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kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/9/2011 12:10 PM (GMT -6)   
I've never heard anyone talk about stimulators. Has anybody had any experience with this? I've already had the trial one and it seemed to do well so I went ahead with the permanent one. I didn't have any problems with the temp stim but it's only in for a week. When I had the permanent stim put in I noticed that the side that the battery is on went numb for a minute three different times. The battery is put in the left side of my back just above my butt, the place that went numb is my left hip. That whole area is swollen from the surgery so I was wondering if that had anything to do with it? It was only the third and forth day when this happened and it hasn't happened since but I'm still not fond of a body part going numb especially when it's never done that before. Can anybody help me?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16776
   Posted 5/9/2011 12:28 PM (GMT -6)   
Hi Kat and welcome to Healing Well's chronic pain forum. I am glad that you found us but sorry that you have to be here.

While I do not have an SCS unit, I have a pain pump, after it was put in my stomach was numb for a good 6 months. When they cut through the skin there are little nerves in there that gets cut and once those heal up the feeling generally comes back. I had no trouble with anything just the numbness. I have also had several other types of surgery and have had the temporary numbness for awhile but it has again, never been anything I was concerned about.

We do have several members here with the SCS units and I feel sure you will be hearing from them sometime during the day.If you will look at the top of this page to the right there is a search you can type in SCS units and you will be able to pull up a lot of info on the units as they have been discussed here a lot.

I do hope you have a lot of success with your unit and hope you have a good recovery from your surgery. How long ago was your surgery? Anyway, I wanted to pop on and tell you welcome aboard. Take care.
Moderator Chronic Pain Forum

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/9/2011 12:48 PM (GMT -6)   
My surgery was only last Tuesday so I'm still really swollen that's why I thought the numbness had something to do with it. I had back fusion and didn't have any problem with numbness anywhere so when this happened it kind of caught me off guard. At least now I know that it's normal. I'm still trying to remember how to work my "fanny pack" so any advice is helpful. Thank you, thank you, thank you!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16776
   Posted 5/9/2011 1:05 PM (GMT -6)   
Hang in there, hopefully some of them will be coming to the forum and they may be able to help you. Why not call your rep and ask about the fanny pack, hey that is what they are there for, to help the patient. I have had 5 surgeries involving the stomach and for some reason I have always had more numbness there but when I think about it, the incisions were fairly good size I bet that is why it also took longer to get the feeling back. The dr told me it is like little surface type nerves that gets cut. Since you are so swollen that could also play a roll in it.

You are almost a week out from surgery, so try to just baby yourself as much as you can. Surgery is pretty traumatic on the body and can take its tolll. Take care.
Moderator Chronic Pain Forum

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/9/2011 2:21 PM (GMT -6)   
 
 
           Hello Kat!
 
                  I too!... welcome you to the CP forum!
 
       The numbness can really be an odd feeling, and I understand how you feel about it. I also had a back fusion, and the surgeon went in through the front. When I came out of surgery and was in recovery, I had a very large area that was numb. It was quite unsettling to say the least, because it was not that close to the surgery site.
 
       It may take quire a while for the nerves to reconnect back, so give it plenty of time to do so. I think it took almost a full year for me, and actually I still experience some numbness.
 
             As stray said, take it easy, and by all means do baby yourelf for a while. Surgery can be very tramatic on the body, and will need some tender loving care by you.
 
           Again welcome!
 
 
         SE wink
Moderator Chronic Pain Forum

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Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 5/9/2011 2:57 PM (GMT -6)   
Kat, you really want to talk to CRPSpatient, as she just went in for a revision on her unit over a week ago.
 
I would love to help you, as I too had a successful trial back in February, however my permanent surgery isn't till Wednesday. My battery unit will be placed in my right hip/tushie area, while my wires (with the paddle leads) will be fed through an enlarged epidural space at the base of my neck and up into my cervical area.
 
I guess the big question is have you mentioned this to your doctor? I know post surgical swelling is typical, from what I've been told, as they did alot of (what your body would consider) trauma, especially considering they put a foriegn object into you. If you've mentioned it to your doctor, and they've told you not to worry, see if you can nail them down for an "acceptable" ammount of time for this to continue before you should really start worrying.
 
Sorry I can't be of more help. Ask me again in about a week.

Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 5/9/2011 3:55 PM (GMT -6)   
Hello Kat, (1611)  Kat happens to be a nick-name alot of my friends use when talking to me, especially my gentleman friend, (at almost 58 I am not comfortable calling him my boyfriend).
 
On to the stims, I have one in my right lower back, a few inches above my right butt-cheek, I also have lead wires going down my right leg, and my left back and leg.  My problem is the device cannot be located.
 
I know I am repeating my story, so I will try to keep it short.  The first installation was late May 2010, after the incision healed with the help of the manufacturers reps. I began to try to locate the unit so it could be charged.  We never found the unit.  In July the doctor decided the unit had been installed to deep and so I had another surgery to correct that.
 
From the time that incision healed, which was late July, myself, the reps., and my doctor and his PA have tried to locate the unit, it still cant be found.
 
So I have "thrown in the towel" so to speak, it has been very frustrating and so the unit is just sitting there, doing nothing, my doctor tells me there is no reason to remove, it wont bother anything, so thats what I am doing.  At some point I may have it removed, but right now it doesnt seem to be a problem, and I am not thrilled about having a 3rd surgery in the same spot, talk about scar tissue.
 
I am hoping your experience is much, much better than mine, and I am sure it will be.  Sometimes things just happen.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/9/2011 4:52 PM (GMT -6)   
I am having a hard time taking it easy even though I'm still swollen and sore. I think it's because I know I'm getting close to a normal life again. Everybody knows what I'm talking about, we all dream about it, no pain and no meds while we''re awake! It's real easy to tell someone wait until you heal unless you're that person and you've been waiting for eleven years! I am trying to be patient without success which is strange because my mother always told me I was great at trying her patience! Haha!

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/9/2011 8:42 PM (GMT -6)   
Hi Kat, and welcome.

I've had my SCS for five years - and had five lots of surgery with it in that time, the most recent of which was just over a week ago.

Some swelling is normal of course, but if you're really swollen over your battery site it's a good idea to let your doc know asap... because they have to make a pocket for the battery to fit into, one thing that can happen is that it can fill with excess fluid 'seroma' or excess blood 'haematoma'. They are not usually serious in themselves, but can leave an environment for bacteria to grow in so sometimes they need to be drained.

Some numbness is normal too - but like anything, if you're worried, talk to your doctor! My battery is on my abdomen, with the wires around my side to my back, but I do have odd patches of numbness round my side.

All the best in any case - it sounds like your SCS is working well for you :)

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/10/2011 3:46 PM (GMT -6)   
The swelling isn't that bad I'm just not a patient person. It's not like I have a choice and rushing will only make things worse but that has never stopped me from messing up things before. Seriously I am trying to take it easy and not over-do anything until the doctor gives me permission. I've come this far, why destroy anything the doctor had finally gotten right? Actually I love my surgeon, if I could give you his name I would but I know I can't. He really takes the time to answer any and all questions you have. Right before my stim surgery I had a question and he came out of the O.R. and talked about it for twenty minutes until we both understood each other. Unfortunately that set all other surgeries off as far as time but my surgeon and I were on the same page!
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