In need of some well wishes

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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/15/2011 2:07 PM (GMT -6)   
Well, since this board is more active than the RA board, I'll posts here.

Going for my first ever Methotrexate (MTX) Injection tomorrow for RA and will be
getting lessons on how to inject it myself...so I'm kinda nervous, and could
use some well wishes in hopes that I don't have any reactions...The doctor
thought that the injection would be better for me to by pass the digestive track
all the way...So tomorrow is very busy for me, first psychologists then
physical therapy, lunch and then my methotrexate lessons...my daughter
is tagging along to drive me home...

The only bad thing so far is my pharmacy did not provide any needles/syringes and my doctor wrote the
script up for diabetic needles/syringes... anyone else have that problems with the pharmacies???

So well wishes are needed. yeah

flower123
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Date Joined Apr 2009
Total Posts : 856
   Posted 6/15/2011 2:33 PM (GMT -6)   
Many well wishes from me. I hope that all goes well tomorrow, and I hope that the MTX helps you a lot with your RA.

Hugs,

Flower

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/15/2011 2:36 PM (GMT -6)   
Hi Chart...I am definitely sending some prayers your way!!!...

I don't know much about the medicine...just from what I've read a bit about it and seen others who use it online....and I'm sure you have considered the possible downside and extreme dangers compared to the upside and thought it through very carefully....as well as all the medicines or OTC's you cannot take while getting this treatment....

Please just watch out for any of the dangerous side effects and contact them right away if they occur!!

Obviously we all have to make those decisons about our pain and health...

I'm not sure what Pharmacy you went to..but I would call around to Walmarts or Targets as they usually are stocked up better than most smaller drugstores, mom and pop's, or grocery store pharmacies...

As well as not sure if you know...but you can also try Sam's or other big box store Pharmacies...you do NOT have to be a member to use the Pharmacy as many mistake...and if there is any cost out of pocket that you are paying for these or any meds...they are cheaper than even the Walmarts or any other place...just fyi:)

Glad that your daughter will be driving you home...I will certainly be praying that it helps you..

Keep us posted when you can..Sending big hugs (( ))

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 6/15/2011 2:36 PM (GMT -6)   
 
 
      I will support you Chartreux! wink
 
            Here!...have a big ole.. (((((hug))))!...Wishing you the very best! wink
 
       Let us know how it goes....and I'm glad you are asking for support....thats what were here for!
 
              Here is a nother one for more luck! (((((Hug!))))) smilewinkgrin
        Take care!
 
    SE wink
Moderator Chronic Pain Forum

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nsearch212
Regular Member


Date Joined Mar 2008
Total Posts : 75
   Posted 6/15/2011 4:13 PM (GMT -6)   
 
 
Chart,
 
If the prescription was written for needles and syringes they should have ran them under your insurance if your insurance does not cover them you can a buy a box of 100 diabetic needles/syringes for around $15 at a retail pharmacy. if you just need a package of 20 or so it's $3 at least in the southwest it is. I would call your pharmacy and asked if they've tried submitting the needles/syringes under your insurance. If they aren't covered then ask how much it would be for cash price. Also see if your doctor has specified a certain gauge and how many units you are injecting on the prescription. If your doctor didn't specify then I would ask the pharmacist what gauge he would recommend. Hope this bit of information helps!! many ((((((((((((((((hugs)))))))))))))))))) and well wishes.
 
You'll be fine tomorrow and take care..
 
-Nsearch 

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 6/15/2011 4:29 PM (GMT -6)   
Hi Chart I'm sending well wishes and hugs your way. I'm glad to see you here asking for support as you always support us and hardly ask for any yourself. I know how scary it can be. I have diabetes, and I was so scared when I had to take my first shot. Here's some (((((((hugs))))))) for you. Good luck.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

wanttolovelifeagain
New Member


Date Joined Jun 2011
Total Posts : 7
   Posted 6/15/2011 7:59 PM (GMT -6)   
Hi! I'm new here but know a bit about pharmacy. The situation "may" be that if the script for the syringes was written on the same page as another script, they may have simply, and innocently, overlooked it. You just need to ask them to pull up the original hard copy (many pharmacies these days scan the original prescriptions and can simply pull it up on the screen in a matter of seconds) and ask them to check for the prescription for your syringes.

