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Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/22/2011 12:14 PM (GMT -6)   
Well I am finally up and moving a bit. Pain levels are pretty high but I took a shower, got dressed, dried my hair and am getting ready to head out. My daughter says she will push me in the wheelchair at the farmers market. Even if we are just there for an hour it will be nice to get out. I am taking no more meds than pre surgery so driving is ok. It's only 3 miles so I think I am good.

Then I need to take her to the doctor. She had an abcess on her arm. They drained it and packed it in the ER on Monday. I accidentally pulled some packing out today, but it's due to come out this afternoon anyway. I think they will be packing it again, it is pretty bad. She had iv antibiotics and now Keflex and Bactrim. Poor thing is so upset with everything.

It should be a fun afternoon turn
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/22/2011 1:14 PM (GMT -6)   
Shell,
 
Good to hear you are up and about.  I know your pain levels are still high... but, in my opinion, you are doing great!  Just don't push too much. 
 
Hope you continue to do so well... and that your daughter's arm gets better quickly!!
 
--Tina

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 6/22/2011 1:36 PM (GMT -6)   
Shell74
 
I am glad to hear that you are up and getting around, I hope you have had a Great afternoon, but just be careful and try not to over do it! I know how great it feels to finally start doing things, but I also know that it is extremely easy to over-do-it and of course then there is the pay back and that is always the difficult thing to have to cope with!
 
 So with a word of caution, have fun but be careful!
 
What can I say it is the nurse in me!!! smilewinkgrin
 
White Beard
 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/22/2011 6:41 PM (GMT -6)   
OK! Change the title of my post to "Down and Definitely NOT Moving". nono Yes, of course I over did it, but I got a good deal on a new purse and got a yummy Strawberry Rubarb pie made by an Amish family that lives close by. Oh, and a few Pieces of fake Murano style jewelry. I am a sucker and can't say no to my daughter blush:.

Took my daughter to her doctors appointment too. She needed to be packed again, I swear they took out over a foot of packing, IV antibiotics again tomorrow and scheduled for another repacking on friday. They have confirmed it is MRSA. So I am freaking out about my inscision. Not that i am not freaking out about her too,lol. All I can do is be really careful not to cross contaminate.

Now I am down for the count. To fried to even eat dinner,lol. Hey, WhiteBeard, I am an Occupational Therapist an know what I should and shouldn't be doing too. Just couldn't listen to myself today, I was going crazy smhair . I think people in the medical field make some of the most difficult patients.

Hopefully, I will recover for tomorrow, I need to get some of my files to the office for the summer school kids. No side trips though, and I just need to call when I get there for someone to come and unload my car. I will behave,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/22/2011 9:15 PM (GMT -6)   
Thanks for the updates!...At least there were some highs and lows today...the highs were the purse and pie:) and time with your daughter...I'm glad they repacked her wound and are staying on top of things...just be careful...BOTH of you!!!

Try to rest some tonight...and only do what you can do tomorrow....let others help you!!...

But I am glad you are getting a bit better and feeling well enough to get out here and there...as mentioned...Try not to over do!!

Sending you some big hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 6/22/2011 10:39 PM (GMT -6)   
Hey Shell74
 
I know your an OT and know what you should and shouldn't be doing, but that is why I said that to you, beccause  we in the medical field never listen to ourselves, smilewinkgrin   and yes we do make the worst patients!  But some times  not often maybe, but just sometimes we  do listen to others that care. I was just  hoping I posted in time that maybe you had read it before going out on your trip. We have all done what you just did.
 
Hope You recover soon and are back up to speed!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 6/23/2011 1:21 AM (GMT -6)   
Hi Shell I'm glad to hear that you felt well enough to go out to the market. It sounds like you got some good deals, but are paying for it afterwards :(

I'm sorry to hear that your daughter has MRSA. You two be very careful and don't cross contaminate.

Please be careful tomorrow and make sure to get others to help you. You sure don't want to set yourself back.

Please keep us updated on how your daughter's arm is doing, and how you're doing. I hope you're having a low pain night and are able to get some good rest.

