Surgery Monday and getting nervous.

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Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/9/2011 4:25 PM (GMT -6)   
I am getting ready for my surgery on Monday and getting really nervous.  This is my 3rd fusion and this one is really bugging me.
 
Right now my hardware is impinging a nerve and poking into an artery out the back of the bone, so it all must be changed.  The plan is that I will have all of the hardware removed, areas filled with cement of sorts, new bone graft from the hip, new hardware, BMP, all of the fibrosis removed and then get closed back up.  PCA machine, catheter, 1-2 days in ICU and 3-5 in the acute unit.  4-6 hour procedure, and good as new,lol. 
 
Hopefully I will be discharged to home, but there is a chance of going to rehab for a week.  My hubby is upset with me because I reminded him that this is only to stabilize the mess that is in there allready and I will likely have no significant pain relief and I will never get my reflexes back.  My pain is coming from to many different areas, hopefully this will calm down the lower back and acute sacral pain, but it will nothing for the RSD and pain caused by the cyst in the spinal cord.  I told him I am just being realistic and if by some miracle everything calms down we can all be surprised.
 
I am not prepared at all.  I have a sock donner and thats it.  I know they will have everything ready for when I get home but it is just nerve wracking.  Oh yeah, I stocked up on silky PJ's so I can slide easier,lol. 
 
I just want this next 2 weeks done and over with!  Well thanks all for listening, no real question, just venting,lol. 
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/9/2011 4:36 PM (GMT -6)   
Will be praying for you!...

May I ask why they are putting you in ICU and then so many other days in the hospital after that?

I have had 3 cervical fusions...and the last one was two levels, going in through the front and the back of my neck...same thing..removal of hardware, new fusion, new hardware, BMP, etc...

And they had me one overnight in a regular room then home recovering..

I certainly think it's great that your insurance will pay for all of this and it's great to get that extra monitoring..

I think I was more curious as the reasons..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 6/9/2011 5:01 PM (GMT -6)   
Shell...I will be praying for you and I will be thinking of you as you prepare for your surgery, during surgury, and afterwards.

i had my surgery on June 6,2011 and the strangest thing happened as I was laying on the gurney in preop...i felt calm and as if all our family was there for me...I felt them close to me and it was comforting. I pray that the same experience happens to you. My hands werent even sweaty! LOL

Take care of yourself and listen to your doctors. If you hurt tell the staff at the hospital. You will be in good hands.

Soft Hugs
Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/9/2011 5:23 PM (GMT -6)   
Lumbar fusions typically are a longer stay than cervical. That is just typically, not a rule. I was begging to go home when I was discharged on the 3rd day with my ACDF. Posterior lumbar fusions are usually longer than anteriors too, just due to the amount of muscles that are cut thru and peel off of the vertebrae to get in the anterior approach. I wish I would have pushed the PLIF with the first surgeon, but he said I was to overweight and would have needed a general surgeon in the OR as well. My first lumbar was a 5 day stay and then they wanted to transfer me to rehab, since I still couldnt get up on my own.

6 weeks ago I had my ulnar nerve transposition surgery and I had a reaction to anesthesia too. I guess more side effect than reaction. My surgery was at 9 AM and they still couldnt get me to open my eyes at 2 PM. I was very sick once they got me to open my eyes. When I would sit up my BP would spike and I would turn red and get very hot with sweat pouring off me. I had to be transferred to the hospital from the surgery center. This surgeon just wants to be extra careful with the ICU I think. Hopefully just for a day!

I am just hoping they let me keep my hardware, kind of creepy, but I think the kids would like to see it.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/9/2011 5:41 PM (GMT -6)   
Oh my, I would also be so very nervous...Make sure you have clear pathways in your house...
I will hope and pray you have a good outcome and a speedy recovery, sure wish there
was something else I could do for you...well wishes...keep us posted when you can okay
as we will be thinking of you....god bless (hope you don't mind me posting that)
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/9/2011 5:47 PM (GMT -6)   
Thanks for more info...I am always a curious girl!! LOL...

Yea...my posterior and anterior surgery took over 10 hours...as they flipped me like a burger! :)...

I actually ended up with a black eye because my intubation tube fell out during surgery and I stopped breathing so my surgeon saw this first before the anethesiologist...and knocked into me grabbing the tube to put back in! I was sound asleep of course so never the wiser...haha...but they told my mom and then husband that it was a very close call..and then had the normal puncture wounds in my head for the halo...

I agree..with my anterior fusions, I had no pain in the incision or throat...but the large scar in the back of my neck and cutting through all the muscle hurts much worse and has greater scarring..
So I have 3 lovely scars on my neck as they went in different places each time...but at least when I ask for lightly packed bags when getting groceries, they see my scars and understand why..lol

I am glad to hear that they are being extra cautious with you and as I mentioned...that your insurance will pay for all of that!..

And yes...I kept my hardware too!! It's pretty cool LOL...

Prayers for you:)

Post Edited (Snowbunny21) : 6/9/2011 5:50:23 PM (GMT-6)


CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 6/9/2011 7:15 PM (GMT -6)   
Shell, I'll be thinking of you. I have just the CRPS/RSD to deal with and that is enough of a nightmare on its own without adding all your other spinal and nerve problems on top of it. I hope that stabilising things can at least relieve some of your discomfort - nerve impingement isn't much fun either.

*gentle hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/9/2011 8:35 PM (GMT -6)   
Oh wow Shell, that is a big surgery you will be having. We will all be thinking of you and

praying that all goes well and you have a safe and quick recovery. Post back when you can.

