Hi Sore....sorry to hear things are not going well..For Lucky or others...TOS is Thoracic outlet syndrome...It's a condition where there is pain in the neck and shoulders...weak grip...numbness and tingling in the fingers...It can mimic issues with cervical disc problems...so it's critical to have nerve conduction studies, an EMG, and MRI to get diagnosed properly..
The actual thoracic outlet is the area between the ribs and collar bone.
Sore..I just pray that if you are going to have surgery...that you get 2 or 3 surgical opinions...as it's a very tough surgery and used only when all other means fail. And it's performed by a thoracic or vascular surgeon..
Sorry for not knowing...but have you already had months of PT to strengthen the shoulder and chest muscles as well as improve range of motion ? Or is there pressure on the actual vein that you have been given blood thinners? Are you on nerve pain medication to help in the meantime?
Lots of people have great success with the PT but it really does take up to 6 months or more of going a few times a week and home exercises..
Again..sorry to hear it's been so frustrating for you with the Drs....I hope you get to see the correct Dr. soon to get the answers or treatment you need!!
SB and "the pup who snores loudly"
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
ACDF with hardware, allograft bone Nov. 2005
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006