I am a little late to respond, but Montysmom, First things first, its not and never was your fault that you are a cp patient. In the beginning of the journey into the nightmare of cp, guilt, unfortunetly is very difficult to overcome, when I became totally disabled, I still had two girls in high school, one graduated in 2000, my youngest graduated in 2003.
The guilt and overall feeling of worthlessness is dibilitating. I had to leave my youngest with very close friends, because we had been evicted from our apartment. My oldest daughter, after graduation told me she was pregnant, I asked her what she wanted to do, and whatever she decided I had her back. I have a 9 year old grandaughter, and a 5 year old grandson. They are both my oldest daughters.
My youngest went through 10th, 11th, and 12th grade without living with me. I will never be able to pay back, either with money or thankfulness, for what the people she lived with did for her during that time. Because of them, she went to her prom looking like the princess she is. If that wasnt enough guilt, well I dont want to know.
But I realized then that we all have to work together to help each other thru life. After that, I knew my way in life was to help others in there journey. These people never asked for money, and would not take the little I had to offer.
This forum is like that, we help each other in ways others cant, they have not walked in our shoes, and hopefully never will. So rather than let guilt eat me up, I volunteer, post on this forum, believe me it still creeps up on me now and then, but I continue to beat it down, and so should you. You did not ask for this no one would, but its what we deal with every day 24 hours a day. Keep your head up.
Good luck hope you are having a low pain day and many more.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson