I don't think we have met yet! I was reading your post, and wanted to be sure and reply to it!
Chronic Pain sure is a "Lonely" condition, isn't it! The CP forum is really a testamant to that fact, because we can seek answers and then simply vanish into thin air and never be heard from again. However, we find that this is one place that we can meet and enjoy it, because, it seems that nobody except those suffering from CP can understand what we are going through. What a great place to share and visit, about all of the things related to "Chronic Pain"
We read post after post of family and friends, who in no shape or form are really fully supporting their loved ones, suffering from this "Black Listed" condition. On top of that, many members are dealing with PCD's and PM's expressing doubt's about our conditions, the first step we take into their place of practice!
So with all of that, I suppose the first step to dealing with this "Lonely Condition" you described as abandonment, empty, and invisible, is to do what you just did...and that is to reach out and say "I need support! ....Understanding! ....and Compaionship...and finally advice!"
The other step, ...and it may take some effort as a "Self-Advocate" on your part, is to see that you're being treated properly by you're PCD and or PM's. I'm afraid untill you experience some sort of relief, you will continue to feel these types of feelings. Pain, will mess not only with you physically, but may do a number on you emontionally as well.
Are you being scripted pain med's?...and if so is your pain scale low enough that you can enjoy some sort of quality of life? I'n my honest opinion, it should not take 7mo for a PM to begin pain med treatment, above and beyond the "Epidural's" especially if they are not having a positive effect at reducing you're pain scale to the point that you can enjoy some relief.
Please stay engaged here with the members, as it does help, and if you are not recieving adequate care from you're PM, then tell him, and make sure he understands this. Be firm, but becareful not to anger him either. If you get no results, then it may be a good time to seek another care provider.
Good luck!..and it was nice to meet you!
Moderator Chronic Pain Forum
"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"
Post Edited (Screaming Eagle) : 5/16/2011 1:05:36 PM (GMT-6)