well wishes for Jazzi

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Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 5/15/2011 4:42 PM (GMT -6)   
Tomorrow we take Jazzi (my daughter) for her heart echocardiogram, so fingers crossed that
she's still doing good, she has Aortic Stenosis, was critical at birth and she needed
open heart surgery at 12 days old...Sure scares a parent...Sure could appreciate all and any well wishes...
Getting the new bed tomorrow...it's Simmons new top of the line....but we have yet to get the
cat hairs sweepted up from underneath old bed....Take Care and well wishes to everyone...
got a full day tomorrow...

and someone get Pete trip to posting again sure do miss him and other older members....

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 5/16/2011 8:40 AM (GMT -6)   
           Morning Chart!
     I happened to see your post close to the bottom of the page this morning, and wanted to make sure you had support, as you and you're daughter face a serious day. I have had my share of heart problems as well, and it can be unerving to say the least. It's probably one of the most important organs in the body...well it should at least get honerable mention. wink
       Congrats on the bed, and when you fugure how to get the cat hair up off the carpet, without destorying the vaccumm cleaner, then let me in on the secret. shocked   I'm kinda thinking a pet-hair rake?
    Pete, had taken his mother back home, and was at least gone for a week or two, and I know he has been over loaded and struggling with health and SSD or SSDI issues. Hopefully he will vist us in the near future, and maybe share a fish story with us. wink
        Anyway, "Good Luck" with todays test for your daughter, and we all hope things turn out fine.
       SE wink
Moderator Chronic Pain Forum

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Post Edited (Screaming Eagle) : 5/16/2011 1:48:41 PM (GMT-6)

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 5/16/2011 2:51 PM (GMT -6)   
Jazzi's heart is doing good but they felt her throat and think her Hypo thyroid is
progressing and might have a goiter, so on to her endocrinologists again...
Many Thanks SE, sure has been a rough day the traffic getting into Houston
on 288 is horrid, we left and 1 hour and 40 Minutes early, but got there in plenty of time 20 minutes
early...So, glad her heart is doing so good....She's been through more than any kid her age should ever have to
go thru..and she's out of University for the summer and starting the job search...
Thanks for the up date on Pete...
Hope your doing good, I'm going to go rest up some...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 5/16/2011 6:11 PM (GMT -6)   
Hi Chart It's so good to hear that Jazzis heart is ok. Thank God I know that you had a really hard time with your baby having heart surgery when she was so tiny. Wow now you have to go to the endocrinologist. I hope everything is ok with her thyroid. Please keep us updated on Jazzi's health because we do care. ((((((((((((hugs))))))))))) for you.

love and soft hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Forum Moderator

Date Joined Jan 2005
Total Posts : 9249
   Posted 5/17/2011 1:53 AM (GMT -6)   
Hi Chart~

I have said extra prayers for your daughter' good health! I agree that when these things happen to our 'babies' no matter what age they are it's terrifying....especially when they are tiny. Please take care of yourself and try to get some extra rest in for you. Us moms sometimes forget to take good care of us at the expense of our health. Have some good 'Chart time'...

Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 5/17/2011 6:25 AM (GMT -6)   
Hi Chart,

Glad to hear that Jazzi's check up was okay. Hope that the endocrinologists visit is helpful too *hugs*

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 5/17/2011 12:54 PM (GMT -6)   
Thank You, will keep you informed about what the endocrinologists says...it might take awhile...
blood work alone will take two weeks...it's just really good that her heart is still doing
so good...the other medical problems we'll handle as we hear, but sure do wish she only had
the one problem...many heartfelt Thanks...it means a lot to me....
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 5/18/2011 4:54 AM (GMT -6)   
I been sick and out of commission for the last week or better; so I'm just now getting caught up on the board.... but I wanted to let you know I'm glad that Jazzie's tests came out good on her heart - that's the main thing.  I will be thinking and praying for her endo bloodwork and to hear about her thyroid and such.  So please keep us updated when that comes in...  but I'm glad the echo on her heart looked good. 
And, like everyone said, too - make sure to take care of yourself.  I know how much stress it puts on our bodies just worrying about our kiddos - no matter what their age... so please try to rest and take good care of you, too, Chart.  I hope you got your new bed!!

Thinking of you.... --Tina
Dx: Disabled due to many, many health/pain issues
Meds: Heart meds, Effexor, various Pain Meds (I've literally been on them all)...and on the list goes; intrathecal pain pump candidate

Personal: Christian wife and mom; I have six sons...and two "surprise" blessings - identical twin daughters (born 9/2010)
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