 of my colon, the descending portion. Then sometime later, I believe off the top of my head somewhere around a year to a year and a half later(2005 or so) I had the rest of my colon removed(2/3's) which left me with an illiostomy, supposedly temperary. Then in april of 2006 I believe it was I had done a M2A study, or the pill capsule camera, and I guess I had a narrowing or blockage because it was supposed to pass within 3 days or so if I remember correctly, well 7 days later it had not passed and I was vomiting and had stomach pain although I did not put the two and two together, while I was in there my GI had one of his associates do a endoscopy on me and another scope that just went just inside of my terminal illieum of my stoma so just a couple inches because it obviously wouldn't even fit more then that. Well later a few hours later when my surgeon came by the pill capsule camera had in fact passed...but what we did not yet know is that from the GI blowing air into the terminal illieum he had caused 3 perforations, he basically had to do this which I understand, to be able to get the camera to have enough space/room to pass through the terminal illieum.
Well my GI was going out of town at the time on vacation and would be gone for literally a month. At this same time a few weeks prior he had been trying to get me into see an IBD specialist, first at UVa which wouldn't accept my medicare and medicaid(which in my opinion is flat our ridiculous... also my opinion if your a teaching hospital or affiliated with a university you should by law have to accept medicare and medicaid... especially when your the University of Virginia and then won't accept Medicaid which is run BY STATE OF VIRGINIA!), and since I couldn't get into UVa, he had got me an appointment with an IBD specialist GI in Richmond, Virginia, the capital, at VCU Medical Center, Virginia Commonwealth University at their IBD Clinic. Which I'm completely happy that I could not get into UVa now because I love VCU and the staff and my doctor. But because my local GI was going on that month long vacation he informed me that he didn't think that any GI in the area could really handle my case, on a normal bases more or less when something like this was going on. So after 6 days in my local Regional Medical Center he got me transferred to VCU Medical Center about an hour and a half away in Richmond. Which is where I met my GI that I use now for the first time. They found out that I had the 3 perforations, and I explained how it most likely happened, they agreed with my assessment and they took me to emergency surgery, have you this is a couple days after transferring because we didn't right away know about the perforations until we started to notice small amounts of air in my abdomen. But they took me to emergency surgery. Removed about 29 cm of my terminal illieum which besides the holes actually had a significant amount of disease in it, which is also the first time knowing that I had any disease outside of my colon and rectum. I ended up being at VCU for 15 days total, plus the 6 from my regional medical center, so I was in the hospital a total of 21 days, which still to this day amazes me I didnt go crazy LOL! And obviously at this same time of the 29 cm being removed they also replaced my illiostomy, so that was the second time having an illiostomy placed.
I've also had literally twenty-five to thirty rectal abcesses. And also my first signs of Crohns Disease happen to be a rectal abcess. I've also had one abdominal abcess, but only one, which actually kept growing so fast that it popped itself. The rectal abcesses of course I could not be so lucky, had to have every single one of them drained... first one I had drained in the office with local anestetic, after that the surgeon told me that he was sorry and no way would he do that to me again, so everyone since that very first one has been done under general anestesia because it was just to painful for me, mainly because most of my disease process was always in my colon and rectum.
Right now medication wise I take Methotrexate, Prednisone, protonix, b-12, vitamin d, iron, cipro, fagyl, theyre about to start me on cimzia also.
Ive tried things in the past like budesinide(entecort), 6mp, remicade, humira, imuran, asacol and pentasa(which for some reason I dont know about other people experience but I NEVER respond to any of the anti-inflammatories) I'm sure I'm forgetting like 10 different medications.
Also right now because the hospital caught that I have something in the same 'class' or 'family' as tuberculosis Im finally home but I have to take IV antibiotics for another 21 days while at home giving them to myself. One is by mouth, two are by IV, one I have to mix myself, and one that is even on National Shortage. They sent off my cultures to the CDC to determine exactly what kind of bacteria it was. They believe it was brought into my body somehow that has something to do with my Port. So they also removed my port and I'm using a picc-line as of right now for the antibiotics. Like I said I have another 21 days of the IV antibiotics one of the IV ones is done every 6 hrs and involves 2 different bags of antibiotics that I have to mix myself and run back to back, then I have another that is just once a day. Not to mention the one by mouth which is 4 times a day. Then at the end of all these IV antibiotics in which 21 days will have past... then the real fun starts of by mouth antiobiotics for atleast a year. So for the forseeable future I will be tethered to a pole and then a slave to the antibiotics.
I hope this tells you a lot of what you wanted to know straydog. I didn't know you don't remember me. Although I have not posted in quite a long time, maybe over a year even, I just assumed you remembered me because I remember you. I used to use Skinsfan1229 years ago also. If that helps you remember any.
Thanks for everyones input I really appreciate it.