Diagnostic Lap Results

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Lilukalani
Regular Member


Date Joined Dec 2006
Total Posts : 31
   Posted 5/19/2011 6:21 AM (GMT -6)   
I just had my surgery yesterday which consisted of a Diagnostic Laparoscopy, Cystoscopy and removal of Endometriosis. I have officially been diagnosed with Endometriosis. I also had blood taken and was diagnosed with Hypercalcemia as well, which explains a lot of other health issues I've been having and never really got an answer for.
Anyway, the surgery went really well. Everyone at the hospital was so kind and caring and one of the nurses even got me a vase of flowers! After I woke up, I was told that they found 2 kinds of Endometrial growth. The first kind was what they referred to as "firecracker endo" and the second kind was what they called "bubble endo". The reason they called them that was because of the way it looked and to help me understand the differences. They removed the firecracker endo by burning it instead of scraping because it was pretty close to my uterus and they didn't want to cause any bleeding. They couldn't remove the bubble endo because it was spread over a very large area and looked like someone took a bubble blower to it. My main doctor/surgeon said that if she did remove it, it would have caused me extreme pain during recovery and she really didn't want me to have to go through with that. She removed all of the firecracker endo, though. Right now my stomach is very sore, bruised and bloated. The incision on my bellybutton hurts and my stomach is pretty bloated and hard. Is the bloating because of the carbon dioxide they inflated it with? Will it go down soon? It isn't very pleasant and makes standing up straight and walking difficult.
Aside from the pain, I'm just so happy that they found something. Even though the endo wasn't as bad as I thought it was, she said that women who have Stage 1 or 2 Endometriosis still have extreme pain and just because it's Stage 1 or 2 doesn't mean it's any less important or crippling than stage 3 or 4. So my Post-Op is in 2 weeks and we will be discussing what the best treatment will be for me. She mentioned that she believes Lupron would greatly help me and I told her why I didn't want to take it. She told me that she could prescribe me medication that would help with the side effects and even if I still have a really bad time with it, I can stop taking it and find something else to take. If I can take Lupron with medication that would make it so that I won't get those severe menopausal side effects, then I'll consider taking it. I'll just have to wait for my Post-Op appointment.
Until then, I'm getting as much sleep as I can. I'm experiencing nausea and I threw up a muffin I tried eating so I'm going to wait until I try and eat anything else. Any tips on how to make this recovery easier and less painful would be greatly appreciated! My only real concern right now is the bloating in my stomach.

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/19/2011 9:59 AM (GMT -6)   
Hi Lilukalani,

I'm happy to hear your surgery was successful. It's so nice to get answers, isn't it!

I'm guessing that you're feeling bloated because of the gas they use to pump up the stomach...I found using a heated up Magic Bag on my belly helped a lot. You can also take Gas-X or any similar product, to help break the gas bubbles. If you start experiencing pain in the upper shoulder area, try using heat there as well...it's a common place to experience pain after a laprascopic procedure.

I think your doctor has the right idea about taking the Lupron along with some medicine that will manage the side effects. At least you know you can try this, and then stop if it's not helping at all. It sounds to me like you have a good doctor, who really wants to work with you to keep you comfortable and pain free. That's a rare thing!

Good luck with your recovery...I hope you're feeling 100% in no time!
DX: Fibromyalgia, Severe Myofascial Pain, Osteoarthritis in ALL my joints, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Type 2 Diabetes, Reynauds, Visual Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramadol, Tramacet, Cymbalta, Cesamet, Flexeril

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 5/19/2011 10:25 AM (GMT -6)   
Glad to hear the surgery went well!! Boy...I wish I had this site many years ago when I had my first Lap surgery..That 'air' that stuck around for a day or two and traveled up to my shoulders and everywhere was just awful and I wasn't expecting it:(...

So MS B...thanks for sharing that info to help others.!! Gas X to the rescue!!! and stay away from eating things that cause extra gas this next week..

L..Every person with Endo has to decide what treatments they are wanting to try based on what level they are...Just please read up..if you haven't already about Lupron and if it's worth taking at this stage...I was diagnosed with stage 4 back in the 90's...They found this after I was having ovarian cysts rupture every month...ugh!..

As well as after having 3 laps done...I had so many adhesions that they took out my Appendix the last time since it had grown everywhere and were afraid it would rupture as well..

So I actually stopped my birth control..which is known to help with Endo pain...but the cysts rupturing were so much worse for me...

Unfortunately..with all the above..along with finding a Pituitary brain tumor...I wasn't able to have any children...

I am extremely blessed that I hardly have any symptoms from the Endo anymore and little pain...

So just wanted to share that we all have different paths and hope that you find one that helps you best..

