In pain, depressed, hate it all!!

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luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/13/2011 7:37 PM (GMT -6)   

I don't even know where to start. Maybe I am just having a bad day...Who knows...I just can't imagine that this is how I am going to live my life. I mean REALLY??? Ok, so I understand now that I need to give the meds a chance, but how long? I don't even think I really know what med is doing what. I'm confused and getting more depressed,( I think)...I pretty much just stay in my own little bubble.

I don't care to talk with anyone. I don't want to go anywhere. My 5 yr old is draining me beyond belief. I have been taking the Oxy 10mg during the day, I guess it helps take the edge off but I still have days or hours that I'm in pain while at work.I also feel a bit out of it still during the day, and I often speak like a person that has had too much to drink. 

I also have been taking the Nortriptyline at bedtime and I am at the max dose of 80mg...I have noticed that I am sleeping better once I fall asleep, but other than that, I have no clue if its helping with the depression.

I just feel so lost right now...my neck hurts, when I turn my head it feels like stuff in there is rubbing together like bone on bone. It just seems like all I do is "get by". I used to go out with my girlfriends and I don't even care to do that anymore. I just want left alone. No one understands the pain...and if I have a day where its a low pain day, then I have a dang migraine. I mean its always something. I'm just sick of it all...sorry for rambling..I just can't stand the way I feel. And it feels better to just let it out and vent a bit. Thanks

 



 


Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/13/2011 8:07 PM (GMT -6)   
Hey Lucky....sorry to hear you are having a really rough day:(...I've never taken the Nortriptyline before...but from what I've heard...it can make you feel pretty fuzzy and out of it...maybe others can share who have also taken it...

Does the Dr. allow you to take 20mg two times a day of the Oxycontin? Or only 10 in the am and 20 at night? If you are at a 7 or 8 in pain level each day...then I would hope he would work with you to tirate up in the medicine...

Are you taking any of the Percocet during the day for your breakthrough pain?

Like my schedule is MSContin 30mg every 8 hours...or I can do 45mg in the AM and then 45mg in the PM....so I have flexibility as some days are worse than others...
Then I have OxyIR 5mg (plain Oxycodone) to take for breakthrough during the day...up to 8 maximum for 24hrs...
Then I have a muscle relaxer to take as needed..one or two a day..

So..as we said before..10mg is a pretty low dose as you are only getting 5mg when you first take it...then 6 hours later the other 5mg...

And my brain is totally forgetting...but have they talked about actually doing surgery to fix the herniation? Either decompression or fusion surgery?
Sorry if we just went over that...I'm drawing a blank..Lol..

The reason is that the medicines and injections can only go so far...they only mask the pain...if it's a bad hernation...it may need to be surgically fixed...

Or when was the last time you tried an injection to help? again...can't remember..

Surgery obviously doesn't fix everything...but it helps to a certain extent to take away the pressure on your nerves and spinal cord with a herniation...

The biggest thing is that it's only at one level right now so that is good news...

Another question..are you seeing a therapist or counselor for your depression? It really helped me for a time to help me get used to having to live my life with chronic pain...so maybe that would something to do right now for a few months...

I don't know how you do it all...Job, and 3 kids...I know others on here...especially momto8kids...amazing!!! I really do admire all the mothers AND the father's on here ...

So sending you out some prayers and hugs tonight (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/13/2011 8:35 PM (GMT -6)   
Thanks SB...you always know what to say...

I was looking into surgery but he said I was not a good candidate and only had a 50/50 chance with success rate. He said he wouldn't do it. I really respected that. He said it most of my pain was in my arm then a 90% succes rate and he would go for it.

Yes, I have done the injections and the last one didnt work, so PM doc didnt want to do more. I am making an appt this week with a theraphis so that should help. I have been putting it off for many reasons, but its time to pull up my big girl panties and make it happen..

PM Doc only has me at the Oxy 10mg during the day, and yes I can use the percocet for breakthrough pain, but even just half can make me a bit "loopy" again I think thats due to my RNY Gastric By Pass surgery and the way I abosore meds and food...

I just hate that I am such a cry baby these last few days...



Hugs
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/13/2011 9:17 PM (GMT -6)   
Ohh...don't feel bad about being emotional...you have so much going on right now and lead such a busy life...but put chronic pain on top of everything...it can be miserable!...

Then that is still good news if they don't think it's herniated enough that it's going to cause permanent damage..

My 3 fusions (areas C5/C6 and C6/C7...were all done immediately and within a week of the MRI's being done through the years...The first one failled after 4 years...and that one the bone from my hip totally reabsorbed..they were shocked it was completely gone...
Then the 2nd was done by a terrible surgeon who was not a nice man...and I suffered greatly until I found my last Neurosurgeon...the morning after the MRI, he said it was so messed up and 'ugly' inside of there from the last one's work...So they went in through the front and the back of my neck and put enough metal that I may not have my head fall off now!! LOL..

So..my point is that it's good to find a surgeon who is looking out for you and will only do the surgery if it's absolutely necessary...it's more about nerve damage they would watch for...the numbness...dropping things...etc.
As long as you have a good Board Certified Neurosurgeon overseeing the cervical issues...and doing evaluations when needed like EMG's or nerve conduction studies...and new MRI's once a year...

Hopefully your PM will work with modifying your medicines as needed...sometimes it takes a few months to get to a decent place...they usually shoot for a 5 on the pain scale with just the meds...and then add other modalities to help the pain as well...

Since you are getting 'loopy'...then they may actually up the long acting medicine so it slowly releases through the day and not having to take a breakthrough only once in awhile...

Just different options...I'm sure he knows about your gastric issues and should be working around that..

I know it's hard to be patient...but getting the right mixture of everything takes some time...

We are always here for you to come and vent...hope you can sleep some tonight!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/13/2011 10:41 PM (GMT -6)   
SB...so now I have a question for you. I might just be confused...you said your 3 fusion areas C5/C6 and C6/C7 and then you mention something about your hip....so and please keep in mind I am a blonde hahaha...mine herniated disk in my neck is C6 C7...????
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/14/2011 10:21 AM (GMT -6)   
So sorry to hear what you are going thru.  As a veteran cp patient, I hate to tell you this but time is about the only thing thats going to get you out of this horrible place you are in.  Time and of course the cp forum. 
 
I was totally disabled 10-11 years ago.  I wish I had known about cp forum then.  The one thing that is working for you is that everyone on this forum knows how you feel, they are either going thru it, at some stage in it, but we all know.
 
So when you start to lose it, this is one place where everybody has felt how you are feeling right now.
 
Please stay with it, when your best friend doesnt understand, your family same thing, all of us here at the cp forum we know, we really really know.
 
I know this wont make you feel better, but even being a vet of cp, it has helped me in so many ways, I cant count.
 
Hope you are feeling better soon, remember we are always here.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 6/14/2011 11:36 AM (GMT -6)   
Lucky, we all have our bad days and lets hope that this is all that is going on with you right now and hopefully it will pass quickly. Nothing wrong with a good vent from time to time , its good for the soul.

You have a very busy life and I think you are to be commended for the things you do.

Take care.
Moderator Chronic Pain Forum

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/14/2011 12:47 PM (GMT -6)   
Hi Lucky...

I'm sorry for being confusing...that was my bad!..LOL..

I have always had herniations on two levels...the discs between C5/C6 and C6/C7...so you have a one level herniation between C6/C7....

But I have had a total of 3 separate surgeries over the years....(so that's where the three came from:)

A herniation means that the disc had broken through and is pushing on nerves and the spinal cord....
When they do an actual fusion surgery...they 'take out' the bad disc..(the substance that is a cushion in between the vertebrae)...and they put bone into that space.

*They can use either bone from your own hip, which is called autograft, or donor bone from a deceased person, which is called allograft...

This is what 'fuses' to your vertebrae to stabilize your spine.

They can also decide to use titanium plates/rods/screws to help keep this all in place..

Also the choices are to do Anterior (which means go through the front of the body..in cervical fusions that is through the front of the neck). This is done 95% of the time.

Or they do a Posterior approach through the back of the neck..

My first surgery they used my own hip bone for both levels..but no titanium....

Because the 'bone' from hip did not fuse, and it actually reabsorbed into my body..it was called a non-fusion..and my vertebrae collapsed again because of this and causing harm to nerves and the spinal cord.

My second surgery they used donor bone/allograft, and titanium...but he did a horrible job..

So my third surgery..by a different Neurosurgeon...did both an Anterior AND Posterior approach in the same surgery (flipped me during the process..lol)...and used donor bone...and put titanium rods/plates/screws from both front and back to really make sure I am stable....

The last one also included using BMP which is Bone Morphogenic Proteins...which in simple terms..are growth factors used to help the bones fuse easier...

So...with all that info is why you see people use terms like ACDF...which is Anterior Cervical Discetomy Fusion...

Now..I am speaking about Cervical fusions...so many on here have had Lumbar fusions done...

So..there's some fun medical terms and information for the day:)...

Sorry to be confusing before..

I hope you had a good night last night and were able to get some sleep and doing ok today...let us know how it goes if you speak with your Dr..

Hugs (( ))

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 617
   Posted 6/14/2011 4:45 PM (GMT -6)   
WOW Luckyflowers,
 
Our medical conditions are so similar, it's almost scary.  I too suffer from chronic pain due to back issues almost identical to yours, also have chronic migraines, am also post RNY gastric bypass (with issues taking/absorbing meds), and have depression and anxiety issues to round out my medical profile. Oh, wait, add bad knees to the list...think that must balance out for not having any kids. 
 
The differences...you get much better pain meds than me, your migraine meds were miserable failures for me, as were your psych meds.  I have to mitigate my pain with bottom basement Lortab 5/500's, but usually only get 30 about every 10 days, which would be laughable if the situation was actually funny.  I also get some Ultram, likewise basement level dosage and frequency...50(50mg) every two months.  UGH!  For my migraines, I take Zonegran and a minimal dose of Atenelol as a preventative, and Seroquel as an abortive, with some hydroxizine for nausea.  For psych meds, I take Symbyax(3mg/25mg), with a little extra Prozac, Klonopin(1mg x 2 /day), and Buspar(15mg x 2/day).  Throw in some Flexeril as a muscle relaxer twice a day, and that pretty much covers the picture, with the exception of my bad stomach, which has become permanently raw from shoving all those chemicals into such a tiny space left over from the gastric bypass.  I've been taking Nexium since it came out, but it's not doing the job anymore.  I've been taking Calaphate as a buffer for the past couple of months, and just recently started substituting a new medication, Dexilant, which I'm hoping will do a better job on keeping the stomach acid down.
 
Lately, I'm just so sick and tired of being miserable all the time.  This spring has been rotten for my migraines, since weather changes are my biggest trigger, and the weather here in VA has been changing several times a day for months now.  I'm tired of arguing with my family over all the medications the doctors have prescribed, especially my mother, who is always making comments that I need to stop taking so many meds.  Of course, when I ask her what she thinks I should do without, she doesn't have any answers.  I haven't had any medication even come close to making me loopy in a very long time, including the shots of Nubain and Phenergan I have to get about once every two weeks when I can't get a migraine to break with my regular meds. 
 
I just spent four days straight firmly attached to my TENS unit, using the electric shocks to mitigate my back pain, since my DR didn't get my Lortab prescription called in to the pharmacy before the weekend.  Needless to say, I haven't had much sleep in the past several days hooked up to the juice box and wires.  My "pain management" doctors won't prescribe any medication for me at all, only doing procedures like lumbar facet joint denervations, which I have to get done about every three months.  They are excruciatingly painful procedures, and since I go to a "teaching" hospital, they always make me go thru the testing procedure first, so the student doctors can learn how the whole sequence of procedures work.  I really need to find another pain management center, but I'm already traveling over an hour away from my home town to go to my current location.  My hometown only has ONE pain management doctor, and he was strictly a "steroid shot" in the spine kind of guy.  That's all he ever does for anyone.  My Dad usually takes me to all my DRs appointments, since there are some days when my memory is really bad and I don't communicate effectively(a permanent side effect of too much TOPAMAX).  The PM DR saw a bunch of scratches on my legs and decided I was a "cutter", even though my Dad explained that I got them from my three CATS!  There was no changing the DR's mind, so I had to switch DRs, in order not to be treated like I was a total head case.
 
