Pain Dr. referring me to another Pain Dr?????

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mary3
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Date Joined Jan 2011
Total Posts : 35
   Posted 6/2/2011 11:12 AM (GMT -6)   
I have been seeing my Pain Dr. for about 2 years now, and I just love him, he and I have a wonderful relationship, BUT, for a while now my pain just cant get under control. I have been telling him that what I am taking is NOT working. I have been taking 2 80 mg Oxy's a day, and 4 Percocet's for BT, a day. I also take, muscle relaxers, actually just 1, topomax, celebrex at night.  On our last visit, he asked well, how is your pain? My reply, I am tired of not getting any relief, I cant just keep getting refills and never see a difference in this....He agreed and said, I care too much for you, you have hit your ceiling with where I am comfortable, and I am going to refer you to another Pain Management Doctor who can write you prescriptions that are stronger. ??????? My doctor specializes more in procedures, and says he is just at his limit with what he can write with me. I was floored, and upset, but, I am willing to try someone else if it helps with getting relief. I am not on the right meds, I think we both know that, but, I am not sure what else I can be on. What else is there? I have tried, methadone, that doesnt work. I have tried the patches, those dont work. I have tried morphine, that doesnt work.
 
I am so confused. He told me to look at this as a consulation with this new doc. maybe there is a new drug out there that he doesnt know about....or maybe the pain pump is where we should go....that his door is always open to him, to come back. He told me that only 'model' patients are referred to this particular doctor, so I must be doing something right...:-) Has anyone else had this happen? If so, what treatments, did they do for you, and did it help? I know every case is different, just curious!
 
I am so tired of hurting. Thanks for the feedback. I pray for you all daily to get relief.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/2/2011 12:15 PM (GMT -6)   
Hi Mary....
 
Over the years, before making it to my current PM doc, I've had similar things happen.... I *think* - from what you've shared - that your doctor is just as frustrated as you w/ not being able to control your pain... and perhaps is referring you to this other doctor to see if he can offer some new ideas.  I think the most positive thing is that your doctor isn't just referring you to another doctor - but also is telling you the door is always open for him, too.
 
It can't hurt to see a new doctor w/ some fresh ideas - especially if you are having uncontrolled pain.
 
I'm sorry, I can't remember what your pain issues are - but have you tried other things, too, along w/ the meds - nerve blocks, injections, etc?
 
Is the tompamax working for you?  To get my pain stabilized, it also took finding the right meds to go along w/ my narcotic meds (muscle relaxer, nerve pain, etc).
 
Anyway, I think your doctor is truly trying to help you.  I'd try going to the new doctor and just exploring the possibilities.  See if you like the doctor and feel comfortable w/ him.  You can always return to your old doc.... but maybe this new one will be the key to you find pain relief!!
 
--Tina

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/2/2011 12:34 PM (GMT -6)   
I totally agree with Tina..and how wonderful to have a Dr that cares like that. Seems at this point it can't hurt. Sometimes we all see things with a different "set of eyes". Good luck and let us know what happens.
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/2/2011 1:29 PM (GMT -6)   
Thanks for the feedback, and yes, you are so right....its nice that my pain doc and I have a great relationship to be able to be so open with each other. When I found out that I had chronic pain and this would be a lifelong thing, he and I are the same age, and he grabbed my hands and said, " I will NEVER leave you, and we are in this together!" What an angel I had before me!!

I will give you the short version of what I have... I am 38 years old. I had a fusion on my L4-L5, that should have been simple, BUT, after complaining of excruciating pain after the surgery, in my back and my legs, which I never had pain in my legs prior to surgery, the surgeon kept ignoring me, and said, its part of the fusion,,,, anyways, a year went by, and many tests later they found that I had extensive nerve damage, and all the pain I was having was from my L4-L5 and my L5-S1 herniated as well. I saw a team of 12 doctors, neurologists, spine doctors, hip doctors, you name it, I saw them, and finally they came up with...the nerve damage was so intense that the nerves never went back to their proper home , so to speak, after the surgery. They are running in to each other, sitting on top of each other, etc. which is why I have horrible leg pain! I have bursitis now in both hips. Degeneritive Disc Disease. Failed Back Syndrome. Peripheral Neuropathy.