You take care.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/23/2011 9:48 AM (GMT -6)   
White Beard said...
Hey Shell74

I know your an OT and know what you should and shouldn't be doing, but that is why I said that to you, beccause we in the medical field never listen to ourselves, [img]/community/emoticons/smilewinkgrin.gif[/img] and yes we do make the worst patients! But some times not often maybe, but just sometimes we do listen to others that care. I was just hoping I posted in time that maybe you had read it before going out on your trip. We have all done what you just did.
White Beard


Well, today is a mess. I am not taking my files to work. My feet are on fire and I can only manage to put weight on the balls of my feet to keep balance. My fault completely, I have no right to complain. I was almost thinking about calling my PM dr and trying to get in today and ask advice about the entire med thing. The ortho is not going to refill my fentynl like he said and I am officially out today but have enough spares for about a week. With all of the planning and promises that these doctors made to me not a single one of them is following thru. If I did that as a patient I would be out the door. I thought after surgery I had to go to the OS for pain meds till I was d/c by him. Just more frustrated at this point. I guess I can take in my useless prescriptions to shown him. I just don't want to upset any of my doctors but I am lost here.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/23/2011 10:03 AM (GMT -6)   
Shell....
 
Just my opinion - but I really would follow up and get some pain medication to help you.  They were the ones that messed up on your prescriptions.  I think you've handled it far better than I would have!  I would have gone in.... NOT happy... and demanded they fix the scripts or figure something else out.
 
I wouldn't worry about upsetting anyone.... you need to do the things that are going to help YOU. 
 
I'd really encourage you to make an appointment w/ your PM, ASAP.
 
Hang in there! --Tina

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 6/23/2011 10:36 AM (GMT -6)   
Shell get your scripts taken care of. The last thing you need to be doing while trying to recuperate from surgery is not have adequate pain control. That will truly slow down the healing process and that you do not need. It is too hard trying to rest and let yourself heal as it should if the pain levels are way up there. Now is not the time to try and just bite the bullet and deal with it.

I think everyone over does things at least once when recovering from surgery. Now you know you have to behave yourself from here on out or its just another setback. You can't afford many of those right now.

Wow, how did your daughters arm become infected and get into the abscess stage, what caused this. You are right be so very careful when around her. My husband has had to have wound care many times for his legs and you are so right, the amount of stuff they can pack a small wound with is unbelievable.

Please take care of yourself.
Moderator Chronic Pain Forum

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/23/2011 12:32 PM (GMT -6)   
I did call the OS office to start and explained everything again. Then they had a PA call me back to retell the entire sequence. I said honestly I may have misunderstood anything at any point along the way. She wanted names and time of when I called. Also want to know why I didn't go to the ER when I started w/d, well I am just tough and dont like to complain. I am awaiting a call back from the doctors PA, she said they will be checking things out. I am sure checking out stories and confirming calls, but thats ok. She said they may just send me up to my PM since he is close by. But they will make the calls to confirm everything.

Straydog, I know the night I had surgery she showed me a bump when she came to visits me. I told her it was probably an ingrown hair or pimple and interacted the hubby and her to watch it. She called me the one day and told me it grew and really hurt and her dad was to busy to check it. Fridy when they picked me up it was huge and I said she needs to go to the dr but we didn't feel it was ER worthy. The insurance rejects things all the time for that. By Sunday afternoon it was huge and she had red stripes on her arm. That's when we went to the ER. She should have been seen during the week by the PCP, but my hubby was overwhelmed by taking care of everything himself and she didn't want to bother him by telling him it was worse. I really feel like a bad Mom now for not pushing him to take her sooner. Hopefully it will clear up quickly.

Now I am just trying to stay awake for this call, hopefully they will have a feasible suggestion.

Thanks all for listening!
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/23/2011 12:52 PM (GMT -6)   
Hi Shell..

I really hope you can get all the med issues straightened out...You know I'm the HW worry wart...So I am just doing my friendly reminder that self medicating with medicine that you have leftover and in the house from other things...can be dangerous and cause more issues...I understand you are in pain and need help...but it sounds like all of this is their fault...and hope they will figure that out soon!.

Now you know why I was so adamant the day you posted in the hospital letting us know how much pain meds you were on...that at such a high dose, which was great to help with your pain....if someone messed up during discharging you...or tirating you down....we'd end up where you are now..so I hate to see this happen:(...

Hopefully they will get things together soon!! So you have both pain control and not any withdrawal...

I had staph infections when I was in my teens...I had one large one on my shin and one in my arm pit....these also got infected and had to be surgically removed....The one in my leg I had this awful jerk Dr. who didn't even use a local anesthetic on it and just cut right in to get it out...I still have the nice scar...ugh!!...

But MRSA is so much more common now to worry about in hospitals so just please be careful that it doesn't transfer to you!!!! I hope your Dr. starts to feel better as well..