Take care
===Suzane

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/9/2011 8:53 PM (GMT -6)   
Hi Shell I'll be thinking of you and praying for you as well. I hope you surgery and recovery go smoothly. We'll be waiting for you when you're able to give us an update. I can't blame you for being so nervous. It's a big surgery and the way you reacted after your last surgery is enough to scare you. Take care, I hope you're having a low pain night. Try to rest as best you can.

love and lots of soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 6/10/2011 12:15 AM (GMT -6)   
Hi Shell,
I will keep you in my prayers, and I hope and pray everything goes well and the surgery  and post surgery all goes smoothly for you! You have been through so much already!
 
Good Luck to you!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/10/2011 3:42 PM (GMT -6)   
Thank you all for the thoughts and prayers. It means alot.

I was thinking about bringing my computer, but I know I should just rest,lol. I could always bring my work computer and catch up on all of my reports too. I just worry about theft.

Tonight I am heading out to a big block party with a couple of my friends. They want to take me out to get my mind off things. All I know is that I need to be healed enough to go Ghost Hunting on an old battleship in Mid August,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/10/2011 3:56 PM (GMT -6)   
Looks like I can get on with my phone! Neat, I guess I should learn what all this thing can do,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 6/10/2011 4:44 PM (GMT -6)   
Shell74
 
I brought my laptop with me and I posted on this forum that night after my ACDF in Sept 09, depending on how you feel, it might be an option for you that you might want to consider. Anyway I do hope everything goes well for you!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/11/2011 9:05 PM (GMT -6)   
I cant imagine being without my computer for five days, but I also know that I will be out like a light and wont be able to be upright much. Last time I took a mini DVD player and just put movies in all day long, I would watch about the first 20 minutes and fall asleep, then wake up and start it again. Maybe I can have my husband drop the computer off in the AM and pick it up at night.

I have had so much to do, tomorrow I am cleaning the porch and putting some patio furniture out. I need a place to sit outside and have my coffee. Packing a bag, cleaning my work stuff out of the cars, grocery shopping. I know it will all likely put me in bed in the early afternoon but oh well, its got to get done.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 6/12/2011 1:09 PM (GMT -6)   
Shell


Dont worry...You will be fine.....You are strong

I will be praying for you

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 6/12/2011 3:49 PM (GMT -6)   
All the best Shell - thinking of you *gentle hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/12/2011 4:13 PM (GMT -6)   
Shell...one of the things that I love best is using Audible...which is listening to books either on the computer, your iPod, or a smartphone...Ever since my last neck surgery...I go to sleep each night , eyes shut...lights out...snuggled with my puppy...and listening to a great book!...It's very helpful when you need to lie flat..

Praying for you!!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/12/2011 4:23 PM (GMT -6)   
Shell,

I wish you the best in your surgery. I'll also be praying for you.

Hugs,

Flower

sore42long
Regular Member


Date Joined Apr 2011
Total Posts : 235
   Posted 6/12/2011 5:06 PM (GMT -6)   
Shell ,I wish you best in surgery,and speedyrecovery! takecare

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/12/2011 5:48 PM (GMT -6)   
Hi, Shell74, just wanted to drop a line and tell you I will be praying for along with your entire cp forum. I know its so difficult not to worry, but try not to stress yourself to much, with all the prayers and well wishes from your cp family will get you through.
 
I hope this does it for you, again you may never be pain free, but maybe this will lessen pain.
 
Ok and good luck to you
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/12/2011 9:10 PM (GMT -6)   
Thanks again!

I have no clue how I am going to get things done till tomorrow. My work stuff isnt near finished, the house is a mess, etc........ Oh well,lol.

NiNi53, my doctor has pretty much said this wont make much of a difference for me pain wise, fixing this will only prevent a total collapse or an errosion of my illiac artery. Both major things, so I dont want to try that. I will still go back in once healed and have the SCS put in. with the combo of dx's I have I have pain coming from every which direction. Maybe this summer would be a good time to get adjusted to a nerve med. I will have to talk to the dr about that.

Darn hospital called and I am scheduled for 12:30. I dont get to settle into my room first either, which I am not to happy about, but what can you do. My husband will drop me off at my grandmothers home in the AM, she will take me, and he will meet me there at 11:30. He has got to get some work done. He wants to bring my daughter and 3 year old grandson down in the evening but I dont think I will want to much company, we will see. I can just imagine my 3 year old grandson running from one side of the room to the other bunping into the bed, Nana, Nana, Nana,lol.

OK, back to work! Thanks again for the kind words!
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/12/2011 9:37 PM (GMT -6)   
Shell,
I just wanted to let you know that you will be in my thoughts tomorrow. I know you will do just fine, go into surgery with all positive thinking :)

Hugs!
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/12/2011 11:19 PM (GMT -6)   
Shell, We wish you "Good Luck" tomorrow, and hope all will be fine. Take care of yourself first, and then report back when you can, as we all will be waiting in prayer.

Snowbunny had a good idea with the "audio books"....and it would be much easier on you as well. My wife listens to them on her iPhone, and loves them.

Again...we wish you the best!

Prayers for you!

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/13/2011 12:24 PM (GMT -6)   
Shell,
loads of well wishes for today, your big day...sure hope things go good for you...
Prayers....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

suesueky
Regular Member


Date Joined Apr 2011
Total Posts : 87
   Posted 6/13/2011 3:08 PM (GMT -6)   
Shell

Good luck lovie, I know you will be fine. I will be thinking of you and will be praying for you to have a quick recovery.
I send you loads of gentle ((((((((hugs))))))))) and when you are feeling well enough to post or chat sweetie we will all be here for your return. xxxxxxx
Suesueky

Disc degenerative disease, L3/4 board disc bulge, L4/5 board disc bulge with significant nerve root compression on right L5 nerve root and also DDD at L5/S1. I also have an enlarged uterus with fibroids and have been a sufferer of psoriasis now for about 8 years.
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