Had my hopes up, for a new oppurtunity to look at the cause of the pain.... I shouldnt do that.

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_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 5/16/2011 3:42 PM (GMT -6)   
( I renamed it to better show what the post was about. New material at the bottom)
I have been looking forward to this 2nd opinion of the rheumatalogist with a new, unseen rheumy for months. I thought I did all my homework, but somehow there was miscomunication on what insurance she took. When I got there today I found that I could not see the Dr at all.
shocked
Today is what I call a "pain day". I feel like I have been beaten. My joints "burn". I have taken the extra the extra pain med that I am allowed, but still hurt awlfully. Cold pads hurt to put on, but I know will help in the end. My head is woosy, but I dont get up.
eyes
I hate this. I want to be well! I want to be healthy! I want to not

Post Edited (_Christina) : 5/17/2011 6:10:33 AM (GMT-6)


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 5/16/2011 3:55 PM (GMT -6)   
Place all my hopes on what a Dr can do for me. I want to not miss my daughters concert tonight because i feel like crap. I want to not get so worked up that when i cant see a Dr I cry all the way home.
I want to be WELL!
(Stomp my foot and pout)
Treatments: gluten-free diet, Cpap
Medications: omeprazole, probiotic caps; multi-vitamin supplement; docusate sodium, fiber chews; zertec, ferrous sulfate, cymbalta, lamotrigine, ambien, alprazolam, plaquinil, sulfasalazine, methotrexate, leucovorin calicium, folic acid, motrin, tramadol, pennsaid, aspercream, nasonex, albuterol sulfate inhaler

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 5/16/2011 5:54 PM (GMT -6)   
Oh Christina I'm so sorry that things got all messed up. ((((((((hugs)))))))) If it were me, I would go looking again for another dr. I know you so wanted to see this dr. It's a shame that drs are so picky about insurance. You take care.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 5/16/2011 7:24 PM (GMT -6)   
You see my current rheumy only has me come in every 6 months and touches each finger joint (more like just a brush) and says ok xontinue as you are. He had no intrest that i was in pain. He had no intrest that i coild see changes in my hands. He had no intrest in the fact thata lot of my pain was in my knees. RA happens in small joints like toes and fingers first, then knees. (Never looked at my toes, never mind thats not what the books say)
When i mentioned other places that hurt too, (thumb base, lower back, muscles in arms and legs) he says "thats not RA" Well, yes, i know. But he doesnt care any further. I asked about the fact that i have to keep changing glove sizes for my joints to fit. He says that they are not swollen because he can feel the joint on the side. End of descussion. No discussion. Do what i say.
I have had blood draws every 2 months for 3 years. No comment on the results the last 2 visits. (1 year) No images in 3 years. No other tests. I asked if we still thought i had RA since i still had pain and he says im not swollen (even though i think i am) and i havent had any other tests since the Rf 3 years ago. His response was: did i want to go off the drugs? No. Do they help? I guess so. Then you have RA.
Can i have enough meds to be functional in pain? His answer: youll get used to it. Can i use stronger/different meds (biologics) to see if it will control it enough to decrease the pain? His answer: No. Not what they are for, arent going to work different, are expensive. End of discusson, end of visit.

So i had my hopes pinned on a new rheumy who had great reputation through town, who might do images to see what is going on now, might do new bloodwork to see current results, might look further into new symptoms that were being ignore, and might even have new Dx and new treatment options.

I will start again and look for annother rheumy who takes my insurance. There are no more in town, and i waited over 2 months for this appt when i could have gotten into somewhere else. She was referred by my PM Dr, because they work well together. It would have been a good deal.
i havent given my current rheumy a chance to work with him, but the more i read up on RA and PM, the less i want to go back to him.
Treatments: gluten-free diet, Cpap
Medications: omeprazole, probiotic caps; multi-vitamin supplement; docusate sodium, fiber chews; zertec, ferrous sulfate, cymbalta, lamotrigine, ambien, alprazolam, plaquinil, sulfasalazine, methotrexate, leucovorin calicium, folic acid, motrin, tramadol, pennsaid, aspercream, nasonex, albuterol sulfate inhaler

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 5/17/2011 9:26 AM (GMT -6)   
Good luck finding a new rheumy, especially a good one!  I'm in that boat too.  Mine is just too sick himself to do anything for me, and others are in a location I can't get to without a lot of trouble - no place to park my truck.
There just aren't enough rheumatologists because it takes 2 residencies and they aren't paid well after all that.
 
Is there any possibility some of your meds could be making things worse?  That's what kept happening to me.  Examples: Cymbalta - tiredness, insomnia, tremor, hot flushes, nausea, blurred vision, headache, tinnitus, weakness.  Zanaflex made my pain worse.  Medication induced pain might be something to consider. 
 
One example from my reading:
   " Drug induced lupus is caused by the use of a medications to treat hypertension hyralazine (Apresoline), and some anti-seizure medications such as phenytoin (Dilantin or carbamazepine (Tegretol). Quinidine (Quinaglute), used to treat cardiac arrhythmias and isoniazid (INH) are two others that may cause drug induced lupus. Over 38 different medications can cause drug induced lupus, however procainamide (Pronestyl), quinidine (Quinaglute) and hydralazine(Apresoline) most often cause the disorder. As for the other 35 drugs, the incidence of drug induced lupus is extremely low.
 The theory that has the most circumstantial evidence is that drug induced lupus is caused by metabolic changes in the drug that occur in the body and affect the immune system."
 
If you search "drug-induced pain" or "drug-induced myalgia"  you will find lots of articles like:
 
 
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