Rhaevin's SCS Surgery on 5/11

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Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 5/9/2011 3:08 PM (GMT -6)   
.... and I'm terrified. cry
 
I have done everything I can to prepare for the worst; I'm a firm believer in thwarting "Murphy's Law". And at this point in time all I can do is wait till 4am on Wednesday, when it'll be time to get up and make the hour and a half drive with my Father to the hospital in Vegas for my 6am surgery.
 
I've never had surgery before. I mean not the "cut you open and fiddle around inside" kinda stuff. I've had out-patient procedures, like my trial stim unit, and some nerve blocks where they put me out so they could inject into the nerve clusters in my neck. But I've never done what I'm about to do, and it scares me. I know what the surgeon is going to do. He's going to make two different openings. He's told me about feeding the wires subdermally, and how he'll take half the top of one vertibrae as well as shave the epidural opening larger so he can fit the paddle leads in. I know my Pain Doctor will be assisting him, and they've got all the current x-ray and MRI films.
 
Tomorrow I'll make the drive to go do all my pre-addmission stuff. All the last of my paperwork, probably a blood draw, etc. My Mom's going with me for that; she's got alot of surgical experience under her belt. After all, I was my son's age (8 years old) when she went in for her cancer surgery.
 
I've tried to make peace with this, and all the possible out comes that can happen. I knew this all going in, and I said yes for a reason; the reward is worth the risks. My pain has spiked again, and I've been in unbearable pain. I think my CRPS is trying to spead to my left hand as lately it's been having issues to boot. I know in the last three and a half years I've watched my pain get worse and worse, watched my meds switch and get increased regularly. I've watched my life deteriorate till what I am is barely a shadow of my former self. My pain has ruined my life and destroyed my dreams, and some how through it all I've tried to stay strong and positive; the support of my Mother and those of you here have definately helped. Especially when others didn't want to believe my pain was real.
 
But I would be lying now to myself, and to all of you, if I didn't say I wasn't terrified. I'm not asking for anyone here to pray for me. I'm not asking for well wishes. I just felt like I needed to get it off my chest. For four days I haven't slept well now. Part of that is because they put me on some hardcore antibiotics four days ago that have made me sick and restless. The freezeing rainy weather has not helped my pain, which in turn reflects in my mood; we all know that one. Still, I can't shake this feeling of dread. My instincts are screaming at me that this isn't going to be the cake walk so many people keep telling me. My Mom and Dad keep telling me I'll be fine, and I want to believe that, but my instincts scream that they're wrong. I hope I'm the one that's wrong. I'd like to feel like a big fool after my surgery going "Well now don't you feel like an idiot, getting all worked up over nothing." and want to hide my head in the sand. I'd rather that then be right.
 
I'll be taking my Netbook with me to the hospital, and hopefully as soon as I'm able to, I'll get out an email or a post here... something, so I can let folks know how I'm doing. I don't make any promises, but I'll try.
 
Just know that alot of you mean so much to me; your friendship, your caring, your compassion. I'll be thinking of you all when I walk through those doors Wednesday morning. Trying to be strong and brave, and not break down and bawl my eyes out. I love so many of you so much. My family by pain, not by blood.
 
If I could make one request of everyone here. Please, please, please, remember to show compassion for one another as we are each other's strength. Do not bicker or squabble, look at one another through each other's eyes. Remember that through this medium it is so easy to misunderstand what another means when they say something, and surely no one here ever says anything to try and hurt anyone else. This place is a place of healing, of acceptance and love, of compassion. It needs to be that way, for all of us, whether we've been here forever, or for just a day. This is our safe haven, away from those that look at us in disbeliefe, who don't think our pain is real, who think we're faking it or that we're lazy, who just plain don't understand what we deal with, and don't want to understand. Our safety from the hurtful words of others, a place to ask questions, and vent; to lick our wounds in the comfort of those that have "been there" and "done that".
 
I love all of you, and hopefully I'll be back soon.
~Rhaevin~
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/9/2011 5:10 PM (GMT -6)   
Hi Rhaevin I do understand. I would be terrified myself. (((((((hugs)))))) for you. I know you didn't ask for prayers, but I'll be praying for you. I know there's no guarantee, but I feel that you're going to be just fine. Of course, I'm sure you'll be in quite a bit of pain, but I sure do pray that the SCS will be just the thing that you need to get your pain under control. Know that we'll all be there with you, and for you after the surgery is over too.