I can't tell what your exact situation is with the pharmacy from your post...did they say they wouldn't sell them to you or did you just not get them with your prescriptions? Typically syringes are not covered by insurance, but they aren't terribly expensive. Syringes are kind of a "catch 22." In some states (and it can vary from county to county within a given state) syringes require a prescription, however, they are considered an "OTC" item, so the insurance will not pay for them. But if you have a flex-pay or similar account, syringes do qualify for reimbursement.

Hope this helps. If I have confused you more, I apologize. But if I can help clarify in any way, I'd be happy to!
Subutex-2mg daily(for pain only), (stopped Opana 6/8/2011) Aleve, Tylenol, Wellbutrin for chronic pain. Arthroscopic hip surgery 2007; Compressed nerves in low back due to bone spur causing low back and bilateral burning pain.
Wife and mother of two children. I HATE what pain medications have done to my life. I have went from a very outgoing person to a "blob of NOTHINGNESS!!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/15/2011 10:18 PM (GMT -6)   
Chart....
 
Sending you many prayers for tomorrow; that you won't have any reactions and will quickly learn how to give yourself the injections.  The first ones will be the hardest!  I had to give myself B-12 injections for a couple of years - and there's just something tough about those first few shots!  Hang in there... and let us know how it goes.
 
Hugs.... --Tina

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/15/2011 10:25 PM (GMT -6)   
Chart,
I have no idea about the injection. I will be thinking about you, hoping for no reaction! Please update when you can.

Lots of good thoughts, and prayers coming your way!!

Many hugs
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/15/2011 10:31 PM (GMT -6)   
Thank you, you've all made me feel better, but I'm still nervous...with time I'll be
okay with the injections, I hope.....right now I a little worried about reactions,
as lately I've been more and more sensitive to medicines......fingers crossed...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/15/2011 10:58 PM (GMT -6)   
Thinking of you Chart and sending you positive vibes for tomorrow.

One hour at a time. I know you can do this!!

--Suzane

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 6/16/2011 9:18 AM (GMT -6)   
Chartreux...I will support you.

i am praying for you and you are a strong woman. You will get through this procedure just fine.

post when you feel up to it to let us know your condition.


Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/16/2011 9:55 AM (GMT -6)   
Hey Chart, I'm sure everything will be just fine! Keep your chin up and all that good stuff!!!
 On the shot thing, My wife gives me a testosterone shot in alternating butt cheeks every three weeks! We have to use a size #20 needle since the testosterone is in canola oil of all things! The needle is HUGE, the same size she uses on our horses!
 I think I could give it to myself in a pinch but I'm glad I have her to do it for me!!! Do you have anyone who can help you w/ it???
Good luck w/ everything !!!
Your Buddy>
Pete

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 6/16/2011 3:42 PM (GMT -6)   
Chartreux,
My prayers and good thoughts are speeding your way. You are an amazing woman! I used to give myself my own Depo Provera shots and I don't envy you one bit. I am praying for no reactions and comfort for you.

Let us know how you are doing when you can. You are an asset to this forum, so strong, supportive and helpful. Thank you for allowing us to be that for you too.

Hugs,
Mindy

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/17/2011 9:35 AM (GMT -6)   
Thanks so much everyone...
Well it wasn't too bad no immediate reactions had some nausea last night and having
some fatigue..the nurse PA said she'd call the pharmacy about the syringes, and my
insurance didn't even cover the methotrexate, but my husband said it was only $11.00...