Anyway, I forget where I was going with all of this, other than to let you know that you are not alone...there are people like me who can totally identify with everything you have to go thru on a daily basis.  It's not an easy life, but as a friend of mine always tells me, every day above ground is a good day.  Some days I have really have to remind myself of that, and I know that as lousy as I feel on any given day, I know there are people that have it worse than I do.  Maybe you can try to keep that in mind yourself, and check in here with us whenever the going gets rough.
 
{{{HUGS}}}
Leigh Ann  scool   

•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 45, spawn-free

"THE WEATHER IS HERE, I WISH YOU WERE BEAUTIFUL." -Jimmy Buffett

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/14/2011 5:12 PM (GMT -6)   
Hi Leigh Ann...you certainly have gone through a lot:(...

Do you feel comfortable saying what part of VA you are in? I am in Northern Va and have a fantastic and wonderful Pain Management Dr...lots of people actually come from other states to see him..As well as he is part of a Spine Institute that has 5 Board Certified Neurosurgeons that treat every possible spine issue...As well as a PT facility in the building...

May I also ask what type of Dr. is making you pick up your prescription for Lortab every 10 days? I've not heard of this before...it's usually every 30 days...And is the same Dr. prescribing the Ultram? Since it's unusual to be prescribed two short acting medicines (Ultram and Lortab) at the same time...so that's an interesting approach which makes the patient 'chase' the pain every 4-6 hours..

I'm sure you and Lucky know that the downside with the narcotics are they can cause 'rebound' migraines...but you need them for other issues...

So..depending on where you live...you may want to try my PM..as well as one of the Neurosurgeon's...so I'm happy to talk further with you if you would like as I don't want to take up Lucky's thread...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/14/2011 5:43 PM (GMT -6)   
SB..thanks for explaining all that, and yes we do learn something new everyday! So this brings me to another question but I am going to make a new post for it. I appreciate you and how you take the time to go into so much detail for me.

NiNi53..and StrayDog, thanks for the "good cry" guess I needed that :) your just wonderful people, I am thankful for you both.

Leigh Ann...WOW, what do I say??? we do have a lot in common and if you feel like I do please start a thread because you need the support too!!! I am hearing so much lately about Topamax and its side effects...maybe that is what makes me talk like a "drunk"..Feel free to email me, I would love to hear more about your RNY and things like that with meds and all...It's nice to meet you!
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

wanttolovelifeagain
New Member


Date Joined Jun 2011
Total Posts : 7
   Posted 6/15/2011 4:34 PM (GMT -6)   
Hi. I am new to this board. I have been researching (only recently) about what kind of life I may have (and how long it will take to get there) after pain medications. I just quit taking the pain medication that my PM dr. prescribes because another medication I was given for the "severe depression" I have been experiencing for the longest time won't let up. Come to find out this new medication, Wellbutrin, that I was prescribed (not a new medication on the market but a newly prescribed med for me), has done wonders for my pain! I would have never, ever guessed. I HATED being on pain meds. It had turned my life upside down. I can't wait for my brain to get back to "normal."

I have real pain issues. In fact, I am having a pretty painful day and still have pain medication from my last month. I just don't want it.

If anyone is interested I would be happy to share more of my story. But the reason I am posting is because I want to share these FACTS about pain meds:

- They LOWER your testosterone levels (for women and men)....men are commonly prescribed testosterone replacement therapy but women are OFTEN overlooked. Do a quick google search on what low testosterone levels will do to a person and you will understand WHY you are so depressed. PLEASE REQUEST THAT YOUR HORMONE LEVELS BE TESTED! And if the dr. says they are "within range" double check and make sure! If you have the symptoms of low testosterone and you are on a long term pain management regimen then you probably have a low bio-availability of testosterone.

- The longer you are on pain medication, the more your brain "up-regulates" to cause a person to perceive their pain to be worse that what it actually is.
I am hopeful that when my brain gets back to normal (I have no idea how long this will take, if anyone knows, I'd really appreciate your input!) that I will be able to tolerate the pain. I had so much more ambition when I was in horrible- pain (before I found out what was causing the pain and had surgery to correct part of it) than I did while taking pain medication.....and it didn't ever get rid of the pain completely.

