New Med for me Nucynta

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luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/22/2011 8:17 PM (GMT -6)   

I saw my PM Doc on Monday...from what I told him, I am not tolerating the Nortriptyline at the max 80mg. Too many side effects. So he is taking me down to 50mg, then 25mg and then nothing.

 

I told him how I was feeling on the Oxy 10mg during the day and he wants me to try a newer drug called Nucynta 50mg. He wants me to take this during the day (1 every 4 hours as needed) instead of the Oxy. I will still take 20mg Oxy at bedtime.  I am just amazed at how much trial and error goes into finding the right "mix". Sometimes I wonder if I will ever find mine..

Has anyone taken Nucynta before? Like or disliked?

 

Thanks!

 



 


Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/22/2011 8:57 PM (GMT -6)   
Hi Lucky..Glad to see that your Dr. is working with you to try and find a good combination...

Please make sure you read all the enclosed information about this medicine...It says it's 'similar to morphine'...It can also cause fatigue...especially added to any cold/allergy meds, other narcotics, nerve pain meds, antidepressants, or anxiety meds....So really be careful..I wouldn't drive for the first days taking it because of the possible sleepiness....

It's not a 'long acting' medicine like the Oxy...it's an every 4-6 hours...so you will have the ups/downs with your pain unlike the extended release of the Oxycontin...so you will just have to find a good schedule for it...

I always have my Pharmacist do a med interaction check when filling the prescription...

So you know me...your worry gal:)....Since it's a fairly new med....I have never tried it and I've seen some people have good results with it...

I hope it works for you!!

Yep...it took me quite awhile to get to a good combination...

I'm sending you some hugs tonight (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/22/2011 9:32 PM (GMT -6)   
Thanks so much SB, I know your always looking out for me :) well all of us! I had read all of that as well. I did look into all that and now I don't know when to start it..it's always something with me I tell ya...Doc says he didn't think it would "knock" me out during the day, and just to start it then. I on the other hand do worry about trying it on a work day, but I also don't want to take it at bedtime with 20mg of Oxy either :)

Hope all is well with you!

Many hugs back!
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

mylifewithfibro
Regular Member


Date Joined Aug 2010
Total Posts : 101
   Posted 6/22/2011 10:36 PM (GMT -6)   
Hi luckyflowers,

My name is Stacy I'm usually in the Fibromyalgia forum. I have been on Nucynta for about a year now and I take 100mgs 4 times a day. To me this medication is not as strong as Oxy to me but I think I am getting immune to it already. When I started it I did'nt take it until my days off came around just so I could see how it would affect me it does work but it just does'nt work as good as Oxy to me. Maybe once you see how it works for you if the 50mgs does'nt work it can be increased. Hope this helped some.

P.S I did go to a drug interaction site and checked to see if it interacted with some of my other meds and it did so you might want to check into it.
Stacy

Dx: Fibro, Cervical Disc Disease, IBS, Severe Migraines, Chronic Fatigue Syndrome, High Blood Pressure, Low Vitamin D, Anxiety/Panic Attacks, Depression, Bursitis in both hips, Constant Chronic Pain all over my body.

Meds: Lyrica, Elavil, Zanaflex, Medrol, Lunesta 1 @ bedtime, Nucynta for pain

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/22/2011 10:46 PM (GMT -6)   
Thanks Stacy, that is a great idea. Did it make you sleepy?
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/23/2011 12:07 AM (GMT -6)   
Well, hello there Miss Lucky....
 
I was wondering where you've been....!!  You were quiet for a couple of days!   Glad to see you posting!!  tongue
 
Oh, the stories I could tell ya.  It only took me.... ummmm, 5 years to get to a combo of meds that worked.... and even w/ that, some minor tweaking over the last couple of years.  Luckily, I have an awesome PM doctor that knows I also do my homework and know a ton about all this stuff - so he listens to me and all my *suggestions* :)
 
So - I'm glad your doctor is working with you.  Be patient - I really feel confident you'll get there... if just may take another couple "adjustments".
 
I've been on just about every med, at every strength... but since this is a newer med... and I'm already at the dilaudid/fentanyl stage - I haven't used this.  But glad there are a few here that can give you some info.  Also, too, if you go to search - do a search on Nucynta... because I know we've talked about this med before. 
 
Ok, girl - let us know how it works, ok??  Did you watch our shows this week?  Bachelorette was good.  I can't believe I watch that darn show.  I'm sitting here watching So You Think You Can Dance that I DVR'd from earlier.  Ahhh, my crazy life! 
 