Rest up...I pray that you will find a good treatment that works so you can live a wonderful and as pain -less life as possible!!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 5/19/2011 11:35 AM (GMT -6)   
Ask for Zofran to combat the nausea. Stick with liquid diet for a few days, stay away from "gassy foods." It helped me.
Alcie
 
 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/19/2011 7:44 PM (GMT -6)   
Hope your feeling better soon, keep us posted...
well wishes to you...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 5/19/2011 8:51 PM (GMT -6)   
Keep us posted on your progress.  8 years ago I had an ablation done for endo, this was when they were first being done.  If you have any questions about the procedure I would be happy share my experience. 
 
Hope you are feeling better soon!!
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/19/2011 9:15 PM (GMT -6)   
You should start to feel better within a few days. I've always found the second and third days after a lap to be the worst. Some of the swelling is inflammation and some is the gas. The swelling should start going down by tomorrow, although you may be bloated for a few weeks. If it doesn't change in a few days or gets worse, call your surgeon. As difficult as it may be to stand up straight, do it anyway as often as you can. Again, this should get easier in the next few days. Walk often even if you just do a lap in your living room. It helps to dissipate the gas and fluids in your abdomen.

Gas-X doesn't help dissolve the gas in the shoulder because it only works on gas inside your stomach and this gas is outside of your stomach. However, Gas-x and peppermint tea will help with any gas and bloating in your stomach that pushes on the gas outside you stomach so it is always worth a shot.

The staging of endo just describes how extensive it is. Many women with stage 1 or 2 have worse pain than some women with stage 4. Your endo causes you pain so it is as bad as you thought it was. I was diagnosed with stage 4, endo and adhesions were everywhere, everything was stuck to something else. I had surgery years ago because I started to have a cyst pop every month (excruciating) but otherwise, I was just uncomfortable all the time, surgeon said he couldn't believe I could walk and stand upright. I knew nothing about endo, my doc never mentioned it, so I did not choose the right surgeon. He burned some of it off, surgically removed some, and hoped that a pill (progesterone) would take care of the rest. Within a year, I ended up a lot worse than before. Burning endo causes scar tissue with endo under it. I ended up with more adhesions and pain.

A surgical nurse told me that surgeons are paid by the operation and not by the hour. It takes many more hours to remove endo than to burn it off or "dry it up" with drugs. Too many surgeons only plan 2-4 hours for endo surgery then stop when they reach their time limit. I used to run an endometriosis support group and noticed that the highly recommended surgeons did about 6-8 hr surgeries and the less experienced docs did 2-4 hr surgeries. These specialists had better outcomes and happier patients.

I ended up having another surgery but this time I chose an expert. He surgically removed all the endo everywhere and tons more adhesions. Unfortunately, I grow adhesions like crazy and they love my mesh from a hernia repair. The surgeon believes I have endo under the hernia mesh but removing it is not an option right now.

I hope you do a lot of research before you decide to take Lupron. It's a monthly shot so even if you stop it, it can take a long time before the side effects go away. Lupron stops your hormone production so it is supposed to "dry up" endo. Adding back hormones so that you don't have the side effects sort of defeats the purpose. It has many severe side effects, some that can be permanent. It is only supposed to be used for 6 months in a lifetime so what happens after 6 months? I know Lupron helps some women but I have seen it hurt too many women who made the decision to take it without getting proper info from their docs. Lupron was originally used as a type of chemo for men with prostate cancer and is sometimes used to chemically castrate pedophiles. It's a serious medication.

If you do take Lupron, watch your bone density and don't skip your dental checkups. It may make you feel worse before it makes you feel better.

I hope you find the treatment that works best for you!

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/20/2011 12:44 AM (GMT -6)   
I almost forgot....don't be surprised if your next period (or two) is horrible. It's very common but surgeons rarely warn you.

You might still feel pain where your endo was for the next few weeks but that's also where the raw areas from the surgery are. It might not look like it from the outside but you just had major surgery so take it easy.

Follow any restrictions on lifting, you don't need a hernia on top of everything else.

Lilukalani
Regular Member


Date Joined Dec 2006
Total Posts : 31
   Posted 5/20/2011 11:48 AM (GMT -6)   
Thank you, everyone!! All of your information, personal experiences and tips are really helpful! I got Gas-X which is helping and I'm not nauseous anymore but I don't really have much of an appetite. Also, I can't stop checking my incisions! They used dermaglue and dissolvable stitches to close the wounds up. The actual incisions that I can see were closed using dermaglue and this is the first "cut you open" surgery I've ever had so I'm a little paranoid about it.

Other than that, the recovery is going well so far! I'm making sure to walk as much as I can, never exerting myself and drinking lots of liquids!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/20/2011 2:27 PM (GMT -6)   
Walking around as much as you can will help get rid of the gas too. Hope you feel better soon.
Moderator Chronic Pain Forum

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/20/2011 2:59 PM (GMT -6)   
Don't panic if you see something like fishing line poking out of an incision. It scared me a bit the first time it happened.

Also, if the skin on your stomach gets really sensitive where anything touching it hurts, a close fitting spandex shirt helps. The constant touch feels better than the brushing of a baggier shirt.
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