I'm so sorry that your pain has spiked again, and that those antibiotics haven't allowed you to get proper sleep. I hope you will get some good sleep the next two nights, so that your body can rest and get ready for the surgery.

It's good to hear that your PM dr. will be there with the surgeon, so that your pain can be controlled until the SCS is programmed just right for your pain.

You're so right. There shouldn't be any bickering or arguing here. I agree that we are all a big family. Chronic pain has brought us all together and nothing should tear us apart.

I'm glad that you'll have your netbook with you, but don't use it until you really feel up to it. We will be here when you feel up to posting. You take care. Love ya

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 5/9/2011 6:45 PM (GMT -6)   
My Sweetpea

Try to get rest tonight even if U cant sleep. We are here for you and please have someone let us know how you did with your surgury and how you are coping afterwards.

I to will pray for you. Try to stay strong and if that doesnt happen just know that I have been down that road, on a gurney blubbering and sobbing and I wasnt ashamed but it felt good doing it.

I will be there in spirit with you and you wont be alone because all of us will be thinking good thoughts for you on wednesday.

now rest and take care of yourself setttle down with a good book, feet elevated and a soft afghan oner you.

((((Rhaevin))))


Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 5/9/2011 6:52 PM (GMT -6)   
Rhaevin
I know all to well the sense of dread prior to going into surgery, and I will not tell you that every thing will be alright, because I honestly don't know if it will or not! It makes no difference whether your feekings and fears are legitiment or not, they are your thoughts and feeling, and I thank you for trusting us enough for you to  sharing them with us. Rhaevin you might not ask us, for our prayers, or well wishes, anything like that. You do not have to ask, we are family and we care about each other, and as such, I do wish you well, and hope, and yes even pray that everything works out well for you!
 
Peace be with You, Rhaevin
 
White Beard
 
 
 
 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/9/2011 7:17 PM (GMT -6)   
My dear friend, how I wish I could be there with you to hold your hand in person. Know that I'll be thinking of you over the coming days and weeks, and hoping with everything I've got that this goes smoothly for you. Will the technician be there in the hospital to start programming as soon as possible after your surgery?

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/10/2011 5:53 AM (GMT -6)   
Dear Rhaeven

Your post is so full of emotion and rightly so. My heart really and truly goes out to you hon. The nurse

in me wants to be with you and hold your hand, tell you it's ok to cry, and tell you to do the best

that you can. It's about YOU, and whatever you need to do to get thru the next day is just

fine ok. If you are Christian, then use your faith to get you thru these tough days. And

whether you know it or not, during those difficult days, God is carrying you, (Footprints Poem).

You will be safe and you will do just fine as you are in good hands. Believe!

I love you sweetheart and I'll be here waiting to hear from you when you are ready.

Suzane
xxxxxxxxx

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 5/10/2011 6:44 AM (GMT -6)   
Rhaevin, how I wish there were enough words to make you feel better.  All of us will be praying for you in our own way.
 
I am a firm believer in the power of positive thoughts and you are getting the best and most positive thoughts I can put together.  Also you are getting these thoughts from everyone else.  I also wish I could say that everything will be ok, and although I believe it, you also need to try to believe it.
 
You will be in my thoughts and prayers until we hear back from you saying all went well.  Many gentle hugs to you and I so pray that all is well.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/10/2011 7:22 AM (GMT -6)   
Rhaevin,
Will be thinking of you and saying some prayers...
well wishes and posts back when you can, everyone here will be wondering about you...
Prayers, well wishes and healing hugz...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 5/10/2011 11:50 AM (GMT -6)   
I too know what the fear of surgery is like. Bawl your eyes out tomorrow if you need to. There are many here including myself who will be waiting patiently and praying for you today, tomorrow, and all the days to come until we hear from you again.

I will be wrapping myself up, hoping you feel the concern and caring all of us feel for you right now. I am with so many others, wanting to hold your hand, hug you tightly and tell you that we are here no matter what, good or bad, pain or comfort, and sadness or happiness.

Come back to us when you can, and in the meantime know that there is a family to come back to who is wishing you well tomorrow.

I will miss you in the days to come.
Mindy

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 5/10/2011 1:50 PM (GMT -6)   
Rhaevin,

I understand how you feel... as I just had PCS surgery on 3/31.... it was my first hospital stay ever and I'm woman age- 43!

