Everything has changed....

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MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/17/2011 7:52 AM (GMT -6)   
I had a follow up visit with my Orthopedic Surgeon yesterday. Quick history - I've been dealing with chronic pelvic pain, Fibro and a multitude of other issues, including hip impingement on the right side (along with tears in the tissue, and a bone spur). My first visit with the Ortho included new x-rays and the suggestion of having a cortisone shot in the hip joint, to ease the pain.

I had the injection done, had some minor relief, but nothing lasting. When I saw the Dr. yesterday for the follow up, I expected we would talk about hip revision surgery, which is what he felt the next step might be. Fast forward to having more x-rays done yesterday, just prior to the appointment (this clinic has their own x-ray group, so they get the results instantly).

After looking everything over, my Dr. told me that regretfully, the hip revision isn't going to help me much, because I have too much arthritis in the hip joint. So, the plan now is to see him again in 6 months, and then he wants to do a full hip replacement surgery.

I have to admit, I was speechless when he said this, as we'd never talked about anything that extreme. He showed me the x-rays and he could see changes from the first ones he did to the ones done yesterday - and not changes for the good. He wants to wait for 6 more months, to see if there is any delayed reaction to the cortisone...he's see it happen before. Mostly, he wants me to monitor the pain with and without activity. There's a good chance I'll need to talk to him about knee surgery as well - we're waiting for an MRI to confirm the problems. It's the knee on the right side as well, so perhaps I should just ask for a complete Right Side of the Body transplant. smilewinkgrin

So, I go through the next 6 months as I have been, but with an eye to major changes after that. I'm going to go hang around in the Arthritis Forum as well, to get some perspective and advice there. Thanks for the care and support here...I'm afraid I haven't been very good about posting my good wishes and support to others here, I've been so busy hurting and wallowing in self pity. eyes

Wishing each of you a day of sunshine, and praying for each of you a lifetime free of pain.

Hugs,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Osteoarthritis in Hips and Lower Back, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Type 2 Diabetes, Reynauds, Visual Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramadol, Tramacet, Cymbalta, Cesamet, Flexeril

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 5/17/2011 8:28 AM (GMT -6)   
Hi Pam. I can understand your surprise and dismay about the change of plans. A total hip replacement is a big surgery but with the arthritis issues you have in there hopefully it will resolve all the hip issues at one time. So maybe the total hip replacement is actually a good thing in the long run. I'm keeping my fingers crossed on this for you. Hang in there and remember to take care of yourself. Lee
Hope and attitude are everything. Never, never, ever give up.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/17/2011 8:48 AM (GMT -6)   
 
 
          Good morning Pam! wink
 
                That was my same thought, and the hip surgries, seem to be pretty successful these days as well.
 
     Maybe this will be the best route to go in the long run. It is!... a big surgery and can be painful for a short while, but many of the friends I have seen have them, are up and going in a very short time.
 
       I know six months is a long time to wait, but you just never know, and there is a chance that you wont have to do that either. Hang on!
 
         Also, YES!...you are missed here, but I understand your reasons too!....just stop by and visit when you can.
 
     Take care!
 
   SE/scrambled eggs! wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 5/17/2011 11:10 AM (GMT -6)   
Hi Pam, sorry to hear the dr has now decided he can't do the other surgery. I am sure you were rocked back on your heels when he said this. So, now you get to suffer 6 more months and be seen again and then he will decide if its time to do the replacement. I can tell you first hand several close friends of mine have had total hip done and they were so glad they did. All said for the first time in years they were totally out of pain and most of them wished they had been done sooner. It really is a common surgery now because it is done so much. So, what have you done to your knee? When will you hear about it?

Please let us know what you find out on the knee problem. Take care.
Moderator Chronic Pain Forum

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 5/17/2011 11:24 AM (GMT -6)   
I'm sure it was a shock to hear this if it had never been discussed before!...

Once the dust settles and you get used to this idea...please know that it is a very successful surgery and as SE has mentioned...I know 4 people who have had this done and are doing so well they have their lives back again to walk and mostly pain free!!!

Why does he not want to go ahead and schedule the surgery? Why wait another 6 months...it shouldn't take but a few weeks to see if there is a reaction to cortisone... It seems if this is what is warranted...then it would be good to move forward in the next few months...a half a year is a lifetime with cp!

Obviously you should get a 2nd opinion with any major surgery to verify it is needed...

And with any surgery..it's always the first month that is tough but it does get better!...

I will pray that this will be the answer that gives you relief finally in your hips!!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/17/2011 2:05 PM (GMT -6)   
Pam....
 
Just a quick note to let you know I miss you!  I'm glad you posted.... just post when you can and don't feel bad.  We all know how crazy life is. 
 
Love, Tina

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/17/2011 2:53 PM (GMT -6)   
Hi Pam It's good to hear from you. I'm sorry that you're going thru so much. I've also heard that the total hip replacement is really successful. The dr shouldn't be making you wait so long though. If I were you, I would seek a second opinion. I hope that you can get some relief really soon. (((((((((((hugs)))))))))))) You take care.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 5/19/2011 1:06 AM (GMT -6)   
Hi Pam
 
I am kind of in the reverse position as you are, I had seen a orthopeadic surgeon a couple of months ago and he told me he thought I had really bad arthritis and I needed a total hip replacement, but he wanted me to go for a second opinion, Well I seen another ortho surgeon and he said my arthritis was not that bad and I did not need a hip replacement but that he said I had Femoral acetabular impingement, and he sent me to a specialist in chicago, I seen the specialist yesterday, and he said I indeed have a probem with my hip but that I also have major problems with my lower back, and I have some severe nerve damage and have lost some reflexes in my legs. He said he will not work on my hip till after they diagnose and fix what is wrong with my lower back. So the 7th of june I have to go back to Chicago and have an MRI of my lower back and a MRI of my hip with dye injected into the hip Joint, and then that afternoon I will again see the specialist on my hip and then on the 9th I have to go back to Chicago and see the ortho spine surgeon to see what he wants to do with my lower back.  I live about a 120 miles south of Chicago so it is a rather long and painful drive to get to the doctors. But I am at least happy that I do not need a total hip replacement! Like you I have had the injections into the hip joint but the relief was very short lived.
 
I do wish you well and hope that you can get some resolution on your hip pain
 
 
White Beard
 
as a side note I had the MRI with dye in the joint last year, but he want new up to date pictures. so here we go again, I also told him of the problems that I had with heating up in the MRI and he said to make sure the folks doing it knows about it, but he still wants it done
 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 5/19/2011 1:10:16 AM (GMT-6)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/19/2011 5:53 AM (GMT -6)   
I've known two people who had total hip replacements and one who had a knee replacement. All three are so happy that they decided to go through with the surgery. Pain and mobility both improved.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/19/2011 11:27 PM (GMT -6)   
Hey WB I wanted to let you know that when I have had MRIs done, I ask for the open MRI because I have claustraphobia. I don't get too awfully hot like you did last year. That's pretty scary to even read about must less have it to happen to you personally. I thought I would give you an idea or advice. You take care. It sounds like you're going to be driving back and forth to Chicago a lot. I wish you low pain while you're driving and a low pain night tonight also.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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