neuro stim is scaring me

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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/7/2011 1:56 PM (GMT -6)   
My neuro stim, which is in my right side of my back, not very deep at all, and has never worked.  That is not the problem, I have delt with that, it never worked since it was installed May 2010.
 
My doctor said leave it in, it wont hurt anything.  Well I sat in one of those gray folding chairs, you know the ones they use when your kids have an event at school.  I went to get up from the chair and it caught on the stim, it pulled me back down into the chair.
 
This happened to me twice, now I am extra careful when I get up and down or out of a chair.  It really hurts now, I dont want it to rip out one of these times.  Anyone else had this problem.  I dont want to beat a dead horse about the neuro stims themselves, they work great for some, just like anything else, and dont work for others.
 
That is with anything that people who really are trying to help us cp patients. 
 
So if anyone else has had this particular problem, I think I already know it has to come out before it accidentaly gets torn out.  Anyone?
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/7/2011 2:52 PM (GMT -6)   
Oooh, that hurts. So sorry Nini. Is it causing you pain now since it got pulled on?

I guess a check with your doctor would be best. Otherwise, sorry i don't know much about

the stims.

Hope all will be well.

Take care
suzane

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/7/2011 4:12 PM (GMT -6)   
Thanks tmjpain, yes it is, but I called the doctor, she advised me that if I felt it was hurting bad enough to come on in.  If not I can wait until my regular appt. on June 29.  I think thats what I probably do.  The one thing I have to think about is the cost of another visit.
 
My daughter who I live with gets home today from Mexico, I will talk it over with her and decide what the best way to go on is. 
 
I think I paniced, it was just so weird, and it does hurt.  I think I can live with it until my appt.  So thank you very much for your concern.  I think it scared me more than anything else.  Its just strange.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/7/2011 5:53 PM (GMT -6)   
OMG! I can't even imagine...first of all I have no idea what it even is, but it sounds painful! And to me if it isn't working I would want that darn thing out, if things like that can happen.

Good luck!
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16272
   Posted 6/7/2011 6:02 PM (GMT -6)   
I would have to go back to the dr and tell him it is interfering with my activities and insist that it be removed. Something else to consider by leaving it in, is infection, if the unit has metal parts and such that is another reason to have it taken out. I have chronic cellulitis problems with my legs Kathy and one of the my PM drs big concerns is with this infection she constantly worries I will get infection around my pump and if that happens the pump has to be taken out and I may not be able to have another pump put back in. Metal in our bodies and infections are not good.

Take care.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/7/2011 7:03 PM (GMT -6)   
Thank you so much Straydog, that does it, its coming out.  The last thing I need, want or anything is infection.  Thank you so much again Straydog.  I will be making an appt. for this thing that does nothing anyway to be removed asap.
 
Well so much for waffling back and forth about the decision, its made for me so to speak.  I knew it could not be good to have this in my back if its not working.
 
I know I repeating myself but I cannot thank you enough Straydog.  I will keep you posted about the surgery, its in and out same day surgery anyway.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16272
   Posted 6/8/2011 8:00 AM (GMT -6)   
Kathy, I am not saying you may have an infection going on-I was wanting you to know that it can be a real problem if you get any kind of an infection and have metal implanted. I wanted to make sure I was clear on that. But, still why would he want to leave something like that in you is beyond me, I would have to insist on it being removed.

Let us know what the dr says. if he says he will not remove it, then I would check with a general surgeon to see if its something they would handle or even perhaps a vascular surgeon. Good luck.
Moderator Chronic Pain Forum

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 6/9/2011 11:16 AM (GMT -6)   
I'm sorry that you're having so much trouble with your unit. I haven't had any problems with mine. I went to the surgeon for my 6wk check up and he said it looked great. Everything was exactly where it was suppose to be. Nothing shifted and the incisions are healing perfect. I have the "all clear slowly" from my dr! Any problems call the office, but I'm good to go. Do you remember about a week ago, that I did a load of laundry and thought I messed something up? I didn't, it just hurt. Well after my dr.s app. I did another load of laundry and yes it hurt again. Somewhere along the line I confused "all clear" with "all pain gone". It's a good thing I know how to work my remote. I told my husband "that's the one remote you'll never get your hands on"

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 6/11/2011 8:01 PM (GMT -6)   
I forgot to tell you what happened with the rep when I went to my check-up. I have two, Todd & Danielle. Todd thinks he knows everything, Danielle does. Guess who checked my unit? I told Todd I wanted it adjusted. I watched as he fooled with his machine that fools with mine. Then he showed/told me how to turn my unit off and on with my magnet. It wasn't until I did that load of laundry after the dr.s app. that I realized, not only did "Mr. Wonderful" mess up my levels of stimulation but he also left my unit off! Now I have to call Danielle on Monday to ask her to fix what Todd has done for the second time. When I had my trial unit put in, Todd said it would be ok to set the as soon as I came out of surgery. I was still numb! Once again Danielle had to fix his mistake. She's a really nice woman, just as friendly as could be. I suppose you would have to be in her line of work, especially with Todd as a co-worker!

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/21/2011 9:04 PM (GMT -6)   
I had the neu sim planted in my L4,L5, SI and it did not work well at all for me. I would NEVER use it again.











Degenerated discs, 2-Level fusion, failed.Left with nerve damage to my right foot and nerve damage from my shoulders to my toes. Cannot wear very many kinds of shoes any more because of the damage to my right foot. numb from the knee to my toes. Intense pain 24/7. Got off Methadone a month ago and now having to adjust to Neurontin for nerve pain and need stronger pain medication for my back pain. Wish I had never had the back surgery.
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