I know I've been gone for a long time; since they were sending me home from the hospital back on May 13th. May 23rd has come and gone, and my unit is now activated; I'm still getting used to it. The big blessing is that they placed the wires so they can cover pretty much all of my body; from my neck to my toes. The down side is that to make the pain in my neck bearable I have to turn my unit up so high that all the muscles in my arms feel like they're contracting painfully. Mixed bag, eh?
I'm still in alot of pain. Alot. I'm on a muscle relaxant now and it does seem to help a bit, at least in my neck. I'm suffering from loss of mobility in my neck. I can't turn to the right barely at all, and I'm decreased to the left. I can look up, but I can't look down. I also can't reach back and put my hair into a ponytail without excruiating pain. Seems like everything I do causes me no end of grief to my neck. For the first week or so I had to walk with a cane. Between being super dizzy from the meds, the loss of the mobility caused me issues as well. I still have to fully turn my torso to look at people, or see what noises are being caused by. It also means I can't drive. The few times I've driven, just around the neighborhood, it's been awkward not being able to look around. I leave my unit on, even for sleep, and it makes my toes tingly because of the range I've got; I think some fine tuning is in order as more swelling goes down and I continue to heal.
Sitting is also an uncomfortable experience, as well as sleeping. Primarily I sleep on my left side. These last few days I've been able to sleep on my back a bit, provided I use the right pillow beneath my neck to keep it from hurting or causing a migraine the following morning.
I'm pretty dependant on my family to help take care of me, and in the last week my neck pain has gotten worse; it's only one sided at the junction of my neck and shoulder on the right, and down to the scar at the nape of my neck.
The doctor's telling me the surgical sites are healing nicely, but the pain has me scared. The ways things are now I'm never going to ride again. I've hit another bout of depression that was so bad for a few days I could have sworn I'd missed my daily dose of anti-depressant. I felt worthless, unwanted, unloved (I broke up with my boyfriend, especially after he told me why he never visited me before or after my surgery, nor didn't even bother to call to check on me), like I'm a burden. I watch my father bust his butt in the yard working to get the ground re-leveled so we can try again to get the pool up.... and I can't help. The other day my pond filter sprung a leak, and trying to fix it had me in so much pain I was useless for the rest of the day and just napped. I hate not being able to do anything, I hate not doing anything more then sitting on the couch taking my meds and trying to ignore the pain as I try to find a comfortable pose to sit or recline in. And if I over do it (like the shopping trip to the mall my Mom took me on) I pay for it quickly; my head feels so heavy it hurts just to hold it up. I fear my neck will never recover and that my CRPS will use this as a chance to take up residence. It's not unheard of, it just means giving up more of my life to my pain.
With the unit on I'm getting relief in my hands (yes, both) but I'm not really getting any in my neck. If I want it in my neck I have to turn it way up, but that means the rest of my body feels like it's cramping.
Anyway, I've exhausted myself typing, but I just wanted you to know how things were going. Don't expect alot of activity from me as I continue to heal. Besides, numb fingers making touch typing complicated.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Have seen several specialists; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 finally diagnosed CRPS - Stage 2
Permanently disabled, on Oxycodone, Celexa and Zaniflex.
February 2011 successful SCSU trial
May 2011 SCSU implanted