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suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/27/2011 2:50 PM (GMT -6)   
Hiya guys

Just wanted to pop in and give you all an update on how I am getting on. Well not too good really, pain is back and so much more worse than before. I am finding myself crying with the pain and sometimes I can hardly talk :-( Its only been 3 weeks since the caudal injection and I feel awful. I am now keeping my fingers crossed that I get my letter from the referral hospital, so they can sort me out. I know, I should not hold out hope for them helping me out, but I need something to cling too.

I really hope you are all having a low pain day and loads of gentle ((((((((hugs)))))))) guys, because sometimes we need them xxxx
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 5/27/2011 6:47 PM (GMT -6)   
Hello suesueky, I am a little confused about your doctor situation?  But let me start where I should have, I am sorry you are having such bad pain.  I will be praying that you feel better very soon.  I am sending out good karma to you, so if you feel a little jolt, (not pain) thats me sending good vibes your way.
 
 
I am so telling my age with the "good vibes" talk.  So onto what is going on with your doctor or doctors.  You clearly have all the requirements that meet the disease of cp, whats the holdup.  Believe me I know how hard it is to be forceful when you are feeling so bad, but you must insist on being heard.  Yours is the one voice that needs to be heard.  Never let yourself not be heard, you must insist on being treated as a human being with a debilatating disease.
 
Please make your voice heard, you will find that when you start insisting loudly that someone needs to pay attention to you.  No matter where you, they have newspapers, tv, and many others venues to air your displeasure at the way you are being treated
 
Hope you feel better and sending many gentle hugs your way.  Fight for yourself, no one else can, they dont walk in your shoes.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/27/2011 10:24 PM (GMT -6)   
Hi Sue I'm sorry that you're in so much pain. (((((((((((hugs))))))))))) I sure hope that you can get the care that you're seeking from the hospital really soon. They need to get moving with that approval. I do understand you holding onto that approval process because that's the only thing you've got to hold onto right now "(

You take care and I hope you are having a lower pain night. Bless your heart.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 5/27/2011 11:16 PM (GMT -6)   
Hi Sue

I am so sorry to hear that your miserable. We are here for you and I am sending you good feelings

(((((Sue)))))) I hope your approval comes soon.

I will pray for you......Hang in there

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/28/2011 12:02 AM (GMT -6)   
Sue....
 
I'm w/ everyone else - sorry you are suffering so much.  I hope you can get the referral you need - and soon. 

Will keep you in my thoughts.  Hang in there....  Hugs, Tina

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/28/2011 10:42 AM (GMT -6)   
Thank you so much guys for the warm wishes and prayers, I really do appreciate them ((((((hugs))))).

NiNi53, 9yrschronicpain, Betsy rose and MoMto8kids thank you so much for the good vibes, prayers and well wishes, I really do need them at the moment. Pain is still not good today but its nice to have people to talk too. You are all stars and I hope you are all having a low pain day today.

I am in the UK which means they work in their own way here ( think they are Gods lol) and I have had problems with all my doctors helping me out, well that was until a stand in doctor seen me and referred me straight away for someone to check me over in the hospital. It had taken 3 years for that happen. I have been down the route of its just muscle pain, back locking up, etc and they had me doing physiotherapy which only made my sciatica worse, so they would not touch me till the pain went down. After that they started acupuncture still did nothing for me so they had to re think again. So then they put me onto a traction machine, well all I will say about that is OUCH! is was so painful but I carried on because they said it would help me (little did they know how wrong they were).

They then decided that another consultant should look at me, Woohoo, who sent me for an MRI scan.The scan when it came back showed what the problem was and the consultant said that they would refer me to a pain consultant and refer me to a hospital that deals with back problems like mine. Finally I thought I am getting some where at last.

The pain consultant was a horrible man on my first visit, but did change my meds and sent a letter to my doctor at home to make sure I got them. He also booked me straight away in for facet joint injections. So I started the new meds and waiting for the injection day. The day came around and I was very nervous as you can guess. I went into the room and the Pain consultant said I have looked at your MRI scan results as I have received them now ( I could not believe what I was hearing I gave him the results at our first appointment and he had not remembered) He said I am sorry but I am changing the procedure I am doing today to a caudal epidural injection as it is clear from the scan you have a nerve trapped by your discs and it may relieve the pain you are in for a bit. I am also referring you to ???????? hospital as they are specialists in this area. Of course you can guess how I felt.

So had injection, blood pressure dropped and it was action stations for all staff in the room. I was wheeled out on a drip and oxygen which shocked all the other ladies in the ward I was in. But I did recover well enough to be released to my Dad that day. The pain consultant was ever so nice that day and my Dad had a chat with him while I was recovering on the ward ( Dad still asnt told me what he said) I had to spend the night with my Mum and Dad looking after me just incase I went down again.

But all was great. I got up next day with no pain except for the injection site pain. I was loving it. But as the days and weeks went on I stated to get pains back and 3 weeks later the pain is back a lot worse than it was to start with. So I have decided that when I get any other appointments I am taking my Dad with me as he seems to give the doctors a little bit more of a push than me. So come on hospital letter get here quick will you and put the smile back on my face.

I am so happy that I have you guys to talk to here as it helps me to see that there are other people in the same boat as me and some can even help me out.

loads of warm wishes sent your way guys and ((((((((hugs))))))))))
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 5/31/2011 7:47 AM (GMT -6)   
hiya Pebbles

Dr has changed my meds now so I can a least get some sleep now, which I need. I have tried the heat and it does not work and I can only bare having ice on me for small amounts of time. I do get small amount of relief from it though. I am willing to try anything to be honest with you. I am like everyone else on here count the hours down to the next meds. I am sure I will get my letter soon and I am in a positive mood today. The sun is shining and I may even try and go out for a little bit. Thank you lovie for the gentle hugs, I send you some back aswell (((((hugs))))). I love it here as everyone is so thoughtful and always cheers me up. Thanks again lovie and I hope you are having a low pain day today.
xxxxxx
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.
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