- I would probably not believe this if it didn't happen to me. But within a week of taking Wellbutrin daily my pain the pain that is caused by the nerves being pinched and causes severe bilateral leg pain, had nearly disappeared! I still have low back pain, but no more burning leg pain. Wellbutrin works wonders for neuropathic pain.

- My PM dr. actually uses subutex WITH pain medications to help augment the affect of pain meds and also to help patients to not become tolerant to their pain medications as easily. This is how I was able to simply "stop" taking the prescribed pain meds without weaning. I am on a low dose of Subutex and plan to wean off of it soon.......and hopefully, my brain's neurotransmitters will have regulated to where I perceive the pain I have at the actual level, not a heightened level.

I know this message is kind of all over the place. But if it can even help one person with the severe depression that the pain meds cause it will be worth it. It is VERY NORMAL for outgoing, extroverted people to end up never leaving the house due to the affects that pain meds have on our hormones and our brain.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/15/2011 8:51 PM (GMT -6)   

 

           Dear Luckyflowers, so sorry you are having such a difficult time with your pain and all.

      I am in the same place right now with severe pain and it is so tough to get thru a day.

           Just know that you are not alone and we are here to support you and get thru the day.

          Take it one day at a time because if you look too far ahead, well it can be a scary thought,

           wondering if this is what the rest of your life will be like.

          Hang in there girl!!!

 

  Snowbunny, i can't imagine what you went thru when you had your third surgery, with ant. and posterior

  neck surgery. Wow, it must have been tough to get thru that post op rehab!!!

--Suzane

 


luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/15/2011 9:14 PM (GMT -6)   
Thanks for the info wanttolovelifeagain..Happy to hear it went well for you!

Suzane,
Thanks and your right..I am very thankful for the support I get here. I know for sure I am not alone. You hang in there too :)

Hugs,
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 617
   Posted 6/17/2011 2:05 PM (GMT -6)   
Hey Wanttolovelifeagain,
 
Welcome to the board, and thanks for your enthusiastic sharing of information. 
 
Unfortunately for me, Wellbutrin wasn't the miracle drug you have found it to be.  I've had a gastric bypass, and the coating material used on this drug, both on the name brand and generic versions, keeps it from adequately dissolving(and therefore being able to be absorbed by my body) in the short time it remains in my digestive system.  I just don't get the benefit of the medication that normal people do.  I actually took it for months before figuring out the problem.  I even started cutting up the pills, which you aren't supposed to do, and the partial pieces wouldn't even dissolve.
 
Maybe your information will work for someone else.  You just never know.  Good luck on your journey to a pain-free existance, and we'll be glad to keep you company here in the meantime.
 
Leigh Ann scool
•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 45, spawn-free

"THE WEATHER IS HERE, I WISH YOU WERE BEAUTIFUL." -Jimmy Buffett

debbie346
New Member


Date Joined Feb 2011
Total Posts : 3
   Posted 6/18/2011 2:38 AM (GMT -6)   
I feel the same way in regards to relationships and friendships. I make excuses to avoid going out in so much pain. I am a teacher and I don't tell anyone at work how much pain I am in because I don't want anyone to know. I have atypical facial pain and am sometimes in so much pain nothing seems to help. I have started taking baclofen a muscle relaxer that helps me sleep but I find it makes me too drowsy during the day. I am not sure what to do nest. I see a pain specialist and have seen every doctor including a TMJ specialist to no avail. My doctor said this is one of the hardest pain areas to heal because the source of the pain is hard to detect. I am tired!!!!!

peter3011
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/13/2012 9:46 PM (GMT -6)   
I think I have the same atypical face pain you have, 3 years now. I wake up feeling OK and the pain gets worse through the day. You are the first person I have found in a forum with the same description. I have not found a solution. Any suggestions?

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 1/13/2012 11:03 PM (GMT -6)   
Hi Peter, and welcome.

You may not have noticed, as I'm guessing you found this topic through the 'search' function, but you're actually replying to a thread nearly six months old.

Can I suggest that you might like to start your own topic to introduce yourself and tell us a little about yourself so that we might welcome you properly?

Thanks :-)

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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