Chronic pain.. Help

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pal4
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/3/2011 2:36 PM (GMT -6)   
I have strange disease. I am mid age male. Firstly, when I was in teen, I developed abdominal pain for many months. After 1-2 year, the pain transferred to my chest in both sides and body would get hot. No more abdominal pain. The CT chest was normal. After some months the pain transferred to my head and scalp and then to abdomen again which was different. After like a year the pain transferred to sinus with sinus infections and then to upper back. It occurred in both side of the body. All these pains happening in one region at a time is the same disease. The pain is chronic and debilitating and undiagnosed.

Some years ago, the pain transferred to abdomen again all the time until now. The nature of pain was different than previous occurrences and slight different regions. The chronic pain is always staying on, dull aching, starts being very worse by carrying heavy things, driving(using steering force), walking long and then body gets hot, temperature below 99F. The worseness would stay on for many days, weeks after the stimuli occurred and hinders all activities. It is on lower abdomen on right and left both sides at the same region. Stools are normal. I have been done CT abdomen/pelvis, UGI, Colonoscopy, Upper Endoscopy, MRI spine but all test result normal. I have been eating antidepressents, but does not help for the pain. My blood tests are normal, CBC, WBC normal, liver/kidney function blood test, chemistries normal. My thyroid test, C reactive, ESR normal. My EBV Ab IgG high, EBV IgM normal. Lyme IgG/IgM equivocal. My urine test normal. I have been to various doctors. But the problem is not found yet and I have no solution.
Is it some kind of toxins that the body could net get rid of or is this something else? Does anyone have the same problem? Please help…

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/3/2011 8:17 PM (GMT -6)   
Hi Pal4

Welcome to the forums. I'm sorry it's pain that's brought you here, but hopefully you'll find some answers or get some ideas that might help.

Have your doctors considered that there might be some type of nerve damage going on? Have you had a brain MRI? You might ask your doctor to prescribe something for nerve pain, like Gabapentin (Lyrica - pre-gabalin). It's worth a shot, since you've pretty much exhausted anything wrong with specific body parts.

I hope you're able to find something that helps your pain. You might want to consider going to a Pain Centre to learn how to live with chronic pain - it does help when you have various tools at your disposal to distract yourself from pain, etc.

Keeping you in my thoughts and prayers,

Pam
DX: Fibromyalgia, Severe Myofascial Pain, Osteoarthritis in ALL my joints, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Type 2 Diabetes, Reynauds, Visual Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramadol, Tramacet, Cymbalta, Cesamet, Flexeril

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 6/3/2011 9:23 PM (GMT -6)   
I agree with Pam. I think an MRI of the brain wouldn't hurt anything and maybe even something like an EEG. Also it might be worth seeing an allergist and getting tested for some kind of allergy or hyper sensitivity to pollution, pollen, mold, etc.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/3/2011 9:50 PM (GMT -6)   
Pam.... Hi!  So good to see you here!!
 
Pal4...  Welcome to the board.  I'm sorry you are suffering w/ pain issues, though.  I don't really have more to add; I'm w/ Pam and Jim that some further testing via MRI, etc. might show something.... as well as going to a pain clinic.  Hopefully you can keep working towards finding a diagnosis, but in the meantime - maybe a doctor or pain clinic can help you find ways (via meds, procedures, etc) to help deal w/ the pain.
 
I wish there was more I could say to help.... but I sure wish you well and hope you can find out what's going on. 
 
Take good care.  --Tina

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/3/2011 10:13 PM (GMT -6)   
Hi and welcome...I am new here as well...I have nothing to add but am sorry to hear that your in pain and hope that you can find some sort of resolution.
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, percocet, norco, xanax, sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 6/3/2011 10:47 PM (GMT -6)   
Hi Pal and welcome to the forum. I don't have anything to add but I wanted to send you well wishes and I sure hope you can find something to help the pain you are going thru.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16800
   Posted 6/4/2011 1:42 AM (GMT -6)   
Hi Pal and I too would like to welcome you to Healing Well's chronic pain forum. Wow, it sounds like you have done some of the usual gambit in ways of testing and good news all is normal, however, that has not helped anyone be able to get to the root of your problem. That in itself can be so frustrating and nerve wracking.

My only thought would be to obtain copies of all of your medical records for treatment connected to this and contact one of the teaching hospitals that is the closest to your home and get another set of eyes looking at things. Sometimes those drs are able to find things missed by others, its worth a shot at anyway. If you will look at the top of this page in CP101 you will find a list of the teaching hospitals and perhaps there is one close to where you live.

Anyway, wanted to pop on here and tell you welcome aboard.
Moderator Chronic Pain Forum

Natural pain control
New Member


Date Joined Jun 2011
Total Posts : 1
   Posted 6/5/2011 5:10 PM (GMT -6)   
Hi pal4!

I'm sorry to hear about your pain. I agree with msbunky and the others that maybe the source of your pain is your nervous system. Hopefully a pain center or MRI will help figure it out. In the mean time I'm an advocate of finding ways to help manage your pain yourself, particulary by reducing stress. A good book on the subject is Managing Pain Before it Manages You by Margaret Caudill MD. Also there are CDs to walk you through relaxation techniques, like Progressive Relaxation and Autogenic Training by Carolyn McManus PT. I hope this can help you feel a little better. Good luck with finding the source of your pain!

Kelly

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16800
   Posted 6/5/2011 5:34 PM (GMT -6)   
Hi Kelly and welcome to Healing Well's chronic pain forum. Since you are new to the forum I am going to ask you to start your intro post here so all of our members can see it and give you a proper welcome aboard. By posting on another persons thread not many will see it and be able to welcome you properly.

Again, welcome aboard and hope to see more of you.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/6/2011 1:19 AM (GMT 0)   
Hi, I am sorry also to here about your problems, I agree with everyone else, keep on until you find what you need to help.
 
Hoping you get the help you need, will be praying for you.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

pal4
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/6/2011 11:33 AM (GMT -6)   
Thanks everyone for all of your support. I had my CT of head  and EEG done like a decade ago which was normal. I will ask physician if MRI will be different. I will check up on insurance coverage for teaching hospitals. I will check on pain relieving technique.
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