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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 6/30/2011 3:54 PM (GMT -6)   
I have Hep-C, found out about it back in 1999.  As far as I can tell, and my GP is the one to tell me I had it, for the time being it is dormant.  I have to have my blood work done at least once a year, I am ok with it, but then what choice do I have, its not going anywhere, I can hope and pray that it remains dormant as long as possible.  I dont have to do the interferon thing, which I have heard is quite nasty.
 
So I just wanted to share this with all of you, and wondering if anyone has this awful thing.
 
Hoping you all have low pain days now and always, thanks for letting me share.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1200
   Posted 6/30/2011 6:21 PM (GMT -6)   
I'm sorry to hear you have to deal with that. I don't have hep-c but my dh does and he's been on three different interferon treatments which have all failed he also has crihosis of the liver. I hope you continue to do well.


Kay

Post Edited (auntkay) : 6/30/2011 6:26:04 PM (GMT-6)


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/30/2011 7:44 PM (GMT -6)   
I'm also sorry to hear that you have this terrible disease. I'll hope and pray with you that it stays dormant. Thank God I don't have it.

You take care. I hope you're having a low pain evening.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 6/30/2011 11:04 PM (GMT -6)   
Thanks for sharing that. I don't have it and to be honest with you, I don't even know what all it means or can do to you. I do hope that it stays dormant though.

If your up to sharing further I would like to understand what it is. If not I understand and I can just look it up :)

Hugs
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nucynta, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 6 and 13 and my son 16yrs old. I work fulltime.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/1/2011 10:32 AM (GMT -6)   
Thank you all for your well wishes.
 
Luckflowers, I have no problem explaining as much as I can about hepititis C.
 
Hepititis C affects the liver, and can cause some liver damage, it is possible if the hep-c is active, the drug interferon is used to try to as far as I know, not cure, but slow down the process of the disease completely ruining your liver.
 
Hep-c can be gotten several different ways, it is a communicable disease, it is a life threatining disease.  You can get it by having a sexual encounter with a person who has hep-c, it can also be gotten by sharing needles with someone who has hep-c.  Sadly this disease is associated with heroin addicts in particular, as addicts will share needles if they are sick (withdrawal), I live near the District of Columbia, a large city that fortunatley has several places addicts can go to get clean needles.
 
I will tell you, I got this disease from the father of my youngest daughter, whom was a heroin addict, but at the time I met him almost 28 years ago, I did not know he was an addict, and of course he neglected to tell me.  At the time I met him, I had no idea what the signs of an addict were.  Believe me I now know more than I ever wanted to.  I spent close to 26 years trying to beat out heroin, but she beat me every time. 
 
Finally, I realized that heroin would always beat me, another woman, that I could have competed with, heroin I could not.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 7/2/2011 5:06 AM (GMT -6)   
Kathy, I'm sorry that you've got this to deal with as well as your other problems. Thank you for sharing with us - and I too hope that it remains dormant *hugs*
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

notgivingup
New Member


Date Joined Jun 2011
Total Posts : 18
   Posted 7/2/2011 1:45 PM (GMT -6)   
hi kathy, o sorry to hear about the hep-c thing, i have stage 4 cirrohsis but itis related to nash..anyway f you will go to hepatis in stead of chonicpain and post you'll get alot of good info on hep-c. blessings...sanda

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/2/2011 3:43 PM (GMT -6)   
Thank you sanda, as soon as I finish this thank you I will do just that.  You know I have always been one of those people that tries to hide even from myself things that I should be getting as much information as I can.  Instead, I try and pretend that its ok, it will go away if I just ignore it.
 
I am 58 years young, its past time that I stop doing that and face whatever it is that I have and get as much information about it as I can.  Knowledge is power, I have heard this over and over.  Its true, so off I go into the world of information to find out what I can do to keep it dormant, if it even is dormant.  Months ago my gp gave me a prescription to get a sonogram done, along with some more extensive blood work.  I am going to get it done before I end up saying to myself, If I had only done this or that sooner.
 
Again, thank you sanda (aka notgivingup), you have helped me open my eyes and get on with the business of living.
 
Hope you are feeling well and will continue to feel well for a long long time.
 
 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

luckyflowers
Regular Member


Date Joined May 2011
Total Posts : 164
   Posted 7/2/2011 5:26 PM (GMT -6)   
Thanks for sharing that info..wow thats amazing! You sure have much to deal with, but your last post is so very true. You seem to have a great head on your shoulders. You know what you need to do..

Stay well, thinking of you!

Hugs,
Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nucynta, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 6 and 13 and my son 16yrs old. I work fulltime.

notgivingup
New Member


Date Joined Jun 2011
Total Posts : 18
   Posted 7/3/2011 7:18 PM (GMT -6)   
hi kathy, i hope that you found the info you needed....i also am 53yrs.young and had gallbladder surgery on apr.20'11,and had a liver biopsy done then. that is how they found out the stage 4 cirrhosis. but praise God, i feel pretty good right now. it was really a shock to begin with but i know who is in control of all and i lean on Him. i'm praying for you kathy....just hang in there and listen with your heart....isaiah 41:10...blessings...sandra

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/3/2011 7:59 PM (GMT -6)   
Thank you Sandra, with both of us praying how can we go wrong?
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

notgivingup
New Member


Date Joined Jun 2011
Total Posts : 18
   Posted 7/4/2011 8:47 AM (GMT -6)   
AMEN! sister kathy hope you have a blessed day! always remember He promised He would never leave us or forsake us! I hope you enjoy the 4th. would you believe i just came out of my veggie garden? did some hoeing and weeding. I thank you Jesus for giving me the strenght to do it today...what a blessing! any way blessings friend! sandra Phil.4:19
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