SO, I just cant seem to get out of pain, and I dont know why. With the Oxy's, I take 1 in the morning, at 5, and by 8, I am in horrible pain again, and thats where the problem lies. I dont know why that is not carrying me through.??? So, I have to hold out until around noon, to take my BT meds, and then, around 4-5 p.m. another Oxy, and then at 7, I am still in pain, but, I have to hold out, because I only have my 2 Perc to go until the end of the day.....I just wish there was a medicine that was strong enough and that would work longer!!

At this point, I dont know if the Topamax is working...I am truly grateful that I am with pain management, and that I have meds, what I have is better than nothing , I do know that. I am looking forward to seeing the new doctor to get his opinion on where to go next. This guy is apparently very good. My doc said when they go to their seminars, this doc is the one that teaches those seminars, so I hope that is a good sign.

I appreciate the feedback again. I am so glad there is this forum to come to , to ask questions, and to get support from others going through similar things.What a blessing!!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/2/2011 1:43 PM (GMT -6)   
 
 
          Hello mary!
 
                  I would like to respond to your post here, but first I have a question! Is the Oxy's you are refering to Oxycontin or just oxycodone IR type...made for 4 to 6hr relief? Once I know the answer, then I would like to respond to your post. Am I correct in that they are giving you only two hrs of relief? 5am to 8am? for the Oxy's?
 
       You and I have very similar story's here, and I would like to share with you.
 
 SE
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mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/2/2011 1:50 PM (GMT -6)   
Oh, I cant wait to hear.....

I am on Oxycontin 80mg....time release

Its to carry me through, but, its only lasting for a short period of time. Please tell me what is your story!!

Thanks for posting....my eyes just filled with tears, that there may be someone else out there like me.

Thanks, SE!!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/2/2011 2:00 PM (GMT -6)   
 
 
        Hello Mary!....I'm almost off work here, but promise I will respond a little later this evening. Now that we know, a little more about your condition and your pain med intake, some of the members will chime in here with suggestions. I'm not going to leave you high and dry though, and am willing to bet that your in drastic need of a med change to something completely different, than what your currently taking. The new PM sounds like he will be a good fit for you, and I bet he will make a change in a big way. 80mg X2 and no relief in a threehrs time? WOW...and BT on top of that? WOW! This must have been going on for a long time, to be this far off. shocked
 
    Hang in there! I will visit with you in a bit.
 
 SE
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 6/2/2011 2:07 PM (GMT -6)   
Mary....

Thanks for giving us some more info!  I'm 38, too.... And, yes, I agree - it's great to have a good relationship w/ your PM doc.  I have the same type of relationship (though it took MANY horrible experiences to get to him!). 
 
Re: your meds - yes, I agree - that your ER med should last longer than 3 hours.  And, if you are taking your breakthrough meds on a daily basis, at the exact same time - they move from really being a BT med to being part of your daily load (does that make sense?).  It took me a long time to figure out that was happening to me.  So, my ER med got upped.  And, now I have breakthrough meds that I truly use for BT pain. 
 
Anyway, let us know how the new appt. goes... I sure hope you can find something that will help your pain better.
 
--Tina

mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/2/2011 3:42 PM (GMT -6)   
Thank you SE...Yes, looking forward to hearing more!!!

Tina, Yes,
I have to agree with you all when you say,,,,BT meds for BT.....I just take them to get over the hump, but, they dont do jack crap!!! I definitely need to get changed, but, I just cant wait to find out, and its a scary process to find out what will work, if that makes any sense. Its like, what I am on isnt working, but, trying new things scares me to death, because what if THAT doesnt work either.....I dont know, I am always trying to have a positive attitude, but, as I told my husband before my last appt. with my doc, if this is what life is going to be llike for me, well, I just dont know how this is going to work out! I am not expecting to be out of pain, but, this is ridiculous. They said it could take up to 2 months to get in with this other doc, praying that is not the case.

I just so appreciate you all responding....truly makes me so happy! Thank you!

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/2/2011 6:52 PM (GMT -6)   
Hi Mary

I am sorry that your meds aren't helping your pain. I hope that it doesn't take 2 months to get in with the new doc. That would be hard to do. I wish you good luck on getting the appointment sooner rather than later. The new doctor could be a really good idea since he teaches others at seminars. He sounds like a really good dr. I am on the Fentanyl patches and oxycodone for breakthrough pain. They work pretty well for me. That may be something that the new dr tries.

I hope you have a low pain night.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/2/2011 9:59 PM (GMT -6)   
Thanks Loretta, for your reply...

I have tried the Fentanyl patches, 50 and 100's , they did not give me any relief. I was so hoping they would. I had heard that many people do, and then you are not waiting on a pill to kick in and absdorb into your system. I am so glad they work for you.

I will definitely let yall know what he decides to try out once I get in to him.

If anyone has similar experiences , please let me know, its great to hear from others.

Thanks again.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16303
   Posted 6/3/2011 4:10 AM (GMT -6)   
Hi Mary, I wanted to pop on and also say I think you have a great dr. He is doing the right thing by you by trying to get further help rather than leaving you in a situation where there is no relief in sight. My prior PM dr did nothing to change up my treatment plan the last two years I was his patient and I was just like you miserable and in horrible constant pain, I had a pain pump implanted and should not have been in that situation either. He quit PM thank goodness, went back to being an anesthesiologist and referred me to my current PM dr who is awesome. My current dr was shocked when she looked at my medical records and saw that my pain was off the charts but he had done nothing to change my treatment plan. Her words were not only was my pain under treated, but as a patient I was under treated too. She said you never do this to a patient, you should try different medication, dosages and other modalities to get some relief.

You may have developed tolerance issues with your pain meds that is something I am wondering about. It happens more than you realize with people. I know its very frustrating but all you can do is take it one day at a time. Keep us posted.
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mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/3/2011 6:19 AM (GMT -6)   
WOW!!!! I am so happy that I posted now on this subject. Honestly, you start to feel that you take too much meds, but, you know that to not be the case, but, thats how they make you feel. Yes, he does care for me, and I know that, I just wisn it hadnt come to this, it being this long to receive help. I have been begging him for months for help, and thank GOD he's listening now, but, gheesh, I have sure gone through a lot of pain!

Straydog, you and I had talked before about a pain pump. I am glad that we did, and I am glad I have stood my ground so far with this doc and decided against it. That is my last resort, not a 'quick fix', so yes, I am looking forward to my visit with the new doc to see what he says. I am very thankful for my current doc, I think he knows what he is doing, I just think that my case is too much and he doesnt know what to do with me. For that, by all means, send me off to another person that can help me, please, I am miserable, I need relief!! Should you have not gotten the pain pump, when you went to the new PM, had you already had it implanted? Are you happy with it?

Tolerance, yes, by all means I have built up a tolerance!!! I , so agree with you there!!

Again, THANK YOU!!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16303
   Posted 6/3/2011 6:55 AM (GMT -6)   
Mary, I have a very wacky system when it comes to medications of any kind. I have major tolerance and full blown allergic reactions issues, I once became septic on one of my blood pressure meds and spent two weeks in the hospital. Fortunately, I had a very wise old dr that knew what was going on and he said the odds of that happening were like a million in one and he said naturally it would happen to you, lol. With me we literally ran out of pain medications to use and the pump was the only thing left because you have such a wide variance of meds to use in one.

I have had my pump since June 2005, my prior PM dr is the one that recommended I go that route. I said no at first, I was shocked, I refused to believe there were no more meds to be tried, I think its really called denial, lol. He was ok with my decision, he said in 3 months you will be begging for the pump and he was right. Oh yes, I am very happy having the pump now that I have a dr that knows her business with the pumps. That is the key to success with a pump, you have to have a dr that knows everything possible about them and they must know all about the medications that can be used and the dosages. Without those three elements the pump will be a failure and let me tell you there are a lot of failures because drs do not know everything they need to know, they want you to think they know. My current PM dr only handles patients with pumps nothing else and she is very selective in patients she takes on. She reviews records for the past two years before she even gives an appt for a meet & greet, lol. But, she is also the top pump dr in the state of Texas. What is amazing with these pumps there are not that many pump drs out there like you would think.

You know I am on less medication than what I took orally which is another good feature with a pump. The pump meds are in a concentrated form which is totally different from orals meds. These meds are pure making the medication much stronger but in a smaller dose. When quality life issues are being jeopardized and the pain is out of control and there is not going to be any relief in sight the pump is an excellent option. I would not be surprised if this new dr does not speak of the pump to you, you would probably be a very good candidate for one considering the nerve problem. I am not sure why you are against a pump but I can assure you with the right dr in your corner you can get a lot of your life back and not be in excruiating pain 24/7 and yes, be able to function at work. I drive a car just like I did before, my head is clear, I don't walk around loopy or anything like that. With oral meds you have to wait for them to kick in and some will give off the loopy feeling for a period of time. People have no clue that I have a pump unless I tell them. Very few know that I have one, mostly folks here at the forum. I know when I did the trial I truly thought I had died and gone to heaven because it had been so long since I had been pain free. Of course the trial is totally different than when it is implanted because they start everyone out on the lowest dose possible. You will know when its time I hope, just don't miss too much. Its not worth the pain.
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straydog
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Date Joined Feb 2003
Total Posts : 16303
   Posted 6/3/2011 7:19 AM (GMT -6)   
Mary, yes I do respect and admire your dr for having the guts to admit this is over his head. It takes a very good dr that is willing to admit to that. Its a shame there are not more like him out there. That is a sign of a very good dr and he truly has his patients interest at heart.
Moderator Chronic Pain Forum

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 6/3/2011 7:48 AM (GMT -6)   

 

         Good morning Mary!

              Sorry I'm late getting back to you, but I was tuckered out by the time I got home, and hit the sack shortly after supper.

          As you can see you have stumbled upon a great forum here, and the members have already reached out to you with warm and friendly responces.

     I also had a lumbar fusion on March of last year, and have admited to those ugly words we hate to admit, of a FBS (Failed back syndrome) complete with nerve damage. Although, my pain does not run down my leg like your, its more broad based across my lower back. Am I better?...well maybe somewhat, and maybe mechanically fixed, but none the less, I'm still suffering pain. Med's? Yep!...I too was behind on them, and had to keep on my PCd to get me where I needed to be.

        You sound like you, have tried several med's, with little success. However, I think once you get to the correct PM Dr, you will have much more success, if he knows what he is doing. It does sound like you did have a good one, but he was more of a injection type of a DR.

        By no means count out the pain pump! Yes it is a last resort, but once you are out of options, please do consider it, as many have done very well with them, and as Straydog said, more than likley, it will take much less of a dose to get you some relief.

         I see so many people taking BT med's as their base line med, and if you are a long term patient needing around the clock pain med's, then I believe you should be on long term Medication for it, and the BT should only be used as needed for a flair up.

         We must also realize that being treated for pain with medication does not mean that one will be in total relief 100%, and I'm afraid many keep jacking up their medication at their request because they still suffer some type of pain. This can only lead to a much higher tolerence much more quickly than they had planned on, and before you know it, there is no room to go up on the dosage.

       We also see more and more PCd scripting med's as the PM offices are under tight scrunity, and many of the PCD's are just in over their heads on how to treat their patients. While my Dr has treated me well, I do believe he is not up to par, and does not have a handle on it for long term care. At the moment I'm on a pretty low dose of med's, but if I need to increase much more,.. than I will request a PM, only if he will send me to a good one.

