I went to the dr visit and Iwas unprepared !

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sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/26/2011 10:52 PM (GMT -6)   
I went to surgeon,Ithought for a surgery date ,it turns out  yet another dr to see before surgery ?I realize its a slow process ,but the pain is getting so bad ! I am going to have to learn more coping skills and commuicate with drs ,so they understand what I'm going thur. Take care

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 5/26/2011 11:08 PM (GMT -6)   
Hello Sore42long!

It's good to see you posting again, but I'm sorry to hear that the process is dragging on. It happens to all of us at times! shakehead

I'm wondering if you have a family member who can be an advocate for you, and help explain the suffering you are going through, and maybe take notes for you so that you can better understand the process?

It's something to think about, and I bet it sure would be helpful to you as well.

Let us know when the next appointment is, so that we may support you through this process. I know you are really suffering with all of this, and wish you the best. Are you being scripted any pain med's to help, while your waiting for surgery?

Take care, and we are here anytime you need support.

SE wink
Moderator Chronic Pain Forum

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Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 5/26/2011 11:43 PM (GMT -6)   
Hi Sore!

I think SE has a great idea....take someone along with you who will speak up when you don't feel you can. Whatever doctor would be the one to help you with pain control, get an appointment asap so you can get your pain under control. There a very safe and good medications for pain control. You shouldn't have to ask for them but sometimes you will. Hopefully the doc will come through and just prescribe whet he feels would work for your pain control. but that's a rare occurrence in people with fibro, I'm afraid to say.

So give some serious thought to who you could take and who you feel would speak up and not be timid. If the doctor doesn't understand what you're going through then he can't do a good job. Give it a try...can't hurt and you have everything to gain from asking.

Hugs and keep in touch,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
~~~~~
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/27/2011 12:12 PM (GMT -6)   
Just a quick note to say that I also agree w/ what SE said about bringing someone along w/ you.  Before I had firm diagnosis and got to a stable place - my husband went w/ me to all appointments - and if I was too sick, in too much pain or too emotional, whatever - he'd explain how much of an impact my health issues were having on my life. 
 
I know it's hard, but as Chutz said - sometimes we have to just speak up and advocate for our needs.  We shouldn't "have" to - but it's necessary at times.  In some way - I would just express that this is not having "quality of life" being in this much pain - and that you need something for it.  Period. 
 
That's why it's good to have another person to help you say this.
 
Good luck to you and please let us know how you are doing.  I'm so sorry you are in so much pain. 
 
Take care, Tina
Dx: Disabled due to many, many health/pain issues
Meds: Heart meds, Effexor, various Pain Meds (I've literally been on them all)...and on the list goes; intrathecal pain pump candidate

Personal: Christian wife and mom; I have six sons...and two "surprise" blessings - identical twin daughters (born 9/2010)

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 5/27/2011 3:31 PM (GMT -6)   
Sometimes I write myself notes for my appointments.  I write them down whenever I think of them so I dont forget till my next appointment. Actuall written out questions, a copy for myself and a copy for the doctor, we can go over them one at a time.    That way I dont miss anything when I get upset or distracted.  It is very easy for me to get emotional when it comes to sticking up for myself. 
 
I do take my husband with when I can, but most of the time, he doesnt understand where I am coming from.  I dont really have anyone else I would feel appropriate to bring along at this point.  Maybe we need to buddy up with another CP patient,lol. 
 
I also keep a journal/calendar, to keep track of morning, noon and night pain levels.  Also what I am doing physically (heavy cleaning verses laying around) and other important info.  I feel that coming really prepared, on paper and mentally, makes your doctor alittle more through and willing to take the time (even of its just to cover his backside). 
 
Fortunetely I have a great PM doctor that I feel takes the time and listens to everything I have to say.  I have heard other talk poorly about him, but my experience has been good.  It means all the world to have doctors that listen and respect your ideas and feelings. 
 
Big Hugs,
Shell 
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 5/27/2011 4:08 PM (GMT -6)   
Great ideas everyone:) Sorry to see you having such a hard time Sore...

The other thing I wanted to stress is that so many Dr.s are very left brain...This means they need to have facts and figures...yes...some of them are very compassionate and caring as well...But they need to know 'how' your pain affects your life..

For Pain Mgmt. Dr.s or for any of the one's that are helping manage your pain..

Like Shell mentioned...keeping a journal to talk with them about it is a great idea..

The want to know what you can and can't do....what do you do that causes more pain...

Another thing that is important is to show them that you are an active participant in helping your pain...they want to hear that you are trying to exercise...even a few minutes walking a day...trying to stretch...trying to eat healthy...trying not to smoke...

They really appreciate feeling like you are part of a 'team'...that you don't just want some magic pill to take away all the pain...

They get very skeptical about people who say that nothing else works except narcotics...

**I'm not saying this is you by any means...I am speaking in general terms for all of us in CP...

I have learned so many things from being friends with my Pain Mgmt. Dr. It's very interesting to hear what it's like for them everyday and what they go through just trying to help those truly in pain...

I think bringing someone with you next time would be a great idea..

I hope you can rest some this holiday weekend!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 5/29/2011 4:06 PM (GMT -6)   
Thanks everyone !I'm in canada ,the system is backed here!!I have TOM ,my roommate of 16 yrs,no family .Tom is great drives me too appoinments ,not much of a talker.Tom was at last dr visit ,he expected as well a surgery date?usally Ido write things down ,which works well!I'm on oxycotin 20mg about 3aday ,suppose to work for 12 hr painrelief ,Isay about 8hrs .The problem is my hand goes icecold,and sharp shooting pain?I belive,Iam on the list to painclinic?My dr of 16yrs just retired last month!My pain has changed me so much ,unable to do simple tasks,the support from this site has ,helped me so much!! Take care ,Iplan to call dr.tommorow
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