Many hugs!!  SO hope this medication works for you!  --Tina

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/23/2011 8:25 AM (GMT -6)   
Ahhh....I can't believe they left us hanging again on Bachelorette!!! At least we know 'who' is at the hotel....but just how long he is back for....hmmmm....LOL....How about who she got rid of this week?

Hope today is a good day for you Lucky!!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/23/2011 8:48 AM (GMT -6)   
Hey SB,
 
Totally agree!  I wonder what she thought when she finished taping and was able to look through the footage and found out all the things Bentley said about her.  Also - when I went to the grocery store yesterday - I saw on some magazine cover that said "I'm Engaged" by Ashley.  Who knows if it's true, but it did look true.
 
(Sorry, Lucky, not trying to hijack your thread w/ meaningless stuff.... but hopefully it will put a smile on your face!!).
 
Take care girls!  The babies have been up WAY to early and, if you know me, I'm NOT a morning person - given that I don't sleep most nights until way late.  Gotta love having twin babies!
 
Talk to you guys more soon.... Love, Tina

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 6/23/2011 3:49 PM (GMT -6)   
Hi Lucky, GrainofSalt, one of our members here is on this medication or was at one time. If you will use the search here at the forum and type in the medication you will find various posts about this medication. As you know, everyone metabolizes medications differently, so who knows this may well be the medication for you. It is all done by trial and error at best when trying to find something that really will help a person.

I will keep my fingers crossed that this new medication will be the one for you. But, please do use the search here and read the posts on it. Good luck.
Moderator Chronic Pain Forum

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/23/2011 8:40 PM (GMT -6)   
Tina...I was off the computer for a few days, I actually just felt like crap, and had no interest in it at all. Thanks for missing me. So, I took my first pill today at 11am I felt a bit "weird", and got a bit sleepy, or drowsy. Around 3p I got super sleepy. I decided not to take another one since I can every 4hrs as needed since I would need to pick my daughter up from summer camp at 530p, and I thought it might make me even more tired.

I just need to get used to this new med more I think and become adjusted better. Oh, I also have noticed that I jumble my words alot but I think that is more from the Topamax then my other meds...Like I'm drunk, but I am not..

Also, today was a bad pain day for me. So I could have used something that is for sure. I was very grateful that my mom could come over after work for a bit so I could take another pill and lay down for an hour.

Straydog....Thanks and I did do a search and I also saw some of his comments, and thanks for yours as well.Especially about how we all metabolize differently. That is so true for me as well, since having my gastric by pass surgery, meds hit me real quick. I hope your doing ok??

Tina and SB.....Too dang funny...Bacholerette....I can't begin to tell you what I would like to do to Mr. Bentley!!! what a horses behind!!!!! LOL And yes he is back in that hotel room...he needs to just come clean so she can move on!!!

You can always hijack my thread and this is NOT meaningless stuff LOL

Hugs to all!!
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/24/2011 1:00 AM (GMT -6)   
Lucky,

Well, shoot, I wrote you a response and hit send... and it ended up in computer la-la land.  Frustrating!

Anyway, no worries about being gone.... I just wanted you to know I missed you!  I get like that when I'm struggling w/ my own health stuff.  There are days when I'm just too sick to make it to the computer.  So I understand.
 
Re: the topamax - I'm not on it any longer - but I had a similar side effect... it would often make me slur my words (like I was semi-drunk).  So, keep an eye on it.
 
I do hope this new meds help you... if not, call your doctor and try again.  Unfortunately - you are right at that trial/error stage.  So, hang in there... and REST.  I sure hope you feel better, Lucky!
 
Hugs, Tina

mylifewithfibro
Regular Member


Date Joined Aug 2010
Total Posts : 101
   Posted 6/25/2011 12:18 AM (GMT -6)   
luckyflowers said...
Thanks Stacy, that is a great idea. Did it make you sleepy?


Hi Lucky sorry I did'nt get right back to you I have been feeling like crap. But as far as did it make me sleepy at first it did until I got used to it but everyone feels different when they take new meds I have a friend that says it did'nt do all that much for her but it did help me when I first started taking it I will be asking my PM doctor if he could give me something stronger at my next appointment. I know one thing if you dont have insurance which is my problem right now this med is very expensive $400 bucks for 120 tablets. So I really need to change this med at that price. Well please keep me posted on how you are making out with this med and good luck

Stacy

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/25/2011 11:40 PM (GMT -6)   
Stacy, no worries. I understand not feeling well. I do have insurance and Doc gave me a coupon as well so it was only $25. So far it's working ok...I'm not super impressed yet but its just been a few days so we will see. I get a bit sleepy but its hard to tell if its from this med as I seem to always be sleepy.

Hugs
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nortriptyline, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 5 and 13 and my son 16yrs old. I work fulltime.
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