in no way am i offended at all. i know many people XXXXX XXX moan about
pain and do little to help themselves, the only reason i wanted to list some of the steps i have taken is so no one will thank all i do is sit and wish this mess away. it is far from that.
in the same way that the deneveration surgery came up in an off handed remark from a doctor, i know that people from all over the world, and all experiences with pain go to this site, so i am throwing my situation up in the hope that someone who has had a similar life altering experience may have a positive experience with something that i am not aware of.
as i said i am not an expert at this, as far as the pump goes, i fully understand that there are trials for it before the actual implant, as a matter of fact at least when it was first brought to my attention Medicare did require a complete psychiatric work up before implantation due to the cost of the procedure and also the high cost of removal if a patient later opted out. that may have changed.
there were actually two reasons i did not continue to move to the trials, first was in speaking to people who had the implant most, not all but most who I spoke to told me they did feel the implant in them, also due to the placement in the lower abdomin or back coupled with the fact that at the time as a performing musician I sat for extended time frames in tight orchestra pits i was led to believe that in the position i need to hold myself to mproperly control my cello the pump would be felt and could be a major problem in my lower stomach or back.
When one sits with a cello they must properly position both their back and legs and are limited in the amount of sitting position options they have, my docs were concerned about
that, also in the practice i was seeing at the time only one of the three doctors felt it would be useful. they did mention the trial and maybe i should have gone that route but i am going to revisit it.
also my neuro surgeon did warn me just recently about
some drawbacks with the pump, as i mentioned i suffered a near fatal brain hemorrhage due to the high level of opiates i was using as per doctors instructiuons. there have been documented problems with the catheter leading from the pump to the spine that have caused improper doses of medication to be delivered, in fact the internet ran many such recall notices as recently as 2008 on this issue.
According to the most recent data medtronic has still not solved the problem and my doctors are concerned about
that and the fact that the pumps have been know to be responsible for overdoses of medicatoion. In the highly concintrated doses that are used in the pumps there is little room for error.
All i can do is listen to the experts, if i did not have to deal with the issue of the brain hemorrhage the doctors may have been more up beat about
I am very happy that you have found relief form the device, and i know you are trying to help, but it is not a universal fix for all chronic pain and there are many medically sound reasons that it is used infrequently, i am however in the process of revisiting the issue and have made an appointment to visit with the pain physician who first suggested it and his partner who disagreed. I am at the point I am in a holding pattern until i can get to Boston in the fall so i will use every possible lead until i get there.
i am not willing to just sit and wait as the situation i am in just cannot continue, i looked over the pain log i have been asked by my doc's to keep and my average so called score on a 1 through 10 was an 8 for feb/march/april.
i am also aware that the pump is not limited to simply dispensing morphine, but as i mentioned i have been through most all of the natural and synthetic opiates, plus a wide range of drugs designed specifically for neuropathic pain. If it were not for the limitations i am on regarding the maximum level of morphine or methadone i can take i could gain better relief from a regiment of four hundred plus mg morphine daily, but that is a no go due to the brain bleed.
There is little to be gained from restating the situation, and i am thankful for your conern and am
open to any ideas that may help and have begun to revisit the medtronic option even with its drawbacks.
May I ask the purpose of the information you passed on regarding an unknown post, i could not connect it to my situation, maybe i missed something, i am remember on drugs.??(Dear member, I took the liberty to edit you're reply for ease of reading. Please take note and keep you're paragraphs to about five lines or so.) (I also edited you're reply for language abuse. This is a family site and we at times have either members and or visitor's who are minor's) This is a friendly reminder. Thanks! SE
Post Edited By Moderator (Screaming Eagle) : 5/9/2011 3:12:31 AM (GMT-6)