    I think that is key for long term care, and should be carefully considered, before getting into trouble mediacation wise, and the high tolerance issues. You, know as well as anybody, what it feels like to be on the down hill side of you're med's, and its not a fun ride at all, especially if your on BT's instead of the ER med's.

         It looks like you are headed in the right direction, and at least you have a good current Pm, willing to take you back and maybe help you in some other way, if things don't go well.

      Several of the members here, have given you excellant advice, and I hope you continue to visit us, and let us support you. We can always use support here as well, ....so jump right in there and help support the members when you can.

          Take care, ...and its a pleasure to meet you!

       SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 6/3/2011 7:52:59 AM (GMT-6)


mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/3/2011 8:44 AM (GMT -6)   
Thanks everyone, WONDERFUL advice, and WONDERFUL encouragement.....

Let me tell ya why I am holding out on this pain pump. My current doc has been wanting to implant one for some time, and I have been the one to say, NO! My family is supportive, and my head just wont get me there. I have heard wonderful things about them. My fear is this....I had the trial done for the SCS, and it should last around 7-10 days, mine lasted a day and a half....only because the tubing in my back messed with my nerves so much, that they think that the nerves were running in to it. I am scared to death, to mentally go through another failure. That is my last resort with the pain pump. Surgery cant fix me, the SCS, didnt work out, which felt great on my legs, but, felt awful on my back, FAILURE!, AND now, I dont want to fail with this...is that a dumb way to think? I dont know, but, thats how I feel. It could go great, and then, I would be wondering why I didnt get it sooner, but, its the fear of another thing going wrong.

So, my husband and I have talked about it and if this new doc says he thinks I should get the pain pump, then I will do the trial. Or, if he thinks I should be on different meds for now, then I will. At this point, I am willing to try ANYTHING., ANYTHING!!!

So, to answer your question, I hope I have, I am just scared of failure.

I so appreciate you all. Means alot to hear feedback.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/3/2011 9:11 AM (GMT -6)   
Mary,
 
Just a quick note to tell you I do understand your fears and thougths re: the pain pump.  It's very similar to how I feel, too.  In my mind, I hold that out as  a "last resort" - and, like you, what if it doesn't work out?? (I've had a successful trial but had many complications).
 
That being said, my oral meds are now stable and holding me.... so I don't have a reason to push past the fear.  If they weren't working, I'd probably reconsider :)
 
Hang in there! --Tina

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/3/2011 9:16 AM (GMT -6)   

 

         all I can advise you to do, is to be patient, and lets see what this new PM says. There are many, many med's that they can try. Have you tried "Methadone" yet? Several of the members have had very good results with it! ...a bugger to get started on, and a bear to come off of if needed....but it might be worth a shot for some good relief.

     I understand the worry over failure, but please don't let that take control of your mind. Be as positive as you can be, and open to options when presented to you. I have several friends on the pump, and almost in every case they are very pleased with it.

       Let me ask you a question! Other than suffering withdrawls....if you were taken completely off your meds, whould you be suffering more pain? I ask this, because you state that you get no relief at all on your current med's...and wonder why you are still taking them. I think same way every once in a while, but am quickly reminded that they are really working, but not to the point that I'm comfortable with at times. It may be just a simple dosage adjustment, to get you to where you need to be for some comfort. While you may think your dose is high, I do know several members taking quite a bit more than what your on at the moment. Also it may be a matter of a different combination of med's that is needed.

     Hang in there, and remain positive....your on a good track to get some help.

 SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 6/3/2011 9:42:07 AM (GMT-6)


mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/3/2011 3:46 PM (GMT -6)   
Yes, I have stated before.....I am glad I am on something, because if I wasnt, I would be screwed. I know they are doing something, just not enough!! I know this is a simple medication change, or another doc telling me its time for a pain pump. Yes, I have tried, methadone, and it did nothing for me. I dont recall saying my dose was ever a 'high' dose....

Paula, thank you very much for your words of encouragement, I really appreciate it. I , again, am blown away by everyone's support on here. I am so glad I found this site.

