Just venting..can't take much more

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luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/1/2011 5:24 PM (GMT -6)   
Hi,
Just home from work. I just don't know how much more of this pain I can take...it really is so new per say...maybe got my diagnosis less than a yr ago...had the injection that kept bad pain away for 4mos and now its just there all the time. Sometimes the break through meds help during the day to take the edge off but, this is horrible...and no one outside of here gets it, or understands at all!! Then I leave work and pick up my 5yr old who just had no understanding of all this, and wants to go to the pool and the park..I feel so bad for her. But I can't do it! And she won't let up for nothing!! I really can't take much more!

 

Ok, I am done...breathing, counting to 10...

 


Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 6/1/2011 6:23 PM (GMT -6)   
Flower, I'm sorry you're having such a bad time right now. It's hard when nobody understands, and I can't imagine how difficult it is for you trying to keep up with your work, your kids, while being in such awful pain.

*gentle hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/1/2011 6:28 PM (GMT -6)   
Luckyflowers....
 
I'm sorry you are suffering so much.  It's a struggle, I know.  While CP affects all of us here on the board.... you'll hear a common theme among the moms here who struggle - trying to deal w/ pain issues, work/life, kids and so forth.  Having to say "I can't" to your child is hard, I know.... I've had to do the same too many times to count. 
 
It's taken me a LONG time... but now I just try to accept how it is - and know tomorrow will be a new day.  There are many days when I can't do the park.... but I can sit and color, snuggle w/ a book or just lay down and talk. 
 
Anyway, I can empathize w/ how you feel - and I hope it gets better.... Hang in there. 
 
...Tina

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/1/2011 6:37 PM (GMT -6)   
Laura-Thank you for your kind words...they help just to know someone is on the other side of all this...not saying well, just change your attitude and everything will work out...so much harder than that!


Tina-Thank you! knowing that you have been there done that is a comfort but I feel so bad that your going, and have gone through that as well. It in its self is a whole different pain...
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 6/1/2011 7:41 PM (GMT -6)   
Luckyflowers
Keep on trying. Keep searching. Keep asking docs to try something else.

I got good relief from my first spinal injection, then I was in a wreck and it all got worse. Subsequent injections gave no relief or not enough for a long enough time. Recently the pain doc gave me a caudal injection which was wonderful. It hurt for a week, but the sciatica is gone again. He had just asked me if I was ready for surgery, and I had replied, not yet, so he tried the caudal. Tramadol dulls my disc pain, but doesn't make it tolerable by itself. I take Vicodin after surgery, but get used to it after a couple of weeks.


I've got shoulder impingement with bone spurs. I had physical therapy which made it worse. Three injections were wonderful, but they only lasted a few weeks. I can't have surgery that's been recommended by two docs for a few months, because I have to have sinus surgery next week. I kept on searching for exercises and found one where I turn my hand palm up and atraighten my arm and pull it back a little. It turns the head of the humerus (long bone in the upper arm) and stops the pain. It only works for a little while, but I can live with that because it keeps on working when I do it.

I've tried every medicine for fibromyalgia muscle pain, some twice and am currently getting a little relief with tramadol. It's better if I take it with Tylenol. I tried stronger meds, but they don't work for me on the muscle pain. My doc recently gave me Topamax. I'm trying it, but at a half dose because I'm scared of it. So far I can't see it does anything at all.

I'm not quitting. There are combinations of meds and treatments I haven't tried yet.
Alcie
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/1/2011 7:48 PM (GMT -6)   
Alcie,
Thank you...I am sorry to hear of everything your going through...I just called the Dr so I hope to get a call back tomm.
If I may ask, what are you taking the Topamax for? I know that it has multi uses but I take mine as a preventative for migraines..
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 6/1/2011 8:06 PM (GMT -6)   
Alcie, good luck with the Topamax. I take it for my CRPS (neuropathic pain) and it's mostly been good for me. I haven't had too many side effects with it. I have 75mg twice a day along with my oxycontin and my mobic, and for me that combo has made the difference between being bed/wheelchair bound and being able to get around my house on crutches some days.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 6/2/2011 8:34 AM (GMT -6)   
I'm not really sure why I'm taking Topamax. I think it's for chronic pain - fibro, discs, slipping ribs, shoulder impingement, long list. But I also have a chronic headache that is supposeded to be because of blocked sinuses, for which I am having surgery next week. So far it hasn't done anything. But then, I'm so scared of the reports of side effects, and I usually get everything available, that I started with 1/4 pill at night, have only gone to 1/2 pill this morning. I was SO scared that even though I filled the Rx, I didn't take it for a month. I'm hoping it will help mood. I see the pain doc Monday, shoulder doc Tue, nose doc Thurs for surgery.

Don't feel sorry for me. I come here for answers, not pity, and I do get some. I search the back posts and find lots of information on drugs, conditions, exercises, websites, etc. I don't want to just stay in my own little pity-party. I'm fighting tooth and nail to get relief. I've got work to do even though I'm officially retired. If it wasn't so darn sunny I'd get off the computer and get some more mowing done. I'm waiting now for a guy to come to give me an estimate on wood for the house and lift the diesel can up onto the tractor.
Alcie
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/2/2011 7:26 PM (GMT -6)   
Thanks Paula,

The bad thing is that most days if I make it all day at work when I get home, I can't do anything but take meds and lay in the bed...
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16793
   Posted 6/3/2011 6:44 AM (GMT -6)   
Hi Lucky, maybe its time the dr changes up your treatment plan if things are as bad as you describe. You have an active life compared to many people that suffer with CP just from the working angle itself. I do not doubt you one bit either on feeling bad, CP can take the best out of anyone.

It is tough for moms to handle children and their activities after working all day. I can't imagine adding CP to the mix. I am guessing to look at you no one would guess you have a medical condition, that is the way it is with most. Unless people see blood and guts running they don't get the big picture. Sometimes, I don't understand CP, and I wonder how I can make someone else understand if I don't.

Seriously consider talking to your dr about trying to change some things up to give you some better relief. By chance have you had the nerve ablation by radio frequency done? This was the only thing after 16 yrs of battling neck pain that gave me relief. I did years of trigger point injections and about all that did was build up scar tissue. I have disc herniations at two levels, C5-6 & C6-7. I would like to have half of the money back for all the failed treatments done on this old neck, lol.

Hang in there and just take it a day at a time. Sometimes its moment at a time.
Moderator Chronic Pain Forum

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/4/2011 7:59 PM (GMT -6)   
Hi and thanks...Dr did change up the meds and I have posted an update! I so agree about taking moment by moment sometimes..
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.
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