Doing it tough right now

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CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/13/2011 4:01 PM (GMT -6)   
I hope that it's okay for me to have a little bit of a vent...

I saw my pain doctor yesterday - MY doctor, as against the doc who did my SCS surgery, and ended up breaking down on him completely. I've still got major sensory issues in my left leg, and a lot of extra pain through my leg and back. I'm also getting nightmares where I think that I am till in surgery and it's not going to stop. Sleep is foreign to so many of us I know, but last night was a good night... I finally dozed off about 6:30am. It'd 8am now and I've already bee nafw

My doc's not happy with the way my back is healing either...I could feel straightaway that it was a messy job, and sure enough, parts of the incision have not closed together properly.

This was meant to help, and I can't help but feel awfully angry and miserable at the way things are going.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Fyrfli
Regular Member


Date Joined Jan 2011
Total Posts : 41
   Posted 5/13/2011 8:42 PM (GMT -6)   
I am so sorry you are suffering so much Laura...did your PM doc help you out at all??

Gentle hugs, and sweet prayers for more sleep and less pain for you.
***Fyrfli***

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/14/2011 12:18 AM (GMT -6)   
Hi Laura I'm so very sorry that you're in such bad pain still and that the surgeon did such a botched job. You should see about doing something about this. That dr. needs to be accountable for what he did to you. (((((((((hugs)))))) I hope you can get some relief really soon. I was wondering too if your PM dr. did any changes in your meds or anything else to help you out. You take care, and I send healing thoughts to you.

love and more soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 5/14/2011 6:11 AM (GMT -6)   
Laura any chances of your PM dr sending you to another surgeon to try and clean things up? I know many times another surgeon does not want to get involved, but its a thought. What does your PM dr recommend at this point?

I hope you can get some of this mess straightened out and soon. Take care.
Moderator Chronic Pain Forum

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/14/2011 7:17 AM (GMT -6)   
Hiya Laura

I am so sorry you are in pain lovie (((((((hugs))))))) and really hope that your PM Dr can help you out pain wise. I would see as other posters have said if you can be looked at by someone else they may be able to help you out and even correct what this other Dr has done. I will be thinking of you lovie and I send warm wishes and gentle ((((((hugs)))))) your way. Please let us know how you are getting on and we are always here for you xxxxx
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/14/2011 8:16 AM (GMT -6)   
He doesn't want to do anything right now - hoping it's still a matter of things needing time to settle down. I'm seeing my GP first thing tomorrow though - my back is terribly sore tonight and I have a fever :(
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/14/2011 8:41 AM (GMT -6)   
CRPS, keep an eye on that fever, as it is a tell-tell sign that something is not right!

Please do report back, and let us know what the GP found or suggested. Don't let it go too long please!

I too, think I would be seeking another DR and or surgeon if they are stalling.

Take care!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 5/15/2011 3:36 AM (GMT -6)   
Laura, what did your GP say about you running a fever? Does he believe its stems from your recent surgery? I sure hope you don't have an infection of some sort going on back there. Let us know.
Moderator Chronic Pain Forum

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/15/2011 7:10 AM (GMT -6)   
SE - my doctor would never stall me, thank goodness. He left strict instructions with the reception staff a couple of years ago that no matter how heavily booked his is, they are always to fit me in. I even have his private mobile phone number in case I run into an emergency out-of-hours. He knew nothing about CRPS when we first met, and I think for the first 6 or 8 months, every time I saw him he'd want to chat about some new paper or article he'd come across.

He doesn't think it's infected - he thinks that there is some suture reaction going on as well as general slowed healing so he's cleaned and dressed it again, and I'm to go to the clinic again tomorrow, Wednesday and Friday for that to be repeated. He's also put me on antibiotic cover just in case, because there's no apparent reason for the fever.

*hugs* to all of you.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/15/2011 5:15 PM (GMT -6)   
Hi Laura It's good to hear that your doctor is taking good care of your incision and is giving you antibiotics just in case. I hope you feel better really soon. You take care.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 5/15/2011 6:51 PM (GMT -6)   
Glad to hear he does not think its an infection, thats the last thing you need. You are lucky to have him in your corner it sounds like. Take care.
Moderator Chronic Pain Forum

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/21/2011 6:03 AM (GMT -6)   
Thanks again Loretta and Stray. I'm still struggling - my surgery was three weeks ago yesterday and those areas of my spinal incision just won't heal. I'm on antibiotic cover (cream and tablets) to ensure that the wound doesn't become infected, but basically I now have a big deep ulcer there. I think that I have had a reaction to the sutures - he did all dissolving sutures, which I dislike at the skin level for this very reason - and my GP agrees that this seems to be likely. There's no infection there, but it won't close itself and has to be left open to heal from the bottom to heal on its own. I'm terrified that it's going to become infected because that would probably require removal of my leads until the infection was gone.

My back and leg are still troublesome from the surgery, and they are feeding my CRPS pain. I'm also terribly swollen - almost from the chest down - and though a fair bit is from the CRPS, my cardiologist thinks that my Florinef I take for my orthostatic hypotension is contributing too. He is changing me onto midodrine, but I have to wait 2-3 weeks for him to do it through his research unit at one of the big hospitals, as if I were to get it on a regular prescription it would cost me an extra $200 a month shocked I'm just so thankful he can do it this way as I wouldn't be able to afford it otherwise. I'm on a disability pension, which means most of my medications are very heavily subsidised, but even so they still cost $135 a month. (They'd be $300 a month without that subsidy sad (

Just feeling very fed up with the word right now...
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/21/2011 7:49 AM (GMT -6)   
Try to get some rest...Prayers and well wishes to you, I hope
your feeling better soon...wish I knew what else to say, will be thinking of you
and please keep us posted...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/21/2011 9:32 PM (GMT -6)   
(((((((((hugs)))))))))))) I hope that your scar heals really really soon. Try to rest all you can. Healing thought and prayers coming you way. Take care. I hope you're having a low pain night
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/22/2011 8:20 AM (GMT -6)   
Oh my goodness...I am so sorry to read what is going on with you. Bad surgeons are something that upsets me so much!!!! These people are being paid extreme amounts of money to operate on us with this "god" syndrome and then they don't even bother to close it up correctly. I can only say I had that happen once with external staples....the idiot didn't even line the skin up...so all that was overlapping died. It was nasty and still has a nasty scar.

Please consider a specialist in wound care for this one. You can't risk the infection going into your body and you can't be sure the antibiotics you are using right now are doing the full job.

I so hope you find relief and feel better soon!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 5/22/2011 3:20 PM (GMT -6)   
I agree with RetiredMom,
A wound care specialist is a great idea , they specialize in getting wounds to heal that won't on their own or are slow to close on their own.
Most hospitals have a wound care specialist on their staff so if you try calling your local hospitals or even check the phone book you might find one listed.
Good luck, I hope that things improve for you, as each day passes. I know that swelling can continue for some weeks post implant/trial so it may take some time to get that down as well.
Sandi
Motorcycle accident 1992, Back problems from 92 to 2005. August 2005- early 2006- Chiropractor care
March 2006- consult with surgeon -PLIF/TLIF L4-5, spondylolysthesis, canal and foraminal stenosis, multiple herniations
Post Op Cauda Equina Syndrome
Revision August 2007- salvage op
March 2011- 2nd onset of Cauda Equina Syndrome
Needs surgery to prevent paralysis
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