I'm happy for the days ,I manage to get things done and not just stay in bed all day!

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Regular Member

Date Joined Apr 2011
Total Posts : 235
   Posted 6/9/2011 7:06 PM (GMT -6)   
 I find its hard just get out of bed most days and I realize ,the more inactive Iam the worst Ifeel ,yet the pain is always  nagging at me,so just doing little things  wears me out,but Istill have to try and learn to be happy with what Iam capable of ,Iwish the medical system moved faster ,its been so frusterating ,Ihave an appointment july 23,I phoned and asked if someone cancells,I would be willing to come in then.I  thought my last appointment was a surgery date ,but Iwas wrong.Its been 2yrs and many different drs and still waiting while the pain and fatigue are getting so much worst ,I hope the surgery for TOS is soon or the july appointment proves  to have some answers.Till then Iguess Imake the best of it day by day! takecare   

Regular Member

Date Joined May 2011
Total Posts : 164
   Posted 6/10/2011 12:01 AM (GMT -6)   
Hi, I understand that feeling all to well. I am not sure what your issues are and I don't know what TOS is either, but I sure hope it all works out for you at your appt, or that you can get in sooner. And you are right, you can only make the best out of it until then. I also know that can be easier said then done.

Hang in there, and try to focus on the positive of the appt coming up.
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 6/10/2011 9:53 AM (GMT -6)   
Hi Sore....sorry to hear things are not going well..For Lucky or others...TOS is Thoracic outlet syndrome...It's a condition where there is pain in the neck and shoulders...weak grip...numbness and tingling in the fingers...It can mimic issues with cervical disc problems...so it's critical to have nerve conduction studies, an EMG, and MRI to get diagnosed properly..

The actual thoracic outlet is the area between the ribs and collar bone.

Sore..I just pray that if you are going to have surgery...that you get 2 or 3 surgical opinions...as it's a very tough surgery and used only when all other means fail. And it's performed by a thoracic or vascular surgeon..

Sorry for not knowing...but have you already had months of PT to strengthen the shoulder and chest muscles as well as improve range of motion ? Or is there pressure on the actual vein that you have been given blood thinners? Are you on nerve pain medication to help in the meantime?

Lots of people have great success with the PT but it really does take up to 6 months or more of going a few times a week and home exercises..

Again..sorry to hear it's been so frustrating for you with the Drs....I hope you get to see the correct Dr. soon to get the answers or treatment you need!!
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
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