New to forum, looking for people to talk to who understand =)

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New Member

Date Joined Jun 2011
Total Posts : 1
   Posted 6/30/2011 9:09 PM (GMT -6)   
Hi everyone,

I'm new to this so please bear with me. This is my first time joining a forum. I'm a 36yr old mom & wife who is suffering and I could really use some conversation & support with people who understand what it's like to be in pain on a daily basis. I have had several surgeries including lumbar discectomy/laminotomy & total hip replacement. For quite some time now I have had pain in my back, legs/feet and hands/forearms that has progressed to a point that I am struggling with general day to day things around the house. I had to go on medical again about 2 weeks ago because the pain has gotten so severe that my body just wont "go". I am seeing a rheumatologist tomorrow for the first time. My primary care Dr has been of NO help. I have tried to remain optimistic & positive but the last few days have become quite a challenge

Regular Member

Date Joined May 2011
Total Posts : 164
   Posted 6/30/2011 10:59 PM (GMT -6)   
Hi, and welcome. You will find what your looking for here. So pull up a chair or plop down on the couch and get comfy if that is possible. We do understand!! I do want to send good wishes your way with your appt tomorrow. Have you ever seen a pain management Dr? Or are you on any medication? Seems you need to be on something for your pain...

Make sure you keep posting, as you will find lots of support here. Update after your appt.

Dx: Herniated disk in my neck C6-C7, Degenerative disc disease and arthritis in my neck, sciatica, RLS, migraines and post-op RNY gastric by pass and depression.

Meds: Oxy, Nucynta, percocet, norco, xanax(as needed), sinement, topamax, imitrex, and paxil

Personal: Single mom 43yrs old to three children- two girls 6 and 13 and my son 16yrs old. I work fulltime.

Screaming Eagle
Forum Moderator

Date Joined Sep 2009
Total Posts : 5005
   Posted 6/30/2011 11:56 PM (GMT -6)   
Hello Guitarmom!

Welcome to the Chronic Pain forum!

Yes!...we have a great support forum here, and I believe you will fined the members warm and friendly. This forum is the very best for CP support on the web!

I'm wondering if you are on medication, and if so what are you taking? If you get some extra time, please check out the "Chronic Pain 101" at the top of our home page. It is full of great articles!

We are sorry to hear that you are suffering so bad, and we do understand completely. We also have a chat room, and many of the members meet there nightly. Just sign in and introduce yourself there. You will be quickly greeted.

Please do stay involved here, and make yourself at home with us.

Take care...and again, Welcome!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Veteran Member

Date Joined Jul 2009
Total Posts : 2042
   Posted 7/1/2011 12:19 AM (GMT -6)   
One thing we are loaded with around here is understanding.

If all of us were to meet somewhere and share our stories you would hear people in the audience going..."Uh huh, thats right. I know exactly what you are saying".
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Forum Moderator

Date Joined Mar 2011
Total Posts : 1276
   Posted 7/1/2011 6:14 AM (GMT -6)   
Hi Guitarmom. and welcome from me too. Our problems are pretty varied here but one thing we all have in common is pain - and like Jim said - understanding by the bucket load.

I hope you find help and support here *gentle hugs*

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Regular Member

Date Joined May 2011
Total Posts : 28
   Posted 7/1/2011 8:55 AM (GMT -6)   
I'm glad you joined the forums. I'm a 38 year old mom and not only struggle with chronic pain but also extreme amounts of guilt when it's hard to keep up with my 2 year old. It's so comforting to find out you are not alone, isn't it?

I have to add, I had a birthday party for my daughter over the weekend. My brother came and brought a friend that we've both known since we were kids. He and I got to talking and I found out he's been having chronic pain for the last year or so as well. He started telling me the experiences he's had with physicians, pain meds, depression, anxiety, etc.

My jaw dropped because it was like it was me telling the stories. They were identical..even though my pain is my left upper extremity and his is his lower back and leg. So yeah, there are so many people with similar issues and sometimes you don't even know it!

Forum Moderator

Date Joined Feb 2003
Total Posts : 15873
   Posted 7/1/2011 12:26 PM (GMT -6)   
Hi Guitarmom and welcome to Healing Well's chronic pain forum. I am glad that you found us but very sorry that you have to be here. You are so young to have gone through the big surgeries that you have. It is alarming how many young people suffer. I think now CP is seeing a little daylight in the area of being seen as a real medical problem. For so long people that suffered with CP got little recognition from the medical community. I am not about to jump out and say its great now, but at least we are on the map so to speak.

You mentioned having to go out on medical again, so I am assuming that you work out of the home. What kind of work do you do? It is really hard trying to work a full time job and deal with CP too, I spent many years doing this and know how tiring it can be.

Is there a specific reason that your PCP is referring you to a rheummy? I hope the appt goes well. i see one every so often just for a check up and meds for Lupus. I have been to two and both times they ran extensive lab work on the first visit. The people at the lab said you must be a new patient of dr so and so's cause he runs these labs on all of his new patients, lol.

If this appt with the rheummy does not work out and you get little help, it may be time to be asked to see a pain mgt specialist. A pain mgt dr deals with people that have chronic pain and they have a better understanding of what it like for someone dealing with CP. Most PCP's do not want to offer pain meds on a long term basis, whereas a PM dr will write a script for pain meds if he/she feels it is warranted. In addition to medications, they usually will try injections and procedures in an effort to get the pain level down. I feel certain with all of the surgeries that you have under your belt you probably have done all the things we do to lessen our pain on our own.

I hope you will come back and let us know how the appt went with the new dr. Take care and keep us posted.
Moderator Chronic Pain Forum

Regular Member

Date Joined Jan 2011
Total Posts : 374
   Posted 7/1/2011 12:33 PM (GMT -6)   
Hello, and welcome to the forum! :)

I hope you make some progress on getting things working and moving around better, as well as lowering your pain. I also hope you find some people on here to talk with and share your stories with! Thanks for posting.

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 7/1/2011 3:07 PM (GMT -6)   
Welcome guitarmom, yes you have come to the right place.  First things first, please get yourself a pain management doctor.  Some of us have had good experiences with our gp, but a pm doctor, given they are the good kind will do you a world of good.
My experience was my gp treated me from 1989, until 1999 when he left due to a better job offer he got.  I was in a terrible place even though he gave me enough precriptions to last 2 months, by the time I got to the pm doctor I now have, I have been through at least 4 pain management doctors.  So please start looking now, I think you will find that along with the wonderful cp forum, a good pm doctor will make life at least better.
I (well my daughter) found this forum in March 2011, and I can say with all sincereity this forum has been the best thing that has happened to me since I became disabled.  You will find very quickly that you are not alone, so many others have walked and are walking in your shoes.  This alone keeps me from feeling, well not alone.
Ok I am becoming redundant, its time to sign off.
Hope you will feel better soon, and listen to what people on this forum advise, 9 out of 10 times, aside from having a medical degree, they know what there talking about.
Good luck, keep coming back
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 7/1/2011 8:24 PM (GMT -6)   
Hi guitarmom and welcome to our chronic pain family. There are a bunch of loving, caring and supportive people here. You will most likely find what you're looking for. I've been a member for several years now, and I don't know what I'd do without these wonderful people here.

Come and join us in chat. There's usually people there at night, especially late at night when people can't sleep.

i hope your appointment went well today. If not, as the others have said look for a pain management doctor. You may have to go to a few or you may get lucky and find a good one the first time. You'll probably have good luck if you call around and ask what the doctor does to help pain.

You take care and again welcome to our humble abode.

Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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