I miss my Cymbalta

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Date Joined Jul 2009
Total Posts : 2042
   Posted 6/29/2011 3:44 AM (GMT -6)   
Many of you may remember me telling you that the state of IL in all of it's wisdom placed both Cymbalta and Lyrica on the non preferred drug list for this fiscal year, and saying that I was on Cymbalta for diabetic nerve pain.

Well my doctor submitted all the paperwork trying to get a exception made and it was denied, saying that I can be put on Gabepentin (Neurontin) instead which is a crock because I was tried on that medication before being put on the Cymbalta. I got the news a few weeks ago and now it has been just over a month since I have not had any to take. Fortunately I was "smart" and tapered down my doses (I was on 90mg once a day) before running out so the withdrawl symptoms were very minor and only lasted a couple of days.

But I really, really miss this medication as it took care of about 99% of my diabetic nerve pain. Since being off of it I have to "rely" on my dilaudid to try to handle that pain, but as we all know certain types of medications do not work well for certain types of pain, and this is the case with me. Narcotics, unless given in fairly high doses, do not do much for my nerve pain. They never have. Right now I have maybe a 5% reduction in pain and my feet and lower legs hurt so bad that it is making it difficult to walk, and I don't really want to mention what it is doing to my sleep.

I haven't had a chance to speak to my doctor since getting the denial, but I have an appointment with her on Thursday, assuming she does not cancel it for some reason, and it is on the top of my list of things to discuss.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/29/2011 4:35 AM (GMT -6)   
That is just ridiculous.... I can't believe that.  I must have missed the conversation when you mentioned it before. 
I completely understand what you are saying.  I've got an arsenal of meds...but only certain meds work on certain parts of my pain/health issues.  It's so frustrating that the Cymbalta was working for you - and now you can't get it. 
Please let us know what happens at your appointment w/ your doctor.  I hope she really listens and is able to offer you some type of help.  Good luck on Thursday - and let us know what happens.
Pain Issues: DDD; fibromyalgia; migraines; carpal tunnel syndrome; tendonitis
Multiple Health Issues: Disabled due to POTS (heart condition); dysautonomia (dysfunction of the nervous system); hypothyroidism; adrenal insufficiency; chronic hypertension; chronic fatigue; sleep apnea; anemia; Vitamin D deficiency; etc etc
Meds: Too many to list....
Personal: Mom to 6 boys and twins girls

Veteran Member

Date Joined Oct 2009
Total Posts : 5028
   Posted 6/29/2011 6:49 AM (GMT -6)   
Another drug in the same category is Topamax - which is generic, so cheap and allowed. It works well for pain for me with some caveats, so read up on it and try out cautiously at tiny dose to start!

I love the pain efect of this drug, but I am wondering if I am having side effects from it or just from my sinus surgery. I never tolerate drugs well, so start on half or 1/4 the lowest available dose. For me that's 1/8 (awfully hard to cut) of the 50 mg pill, but it comes in 25 and 15, which I would say cut also. It's a little bitter but quite tolerable.

I am having tinnitus, food tasting bad, just had a bad tachycardia event which was precipitated by albuterol, but having small ones also even watching my diet for my other triggers, feel hot then cold, hot flushes. But I have a sinus infection going on too (call in to ENT). The effects could all be from sinus problems or the drug.

I get some relief from tramadol and tiny help from Tylenol which potentiates a bit.

My hand doc said try 100 IU B-6 a day for nerve pain. Virtually ALL vitamins have only tiny amount, so look for B-100, which also has B-12 but is a little large for me, or straight B-6 100 IU.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 6/29/2011 8:57 AM (GMT -6)   
Can you get Cymbalta prescribe to you for depression...it's also used for depression...
maybe try that way...sure hope you can find a loop hole or someway to get your medicine...
well wishes to you Jim and keep us posted as to what your doctor says...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 6/29/2011 8:14 PM (GMT -6)   
Paula, that is the way it is suppose to work, but all too often it doesn't here in the land of Lincoln and corruption.

If it did then my Cymbalta would have been allowed since I have already been on Neurontin which is the state's preferred med at this time for diabetic nerve pain.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 6/29/2011 11:12 PM (GMT -6)   
Hi Jim I'm sorry that you're hurting so bad. ((((((((((hugs)))))))))) Maybe you could get Cymbalta prescribed for depession. That's what I take it for.

I wish you good luck with your appointment. Hopefully the doctor can figure out something to help your pain.

It's stupid that the government and insurance companies act like they know what they are doing, not.

Bless your heart.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 6/30/2011 11:08 AM (GMT -6)   
I just got back from my doctor's appointment and she is going to try again to get my Cymbalta approved.

She says she does not recall submitting anything forms for it before now. So either she has forgotten which is entirely possible, someone else filled them out and returned them such as a nurse and never brought this to her attention, or the pharmacy is lying about submitting the forms to my doctor needed to get prior approval. At this point anything is possible, but if she can get it pushed through I really am not going to worry about it too much.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
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