Don't try to stress too much and always remember to take long deep breathes... in through the nose and out the mouth.

Something to make sure if is you pain management.... I really didn't get any.... I had a major cervical spine surgery and was send home with 5mg Perocet- one every 4 hours...

The hospital staff did not give my my own pain meds that I brought in!

Don't be afraid to speak up if you are in pain.... All I got was "we are going to do something about it" and they never did.

Best wishes ++++++++++ vibes for you!




Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/10/2011 6:58 PM (GMT -6)   
Good luck and well wishes as tomorrow is the big day...
Prayers, too...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16299
   Posted 5/10/2011 7:14 PM (GMT -6)   
Rhaevin wishing you the very best tomorrow. Take care and know we will be thinking about you. We will talk to you when you are up to it.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 5/10/2011 7:18 PM (GMT -6)   
Hey Rhaevin, its about 830 pm where I am, I just want you to know that you are in my thoughts and prayers and will be until we hear from you.
 
Best of luck to you, I know you are a strong person, we are all so fortunate to have all these people around us who truly care, and I know you can literatley feel everyones prayers and well wishes.
 
 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/10/2011 9:51 PM (GMT -6)   
Hello Rhaevin!

Well....it's here!.... and tomorrow will be the big day for you.

I too wish you the very best tomorrow! Prayers, and well wishes to you my friend!

Surgery, no matter how simple or complicated can be unnerving to say the least. After all!....it's you that are having it!

You can take this with you though....We all care, and will be here with sincere support, as you recover from it.

Again!...our best to you!....have comfort in your heart....we will be here waiting. Bless you!


Good Luck!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!
"When the character of a man is not clear to you, look at his friends."

purplereading
Regular Member


Date Joined Nov 2010
Total Posts : 108
   Posted 5/10/2011 9:55 PM (GMT -6)   
Unlike you, I have had too many surgeries to count. Yet everytime, I worry about it. It often does not hit me strongly until I am on the table, and then when both arms are out to the side, and legs are moved . I somehow feel like I am on the cross, and then I pass into oblivion.
 
I am hoping that you awake with good pain control, and that it is successful.  good luck. T

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 5/12/2011 5:03 AM (GMT -6)   
Rhaeven

We are here anxiously awaiting news about you. We are still praying for you and know that you are in our thoughts.

If your father or someone could post an update on you we would be ever so grateful. we worry about members of our family.

Heres hoping that you have a low pain day.

Take Care

Soft Hugs
Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/12/2011 6:24 AM (GMT -6)   
 
 
             Good morning all!
 
                   Yes!...we are anxious for word on our Rhaevin!
 
        I bet she pops in here either today or tomorrow. Hope she is feeling better, now that it's over with.
 
               Hang in there Rhaevin! It will get better! wink
 
 
        SE
 
      
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

brokeassretiredarmymedic
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/12/2011 9:19 AM (GMT -6)   
Rhaeven,
I wish you the very best of outcomes. I was a combat medic in the Army 23 years and was in a helicopter accident in Haiti. Among other things my back is a mess. I have been waiting over a year for my scs and last Friday I went in and the procedure went horribly wrong. the doctor said he had never seen a back like mine. They want to do another MRI and then do a paddle placement. I am leery but my pain is so bad I will do just about anything for relief. Enough about me. Like I said I hope your surgery turns out well. Even though you said no prayers I will be praying for you.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16299
   Posted 5/12/2011 10:12 AM (GMT -6)   
Hello Broke, welcome to Healing Well's chronic pain forum. I am glad that you have found this forum but sorry that you have to be here.

I am going to ask you if you don't mind to start a New Topic of your own and introduce yourself to the forum. By posting as you have on someone elses thread not many people will see it and not be able to give you a proper welcome.

Had it been a ling time since you had an MRI before they attempted to put in the SCS Unit? I would have thought they would have wanted a current one. I do understand will do anything to get the pain level down, think most of us here have felt that way before.

To start a new post just go the top of this page on the left and you will see Post New Topic and click there and you will be all set.
Moderator Chronic Pain Forum

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/12/2011 8:32 PM (GMT -6)   
Dear Rhaevin, I hope everything went well. Just wanted you to know that I'm thinking of you and I know how you feel, my unit was put in last week. Take care of yourself.

Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 5/13/2011 7:17 AM (GMT -6)   
Hello my family.
 
