Buttercup update

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spinalproblem
Regular Member


Date Joined Sep 2010
Total Posts : 26
   Posted 5/13/2011 7:49 AM (GMT -6)   
hi i havnt been using this forum bcoz i went away after i was better frm my operation and i have been feeling really good!

anyway i went in to see buttercup today and see how she is doing.

she is in a lot of pain i coudd see, she said it wasnt that bad but she couldnt talk thta well from it and she was very pale and just looked awful and in pain so i think she is just tryin not to admit it and being stubborn as usual haha and she is vomiting a bit and very shaky and wweak but stil in fairly good spirits! cracked a few jokes and i saw some smile so thtas good i guess, i will see her again in a few days and let you know how she is

she said to send her love and thanksto everyone here for the prayers and well wishes and to promise you she is okay!


thanks everyone

maddie

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/13/2011 9:00 AM (GMT -6)   
Buttercup, thinking of you, sweetie...
hang in there and be strong, we all luv ya...
Prayers and well wishes to our Buttercup...

Thanks SpinalProblem for this update, buttercup is being prayed for.
and you can still post here even if your feeling better and what was the operation you had that
made you feel so much better (I forget, hope you don't mind)...well wishes to you too...

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/13/2011 9:48 AM (GMT -6)   
 
    Hello Maddie!
 
         Thank you so much for the update on Buttercup! She is in our prayers!
 
             I'm also glad to see that you are feeling better these days. Didn't you have a fusion?
 
    It would be great if you would start a new post and update the members on your recovery status!
 
       Again Thanks!
 
     SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/13/2011 2:47 PM (GMT -6)   
I'm also praying for Buttercup.

Hugs,

Flower

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/13/2011 4:03 PM (GMT -6)   
Thanks for the update. My best thoughts to Buttercup
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

spinalproblem
Regular Member


Date Joined Sep 2010
Total Posts : 26
   Posted 5/14/2011 7:33 AM (GMT -6)   
i am with her now in the hospital, she is geting sicker as the days go by, is this normal to happen for a bit? i hate watcing this she is so unhappy and uncomfortable :(

she says hi to everyone and misses talkin to u all!

i will let u no when there is any change in her and whats hapenin :)

i will make a new post about how i am going soon aswell

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/14/2011 3:44 PM (GMT -6)   
Hi Buttercup. My prayers and thoughts are with you. I sure hope you're feeling better now. I've heard it can be really hard to go thru chemo. You hang in there sweetheart. ((((((((((hugs)))))))))))

love and more soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/14/2011 4:45 PM (GMT -6)   
Hiya Sweet Buttercup

I send my love and lots of gentle ((((((hugs)))))) lovie. We are all thinking about you and praying for you sweetie.

xxxxx
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/14/2011 5:26 PM (GMT -6)   
Hey Buttercup,

I just tried to post to you a minute ago, but the internet went down. I hope this one goes through whithout some type of duplication.

I really only wanted to let you know how much I care and how much I think of you and what all you are having to go through. You are such a strong young lady and I am proud of how you face such serious conditions with such a positive attitude. I know you are so much stronger than I am because I could never be as pleasant and positive as you are under such stress.

You are such a blessing to HW and to me personally. I've been lurking, even when not posting, and wanted to check on you especially. You have a special place in my heart.

I hope you feel better very soon!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

spinalproblem
Regular Member


Date Joined Sep 2010
Total Posts : 26
   Posted 5/15/2011 7:59 AM (GMT -6)   
again thank u for the replies it really does lift her spirits when i read all the posts to her

she is vry weak now, doesnt really wake up much at all and in a lot of pain which is rly hard to watch :(

does anyone know how long it takes for chemo to get easier? i was nearly in tears today nd im not even that close to jess like i am but i dont see her much at all

hopefully she will improve soon ill let u no

mads xoo

Trudy2
Regular Member


Date Joined Dec 2010
Total Posts : 213
   Posted 5/15/2011 9:14 AM (GMT -6)   
The initial chemo that is given to a leukemia patient is called induction chemo and it very strong. It is intended to wipe out all the bad cancer cells, unfortunately, to do that it also wipes out all of the good blood cells at the same time.

Some people crash during their first induction, and some people do not crash until their chemo/bone marrow transplant. I do believe that I remember reading that buttercup is doing chemo now and will be doing a bone marrow transplant in the future.

By crashing, I mean that they get severe sores in their mouth and cannot eat and it is miserable to try to talk. They can also get respiratory failure and go on a ventilator. Not everyone reacts this way -- it really depends on how many cancer cells they have in their body at the time of the chemo.

She should expect to be in the hospital for approx. 4 weeks but it could be as long as six weeks. They will not release her until her blood counts are up enough that she is somewhat protected from infections from others. The chemo that she got is totally killing her immune system and she will be immune compromised from now until long after the bone marrow transplant. Since they have killed off all of her blood cells - she will have no energy and will sleep ALOT! This is absolutely normal - she will also feel very weak. She should be getting blood transfusions and platelets as needed for her support. If she is in pain, she should have access to pain medications, please make sure that she does and that she uses them when needed.

I had Acute Myelogenous Leukemia and went the several rounds of chemo and a bone marrow transplant. I am not positive what type of leukemia that she has.

If you would like to email me - feel free to.
Trudy
DX pyoderma gangrenosum, Acute Myelogenous Leukemia, Bone Marrow Transplant, Chronic Pain syndrome, Chronic Kidney Disease Stage 3, Major Depressive Disorder, Radiculopathy, Bilateral Hip Pain, Insomnia,Left Groin Hernia, Bulging Disk in Lumbar Spine, Tear in Lumbar Spine, Tendonitis and Bursitis in both hips.
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