Keep us posted!...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/23/2011 2:51 PM (GMT -6)   
Well my OS's brilliant way of solving the mix up is by dropping my fentynl to 25mcg from 37mcg and prescribing the oxy at 5mg every 8 hrs. Instead of 5-10mg every 6 hrs pre-surgery. And no muscle relaxer as well once I run out of the Valium. Again, I am back down to less meds than pre-surgery. I dont get it??? I said I would be willing to try the nerve meds again at this point since I am home and can veg out while I adjust but he said no. I swear, I need to record everything that a doctor says to me, so they don't forget their plans. I understand not wanting to prescribe extreme amounts, but if I couldn't function on the levels pre surgery how the heck does he expect me to rehab with an 8 inch incision down my back and all of these irritated nerves. He himself said this surgery was not for pain relief, just to check for union and remove the dangerously located screws.

Ok enough, I just need to get thru the week til I see him again. I still don't know if I want to call the PM and get him involved. He has always been a good advocate for me, but now I worry that i will have a black mark against me for questioning the medications and requesting more. he did make it Lear that the OS was in charge till imwas d/c'd. This really stinks,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 6/23/2011 3:03 PM (GMT -6)   
Oh Shell, they have really put you in a bad spot. If PM says let OS take care of pain meds till he releases you from his care, you are right, it may make you look bad if you go to PM dr saying look I can't handle this. Its a tough call to make. I guess, I would make my decision on how bad I feel. When do you see the idiot OS?

Why do drs do things like this is beyond me. I just do not understand some of the things they do. Anyone with a half of a mind would realize a muscle relaxer would be helpful to you right now.

I am glad to hear that your daughter is ok though. Yes, the red streaks are a bad sign for bad infection. Hey, don't be kicking yourself, you had a lot going on at the time. You still do for that matter.

Keep us posted on how you both are doing. Hang in there Shell.
Moderator Chronic Pain Forum

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/23/2011 5:33 PM (GMT -6)   
I sure do have a name for this OS at this point but it is a family forum and I don't want to get kicked off,lol. My hubby picked up my prescriptions and he so kindly wrote for 15- 5 mg oxy (2 times day rather than 3) and 2 -25mcg patches. His theory is this will get me thru till Thursday when I see him. Yes, I understand the "theory", but every time I go to fill it will be another copay. At the same time it's an @@@@@@@@ theory considering what I have been taking pre surgery. Considering I still have every single dx except non-union! The cyst in my spinal cord hasn't gone away, the scar tissue surrounding the nerves is still there, the fibro, CRPS and arachnoiditis have not miraculously disappeared. All I can say is Dahhhhhh,lol!

Ok enough complaining, won't help but to get me more mad.

We will see how next week turns out for me. Maybe if I take it easy I will surprise myself. But I would rather go about my business as normal and let him see what is the real deal. I know he wants to talk about scheduling SCS placement, but if this is what's going to happen I am very concerned, no matter how good of a doctor he is.

Oh well, thanks for the help, I know I don't listen to well. I agree I should have just refused d/c on Friday, or went to the ER on Saturday. At this point I just hate hospitals.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/23/2011 8:04 PM (GMT -6)   
Shell,
sending well wishes...don't know what I can say to help...
just know that I do care and sure wish you we're getting better treatment...
healing hugz and lots of well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 6/25/2011 4:45 AM (GMT -6)   
Shell74
 
I am really sorry to hear what you are going through!  I empathize and sympathize with you, and I actually can feel your frustration and pain! I know what I went through after my surgery last November, and the long incision down the back of the neck is the worst! I really wish these Doctors would have to experience what we do as patients, and have them have to deal with their BS after the surgery! There is just no excuse for them to treat their patients that way! And for some reason they all seem to have very short term memories!  "oh yes we will take care of your pain, and make sure that you are adquately medicated after the surgery!"  Yes right! But after the surgery the conveniently forget saying that, and we are the ones left to suffer without adequate pain treatment! Reading your post, brings back the memories and furstrations that I had with my surgery! I sorry that you are having to go through this!
 
Anyway if it help you? and I think it does! i know it helped me when I was going through it!  Come here and rant and rave all you want, and know that you are not alone and we are here to listen, and support you! I know it doesn't take away your pain, but it might help relieve your frustration a wee bit!
 
I wish you did not have to go through this!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/25/2011 5:34 AM (GMT -6)   
Shell,
 
I'm so sorry for all you are going through.  You are handling it much better than I would be - I'll tell you that!  I know you are trying to just tough it out and make it to your next apointment.... but this is crazy.  For your meds to be dropped down - even below what you were taking pre-surgery is ridiculous.  Getting good pain control post-op is a key to healing.  From all the multiple procedures I've been through - I know this 150%.
 