I get to go home this morning; finally have the pain under control. Kinda, sorta.
 
For starters I was on time to the hospital; 6am, for a 7:30am surgery. But the neurologist that was there just to monitor my nerves while the surgeon opperated got the time confused and wasn't going to get there till 9am. It wasn't till 11am that I finally went in for my surgery.
 
I got to my room at 2pm. The pain in my neck is so intense.  cry I'm on R-Oxycodone, Dullant, and a muscle relaxor. Between taking the section of bone and cutting through muscle, plus shoving those massive leads up into my neck, it's no wonder I'm in so much pain. It wasn't till Thursday night, around 6pm, that I was finally able to sit up on my own without sending my neck into massive spasims that had me screaming out in pain.
 
Saddly my folks got to witness that. I know it broke my Mom's heart, but I told her I'd be fine on my own. Besides, I was gonna spend alot of time asleep, as that first day I didn't really sleep at all; just dozed for an hour, called for my next injection, then dozed for another hour again.
 
I'll still be spending alot of time on my back resting. I won't get my unit turned on till the 23rd of May when I go in for post surgical follow-up. This way all the angery tissue and such has time to get used to everythiing before I turn it back on.
 
I guess the only real sad thing about this whole thing was having to do it alone. My father stayed with me till I was up in my room, then he left shortly after that.... my son was bummed I didn't come home yesterday... and aside from knowing all of you were with me mentally ... *sigh* I never had one visitor.  cry
 
I'm sorry I didn't write sooner. Didn't have the energy till this morning, and I'm already super sore as a result, so I'm gonnna get the nurse to give me some instant break through stuff so I can get some more sleep till my breakfast pudding is here.
 
Thank you, all of you, for standing by me during this scary time. I senced many of you here with me that first night when all I did was toss and turn in pain. Thank you for your kindness and compassion. I'll post again soon, I promise.
 
*lovehugs*
~Rhaevin~
 
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone and Celexa.
February 2011 successful SCSU trial
May 2011 SCSU implant surgery

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/13/2011 9:11 AM (GMT -6)   
Dear Rhaevin,

It's so good to hear from you and to know that you've come through your surgery. I'm sorry that you are on so much pain and discomfort right now, zight now, and truly hope that it settles quickly.

*sending healing thoughts*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 5/13/2011 9:19 AM (GMT -6)   
Rhaevin
 
I am sorry that you  did not have any visitors and had so much time alone! I definitely can empathize with you! When I had my articular joint fusion at C-3/4 last November, I was in the hospital 8 days and I had absolutely nobody!  After I left the hospital the monday before Thanksgiving and went to the nursing rehab facility my daughter finally came down from Minnesota the day before Turkey Day and helped me leave that facility and took me to my home.  I know well the lonely feeling you have, and it is so much worse when you are in such pain!
 
  My heart goes out to you Rhaevin!  I do hope that you heal quickly and when they turn your unit on, on the 23rd, that it works well for you! Like you, it was our family here on this forum that got me through that trying time!
 
I wish you well!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/13/2011 9:27 AM (GMT -6)   
 
 
           Well!...Lookie there!....She's back! Wahooo! wink
 
                 I bet your happy it's over with, and now!... let the healing begin! Surgery is painful no matter how you slice it.  Several members...well in fact most all of the members have been waiting word on you. You are loved here, that's for sure! wink
 
           Please take it slow, and it sounds like you have a plan for recovery, so that is half of the battle.
 
      How exciting, when you will finally be able to try out the new unit!
 
           Prayers to you Rhaevin, and come back when you are feeling better....we saved your spot here! smilewinkgrin
 
              Thank you so much for updating us all!
 
         Take care!
 
    SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16299
   Posted 5/13/2011 10:25 AM (GMT -6)   
Rhaevin I am glad to hear that you are now home. I really thought you would have massive post op pain after reading what would be done during surgery. Still gives me the willies when I think about it.

Your body has been traumatized something beastly so please, please take good care of yourself. Can't wai to see how things go in the pain dept when your unit can be turned on.

Hate to hear you had no visitors while in the hospital but try to look at it this way, you were hurting so bad thats the last thing you needed to do was put up with people in & out of your room wanting to visit. I get crotchety when I am in the hospital and the last thing I want is for people to be around, lol. Maybe when you get my age you will feel the same way, lol

Take care and baby yourself.
Moderator Chronic Pain Forum
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