Sometimes I write myself notes for my appointments. I write them down whenever I think of them so I dont forget till my next appointment. Actuall written out questions, a copy for myself and a copy for the doctor, we can go over them one at a time. That way I dont miss anything when I get upset or distracted. It is very easy for me to get emotional when it comes to sticking up for myself.
I do take my husband with when I can, but most of the time, he doesnt understand where I am coming from. I dont really have anyone else I would feel appropriate to bring along at this point. Maybe we need to buddy up with another CP patient,lol.
I also keep a journal/calendar, to keep track of morning, noon and night pain levels. Also what I am doing physically (heavy cleaning verses laying around) and other important info. I feel that coming really prepared, on paper and mentally, makes your doctor alittle more through and willing to take the time (even of its just to cover his backside).
Fortunetely I have a great PM doctor that I feel takes the time and listens to everything I have to say. I have heard other talk poorly about him, but my experience has been good. It means all the world to have doctors that listen and respect your ideas and feelings.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.