Someone else mentioned - it's your call.  If you can tough it out to your appointment, then maybe do that.  I guess from all the experiences I've gone through - I wouldn't sit and be miserable for days, though.  I'd call and say "This is not holding my pain and something needs to be done".  Be it you to your PM; seeing the OS again or go to the ER.  As much as I hate hospitals, too, they have their purpose....
 
Unfortunately, it involves really speaking up and advocating for yourself.  I'm actually pretty shy in many areas of my life - but when it comes to my health stuff - I've learned to shout from the rooftops, if needed.  Through this, though, I've actually gained lots of respect from my doctors because they know that I will let them know when something is NOT right. 
 
I'm sorry.... I can't remember what you were on before - but a few 5 mg oxy and a 25mcg patch is nothing for post-op, depending on what you were on before and so forth.
 
Ahhhh, I need to breathe.  I just hate hearing things like this because - like others here - I've been through things like this and it's just not right. 
 
Please, please call if your pain gets to a point where you can't handle it at home.  Don't worry about being a "bother" - they were the ones that messed up!! 
 
Oh - and I hope your daughter's arm is healing and getting better.  Please keep us updated on everything - because we care!! 
 
--Tina

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/25/2011 5:59 AM (GMT -6)   
Everyone has great advice. Just wanted to pop in and say that I'm sorry that you're going through so much.

I don't understand some doctors. How does lowering your medication after surgery make any sense at all to your OS? Just venting here. It's insane though. You should be able to be comfortable.

I hope that this gets straightened out soon, and that your OS has a change of heart and starts to think clearly!

One more thing...I have dealt with doctors forgetting what they told me. It think that it's a good idea to maybe start emailing yourself after you have an appointment with your OS, so that you have at least some documentation of what he said...kind of like a journal, but one with no emotion, just facts. Also, do you usually have someone go with you to your appointments? Maybe it would help...?

Hugs,

Flower

Angeleyes13
Veteran Member


Date Joined May 2011
Total Posts : 636
   Posted 6/25/2011 4:14 PM (GMT -6)   
I have always believed that pain is for a reason and covering it is no good. That is why I have been on such low doses for the last 8 years. I have also wanted to continue to work and with the amounts it took for me to get good pain control I felt I couldn't drive and deal with my job efficiently.

I have always been told by my PM dr that I greatly underestimate my pain levels. I had to laugh at my roommate at the hospital that said she was at an 11 when she could get up and down from her bed alone and dress herself. It's all about perception, my 10 is crying and unable to move, my 5 is what I am everyday and function at that level. Looking at that silly smiley face chart I need to laugh. I do things even at high pain levels because I have to do it, there isn't a choice.

I have been in bed since I took my shopping trip and over did it on Wednesday. I am back to using my walker since I fell twice. This morning my grandson just kept yelling for PopPop, who was at work. It took my son few minutes to answer his phone and get out of bed to help me. I called the OS again and they just asked how many oxy i had left and said they would call in a few extra Vicodin. I am fine, just frustrated to no end. Honestly I can deal with these pain levels. Not to much worse than a really bad over done it day.

I have yet to figure out what I did to deserve all this or what the outcome for me will be in 1 year or 10 years from now. I will be lucky if I keep my career and husband much longer. My kids hate the fact that I can't do things with them. No roller coasters of trips camping. I really just want to wake up one day and everything miraculously be gone! Oh my goodness, I really need to stop the pitty me party. Blah, blah, blah!

I appreciate everyone here so much. As I said before I am at a pretty rough point and I may not be able to offer constructive support. Its not that I ignore posts, I am just to angry and irritated to be supportive I guess.

I am taking my husband with to my appointment this week, and my voice recorder. I wonder if I need ask his permission to record my visit,lol. I also want to update my Journal my lathe last 2 weeks, meds/pain. I haven't been good about keeping up with it like I did before. I just need some motivation.

Hope everyone is having. Good weekend.
Xoxoxoxox,
Shell
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 6/25/2011 11:08 PM (GMT -6)   
Hi Shell I'm so sorry that your idiot dr isn't keeping his end of things. I know what 5mg oxycodone is about. They do hardly anything for me. I haven't had surgery either like you have. That dr doesn't have any sense reducing your meds from pre-surgery. I'm also on higher fentanyl patches too. What is he thinking?

I hope he straightens up when you see him at your appointment Thursday. I'm glad you're taking your husband with you.

Try not to think too far ahead. I know it's easier said than done. You've still got a lot of healing to do. Try to take it one day at a time. I need to remind myself of that too when I'm in a lot of pain. Bless your heart.

I hope your pain is better tonight and you're able to rest. Take care.

love and lots of soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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