You see my current rheumy only has me come in every 6 months and touches each finger joint (more like just a brush) and says ok xontinue as you are. He had no intrest that i was in pain. He had no intrest that i coild see changes in my hands. He had no intrest in the fact thata lot of my pain was in my knees. RA happens in small joints like toes and fingers first, then knees. (Never looked at my toes, never mind thats not what the books say)
When i mentioned other places that hurt too, (thumb base, lower back, muscles in arms and legs) he says "thats not RA" Well, yes, i know. But he doesnt care any further. I asked about the fact that i have to keep changing glove sizes for my joints to fit. He says that they are not swollen because he can feel the joint on the side. End of descussion. No discussion. Do what i say.
I have had blood draws every 2 months for 3 years. No comment on the results the last 2 visits. (1 year) No images in 3 years. No other tests. I asked if we still thought i had RA since i still had pain and he says im not swollen (even though i think i am) and i havent had any other tests since the Rf 3 years ago. His response was: did i want to go off the drugs? No. Do they help? I guess so. Then you have RA.
Can i have enough meds to be functional in pain? His answer: youll get used to it. Can i use stronger/different meds (biologics) to see if it will control it enough to decrease the pain? His answer: No. Not what they are for, arent going to work different, are expensive. End of discusson, end of visit.
So i had my hopes pinned on a new rheumy who had great reputation through town, who might do images to see what is going on now, might do new bloodwork to see current results, might look further into new symptoms that were being ignore, and might even have new Dx and new treatment options.
I will start again and look for annother rheumy who takes my insurance. There are no more in town, and i waited over 2 months for this appt when i could have gotten into somewhere else. She was referred by my PM Dr, because they work well together. It would have been a good deal.
i havent given my current rheumy a chance to work with him, but the more i read up on RA and PM, the less i want to go back to him.
Treatments: gluten-free diet, Cpap
Medications: omeprazole, probiotic caps; multi-vitamin supplement; docusate sodium, fiber chews; zertec, ferrous sulfate, cymbalta, lamotrigine, ambien, alprazolam, plaquinil, sulfasalazine, methotrexate, leucovorin calicium, folic acid, motrin, tramadol, pennsaid, aspercream, nasonex, albuterol sulfate inhaler