Thank you all! I will let you know when I get the call from the new doc to come in. Prayers to you all.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16303
   Posted 6/4/2011 11:16 AM (GMT -6)   
Mary, I totally understand you when you speak of failure, thats why I have a pump, I failed everything that was handed to me. Some 20 yrs ago when I first started getting treatment for my back if you really want to call it that, lol, it was bedrest, then a week in the hospital here and there for constant 24 hour traction. I have had so many injections in my neck and back that there is actual scar tissue built up from doing this. Took a lot of shots to get to that point, lol. I use really get upset over the medications being a failure that my poor drs were hated even to tell me we are going to try one more. I wasn't sure if mentally I could handle anymore failures and they weren't either. I finally had to just change my whole way of thinking or else I was not going to make it and I knew this. I am not surprised the SCS was not something viable for you either.

Keep in mind when a person has a pump recommended it is for people that have failed at everything else. The dr explained to me with a pump there is more access to medications that are not available in pill form and again with it being in a concentrated form it is a totally different ballgame. There is also the option of using so many different combinations of medications together in a pump that you can't do any other way either.

I do hope when you see this new dr he can come up with either an adjustment or maybe a complete change of meds which will do the trick. You do have to remain hopeful no matter how hard it can be at times. I dol suggest that you visit Medtronics website if you haven't already and at least read about the pumps. They have the most informative site of any that I know. The better a person is educated the better they can advocate for care. Take care and I am keeping my fingers crossed for you.
Moderator Chronic Pain Forum

Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 6/4/2011 11:35 AM (GMT -6)   
Mary,
 
You say surgery can't fix you.  Are you sure?  Sometimes, going back in and seeing what is there, (things that you cannot see on tests) may just be the solution.  I have only had one back surgery, but that was after a chymopapain injection to dissolve my L4-L5 disc had still left me in a lot of pain months earlier.  I had myelograms, and ct's and x rays, you name it, but it wasn't until they went back in that they found the nerve was red and inflamed and tethered by scar tissure.  The sciatic nerve was in bad shape.  Plus the foramen had to be enlarged to let the nerve pass adequately.
 
I am not an advocate of surgery, mind you, it took my four years of excruciating pain and being bed bound before I agreed, but I'm just saying, maybe ruling it out is not a good idea.  Maybe seeing another neurologist or orthopedic guy might be the answer.  There are some good ones still left.  I lean toward the Neurosurgeons, but thats just me.
 
Take care and I will pray for you, Mary.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/4/2011 3:47 PM (GMT -6)   
Hi Mary, I just wanted to say hi and welcome. I sure hope that your meds can be straightened

out for you and that you get some relief. So sorry that you are suffering so much.

I know how you feel when you say nothing is working and being scared that no meds

will ever help you. That is my position. I have had constant severe headaches for more than

ten years and after trying all medications, trying several forms of treatments and seeing every

kind of doctor I am left with nothing to help me with my pain. I certainly don't want you to be in

my position, that's for sure. I want you to feel better Mary. For myself I only have ice packs

that help me get thru my day. So it's one day at a time.

Hang in there Mary. You are in my prayers.

Suzane

mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 6/4/2011 8:04 PM (GMT -6)   
Straydog, that makes so much sense, and I appreciate you taking the time explaining that to me. Yes, I have heard and read that the pump , as far as medication, can be a dream come true! That is waht the doc was trying to tell me as well, that the meds can work so much faster, that they would play around with the meds to see what would work...but, that it would work so much better. I guess my thing as well is , my oral meds arent working , so whats the point of going through the surgery with the pump.....BUT, I am now having a positive attitude.:-) You truly have helped me to feel better, I appreciate that!!

Suzane, that is just awful!!! How miserable for you. Prayers for you that you get relief soon!!!!

chelsey1984
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 6/4/2011 8:22 PM (GMT -6)   
my mother had a pain pump for a long time she loved it but because of her IBS they had to remove it, im on this web site because i just injured my L5S1 im hoping to get some answeres myself about pain management
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