I'll try to do the thigh next week, had this first one done in my left arm..
so so far not too bad...hopefully the fatigue will go away..., my eye's are giving me problems

but I go to the eye doctor next week, might be time for new eye plugs..those do get expensive...
(eye plugs keep the eye's moist and free from infections, which I get easy)eye plugs help with
the sjogren's. most people only have the lower lids plugged, but I have both lower
upper lids plugged for longer lasting effects...

Also, for my low back pain the phyiscal therapy started me on ultra sound treatments again, that felt good
sure hope they continue with that.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

SE Sis
Regular Member


Date Joined May 2011
Total Posts : 61
   Posted 6/17/2011 10:32 AM (GMT -6)   
Well Wishes for you tomorrow.  You're in my thoughts Chartreux. :-)
SE Sis
___________
S1, L4-5, L3-4 Fusions, Rods & Screws inserted, bone chipped out for room for nerves. (May 10, 2010)
Right Hip Surgery to fix damage from Physical Therapy for my back. (2006)
Anxiety/Panic Attacks (started 2005)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 6/17/2011 11:40 AM (GMT -6)   
Chart glad to hear the first shot went ok for you. The fatigue and nausea should past fairly quick for you. I have a few friends on Methotrexate for RA and not only has it helped them but they all seem to tolerate it fine and lets hope the same for you. They had the side effects initially but they passed. What was the reason for your insurance not covering the medication?

My Humira I inject in the tops of my legs. I can also inject it into the stomach but for the life of me, I have not been able to do that, just the tops of the legs.

Hopefully soon you will feel better. Take care.
Moderator Chronic Pain Forum

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/22/2011 5:02 PM (GMT -6)   
Finally, went in and got my syringes today and will do my first at home injection tomorrow...I hope I don't
mess it up...planning to do the top part of my left leg, in the middle...nurse said to let the alcohol dry
some before doing the injection..I have PT tomorrow, then eye doc and lunch, then home for my injection..
any idea on how far the needle should go in these needle are longer than what the nurse used last week...
that's about all I have to figure out...
well wishes to all
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 6/22/2011 5:36 PM (GMT -6)   
I hope everything works out for you....:)
Posterior cervical spine surgery... from the report:
C2 to T1 decompression and instrumented fusion. Specifically, laminectomy at C2 to T1 with right foraminotomy C2 to C7 and left C5 to C7 with arthrodeisis C3 to C5 with structural rib allograft and local vertebral autograph, and at C7 with the same structural rib allograft and local vertebral autograft, and Vertex instrumentation C3 to C5

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/23/2011 2:43 PM (GMT -6)   
Eye doctor appointment took longer than expected had to have 3 of the four eye lid tear duct
plugs redone as the other 3 were gone, the upper left eye plug did hurt some, he used larger plugs
this time, so he had to force them in harder daughter was with me so she drove from there and
hoping my eye's feel better soon, i kinda knew the plugs we're gone....and my eyes we're red,
crusted and swollen...

Did the injection all by myself, needle wasn't very long at all...so it was the same type
the nurse used just a longer cap...
Sure was a day for me...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/23/2011 2:56 PM (GMT -6)   
Glad the injection went well for you and the needle wasn't as long as you thought!!

Sorry to hear about the eye issues...I hope that it will get better soon...

Can you rest this afternoon? I hope so...

Sending you some big hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 6/23/2011 3:10 PM (GMT -6)   
Char how did your first injection you did go? Yes, do let the alcohol dry before injecting otherwise it really stings. I learned the hard way doing my Humira injections. I did not let it dry good and man it really did sting. The Humira stings anyway and that just added to it, lol.

How are the eyes doing? Do you have to do the Methotrexate every week or every other? I inject the Humira in the tops of my thigh in front and pinch the skin up. I can also do them in the stomach but I am terrified of injecting into my stomach and have not been able to do that, lol.

The side effects should pass fairly soon that you are having just hang in there.
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