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Veteran Member

Date Joined May 2011
Total Posts : 636
   Posted 6/30/2011 9:20 AM (GMT -6)   
I will make this short, i am sitting in the parking lot and am afraid to drive. My hubby couldnt come with me today due to a job.

I really am very upset at this point. Had hardware removal and scar removal from fusion on the 13th of his month. Spent 5 days in hospital due to nausea vomiting, fever, blood pressure issues and dizziness. Now the dr say he wont do my SCS because pain response to this "simple" surgery was so out of wack. He says i am a nice person, and admires me for continueing to work but he is done with me. Sent me out the door with nothing but a handshake!

He said if I can get my PM dr to do a subcutaneous SCS and i have good results for 6 months he will consider a paddle placement which requires a laminectomy. In his words he doesnt think anything will resolve my back issues at this point, but he cant tell me why i should have so much pain atbthis point. Ad he says i should get in better shape, that was the purpose of the hardware removal and SCS so i could increase activitiy levels. Btw, this is also the dr that said he doesnt feel i need to lose weight 2 months ago.

Called my PM dr and he cant get me in till the 7th and they dont keep a cancellation list. But i can call every morning to see if there is an opening. I just feel so confused. This is so unfair to me at this point!

I am going to try and find someone to come and get me since there is no way i can makeit home safely, i think i would be arrested for aggressive driving and causing an accident.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 6/30/2011 11:08 AM (GMT -6)   
Oh Shell, I'm sorry about your appointment :(

It seems so very unfair for you *gentle hugs*
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 6/30/2011 11:39 AM (GMT -6)   
While it can certainly be a shock to have a doctor say there is nothing more that they can do for you at this point I personally would rather here that than for them to be the other way about things and have them go off on some kind of "God" trip and put me through hell on the slight chance they can help.

BTW, and I am sure you will realize this once you are able to settle down, but getting into better shape does not necessarily mean you need to lose weight. I know plenty of people who have an ideal weight, a real good BMI, etc who are in a lot worse shape than others I know who have an extra 50 or 60 lbs. What being in good shape really means is that all of your body's systems work as well as possible. From you heart and lungs, to your muscles, to your immune system to your digestive system, and so forth.

Finally I am glad that you are thinking well enough to understand that you are too upset to drive right now. That speaks very highly of you.

Hang tight. Everything will work out. It just may not happen the way you were hoping or expecting, but it will work out.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/30/2011 11:40 AM (GMT -6)   
I'm so sorry about your appointment..... just so unfair.
I hope you found someone to get you home safely.  Let us know how you are doing when you can.
Take good care...Tina

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 6/30/2011 12:08 PM (GMT -6)   


         I agree with Jim here about the getting into shape, vs. the weight issue. Sorry your DR opted out on you. Does this mean he has cut you loose from all medical needs?...or just managing your pain issues?

   Hang in there!


Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Veteran Member

Date Joined May 2011
Total Posts : 636
   Posted 6/30/2011 12:55 PM (GMT -6)   
SE, the orthopedic surgeon has dc'd me from all care. PM will pick me back up on the 7th. They are going to call in what they can today, I opened my safe and have enough liquid to barely make it (precribed to me but older) till next week. And enough 12mcg to do the same, at least itbwill keep it in my system. I just feel this entire surgery process was a complete disaster.

It will be fine, just so unexpected! Just angry and frustrated sorry for the vent,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 6/30/2011 5:44 PM (GMT -6)   
I am sorry that your surgeon treated you that way! But in general surgeons just go in and do what they need to do and then get out, and follow-up for as little time as possible and then they wash their hands of the patient, and go on to another one. They often seem to have the attitude, " I did what I was suppose to do, you should be fixed! If your not, then it is not my problem! Good Bye!" It seems cold and really,.... it is! I have never met a surgeon that really understood "pain" and that is unfortunate to say the least! But that is the way it just seems to be!   I am really glad that you have had the foresight, to at least be half way prepared for such an occurance,  such as what you are having now! It might be tough on you, but some pain relief is better than none!   Hopefully you will be able to get by until you see your PM in July. It is funny because my refill date with my PM is also the 7th. I have a very good PM Doctor, I feel blessed that he is so compassionate and caring!   I do  hope your PM can help you,  who knows maybe he can recommend another surgeon to do the SCS. 
I hope you can get some lasting pain relief, or at least a long last program to keep it under control! Good Luck to You!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Veteran Member

Date Joined May 2011
Total Posts : 636
   Posted 7/1/2011 6:04 AM (GMT -6)   
The PM will do the subcutaneous SCS for me, we just agreed the paddles would be more secure due to my age, activity level and desire to continue working.

Last week in the hospital the OS said he was going to schedule the SCS asap since we determined the pain was not from non union. Not sure what made him change his mind. Now I am back to square one it seems. I don want massive ammounts of meds, I would rather have the SCS and keep my meds as low as possible.

Even with the decrease i have had since Monday, the skin on my right leg is absolutely on fire. Since I am home for the summer and Kiby is at daycare I think I may try to ask for a nerve med again. They didnt work before but it was more because i couldnt work thru the side effects. I was a zombie. Now maybe i can get past 2-3 weeks and see if those diminishish.

Thinking a bit clearer today for the momment,lol.
DX: CRPS/RSD full body, Fibro, CP, DDD, DJD, OSA, Syringomyelia, Arachnoiditis, failed fusion. Fusions C5-6, L5-S1, hardware removal and removal of scar tissue. SCS trial successful awaiting placement.
MEDS:To many to mention, changes every week it seems.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 7/1/2011 9:41 AM (GMT -6)   
Hopefully things with your PM Doctor will go better....will be hoping that you can get in to see
your pm doc soon, will be thinking of you and sending Prayers and well wishes...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Forum Moderator

Date Joined Feb 2003
Total Posts : 16792
   Posted 7/1/2011 2:00 PM (GMT -6)   
Hi Shell, it will interesting to see what your PM dr thinks of the OS bailing on you like he did. But, you know for what its worth I always say there is a reason for everything. Who knows, a fresh set of eyes may be what you need. i feel certain your PM dr knows of many OS that can put in paddles for the unit. I know its not much fun starting over with a new dr but it will be for your best in the long run. Something is just not right with your OS doing what he did.

Try to hang in there until you see your dr. Take care of yourself.
Moderator Chronic Pain Forum
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