Does anyone have experience with neurostimulators?

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New Member

Date Joined May 2011
Total Posts : 9
   Posted 6/24/2011 5:26 PM (GMT -6)   
I have a lead that has moved in mine after 2 years, and want to know how common is this?
I had mine implanted 2 years ago and generally I have been satisfied with it. Until I found out I had a lead that moved.

Veteran Member

Date Joined May 2011
Total Posts : 636
   Posted 6/24/2011 10:24 PM (GMT -6)   
I researched on the Boston Scientific website before my trial and I believe lead migration was fairy common. In their product manual it does give specific percentages. I am not sure how their documentations hold up to real life practice but at least it could be a starting point. I am awaiting placement but need to have my hardware removed first, it seems like such a long process.

Good luck,
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion non union with hardware issues. Fusions C5-6, L5-S1. SCS trial successful awaiting placement after fusion revison 6/11.
MEDS:Fentanyl Patch 25 & 12.5 mcg, Fentora 100mcg, Oxyfast 10mg, Morphine Sulfate 15mg, AtacandHCT32/12.5mg, Clonidine, Zofran.

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 6/25/2011 12:08 AM (GMT -6)   
Hi SCCPappy I don't have a neurostimulator, but I did want to come and welcome you to our chronic pain group. There are members here that do have them. I'm sure they will be by to tell you their experiences really soon. There are a lot of loving and supportive members here. I wish you good luck with getting your lead back to where it belongs.

You take care. I hope you're having a low pain night.

hugs Loretta

ps. Could you introduce yourself to us, so we can get to know you better?
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Forum Moderator

Date Joined Jan 2005
Total Posts : 9250
   Posted 6/25/2011 1:15 AM (GMT -6)   

I too came to welcome you to the Chronic Pain Family. You'll find the people here are warm, compassionate and least that's my experience. I don't have a stimulator either but do hope you find your answer from those who do. Straydog should be around before too long to share about her stim and others should be also.

Stay in touch and a gentle Hug for you~~
Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16787
   Posted 6/25/2011 7:17 AM (GMT -6)   
SCCPappy, hi and welcome to Healing Well's chronic pain forum. The leads are known to migrate and it is common. We have a lady on here that just recently had surgery for this problem and I cannot remember off the top of my head how many times this has happened with her. I know she is really upset over the repeated surgeries and I don't blame her. I am thinking they may on her last surgery put paddles in but, I could be wrong. This has happened to several of our members with the SCS units. You would think this is something they could design and do a better job of fixing so you folks do not have to have repeated surgeries.

If you will look at the top of this page on the right there is a search. If you will type in SCS Units you will find a good deal of posts and they are fairly recent and the posts are about the leads migrating. I am sorry to hear the very same thing has happened with you too, that too bad. Like i said, you would think this is something they could correct to stop this from happening.

Anyway, I wanted to pop on and tell you welcome aboard and let you know where to look here about the leads. Take care.
Moderator Chronic Pain Forum

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 6/25/2011 7:50 PM (GMT -6)   
SCCPappy, hi and welcome.

I think it was probably me to whom Straydog was referring... I've had my SCS for five years and had five surgeries in that time. I've had two major 'episodes' of lead migration - not just changes in stimulation pattern but back pain and additional legs as well - due to the leads pressing on nerve.

I now have something called a 'microplate', but I already seem to be having problems with it - having trouble getting stimulation in my left leg :(

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Regular Member

Date Joined May 2011
Total Posts : 104
   Posted 6/26/2011 12:16 AM (GMT -6)   
Hi SCCPappy and welcome. I have just had my 6wk check up for my unit and so far everything was fine. I did have to have one side adjusted. I don't think it was a change in pattern stimulation as much as it was because of the fact that it was the side that the unit is in. I just think that side was still sore from surgery and not really feeling what was programmed. Either way, I'm fixed like a old car(held together with duck tape & wishes). I hope you get your leads put where they belong. Good luck.

New Member

Date Joined May 2011
Total Posts : 9
   Posted 6/26/2011 9:33 PM (GMT -6)   
Ok, about me, I injured my back 6 years ago. 5 years ago was my first surgery, I had disc replacement surgery. Worked great for about a year until my employer wanted me on my feet 12-14 hours a day. So, the surgeon shortened my hours until he took me off of work completely. Then 2 years ago the insurance company approved doing the stimulator.

Thank you everyone for the kind words and encouragement.

New Member

Date Joined Jul 2011
Total Posts : 8
   Posted 7/24/2011 10:17 PM (GMT -6)   
I'm new here. I'm 1 week post op of the SCS. I did the trial and it went great. I get the unit turned on this Tuesday. Mine is by Boston Scientific. I like reading the comments so that I know more about the unit if I start to have any problems with it. I have a couple questions of my own. Did everyone who had this SCS surgery have intense pain afterwards? I could not get out of bed the first 2 days. What was suppose to be a 1 day stay in the hospital ended up being 4 days. I know there is a certain amount of healing time and I'm not a very patient person. Does this pain last long? Does the SCS help with the sugical pain at all? Good luck SCCPappy, hopeit works out for you.
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