bad lead wire?

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kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 7/4/2011 5:43 AM (GMT -6)   
Please tell me I'm just jumping the gun on this one. When I had my 6wk check up I had one of my two reps reprogram my unit because I couldn't feel any relief on the left side. As usual he fixed it, just not to help me. When I met with my other rep for her to reprogram it everything was fine. She even added two new settings. The only problem was when I stood up to leave, I couldn't feel any stimulation on the left side again. I still have pain on that side, just no relief from the unit. Even she didn't understand. She programed it again and everything seemed fined. That was 2wks ago and 2 of the 3 programs are totally gone on the left side and the 3rd one only works about 3/4ths. When I first had this done I felt like "Queen of the World!" and now I feel like "Silly little Court Jester! This is where the pity part is right?

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 7/4/2011 6:51 AM (GMT -6)   
Aww, Kat *hugs* You should probably give your rep a call and see if she can do some more programming for you. I really hope everything is okay - I guess it's possible that you've shifted a lead, but I really don't think it's time to panic yet - they really do take time to settle down and the programming can take a lot of working with to get right. I've lost track now of when my last one was done - the beginning of May, I think? - and I'm still having to get my tech to 'tinker' with with mine. Do you have more than one lead? Sometimes that can be an issue...I've just had a heap of bother with balancing mine because my left lead drains something like 6x more power than the right and the setting I had it had just vanished because it wasn't getting any juice.

The other thing - is she giving you programs for different positions? I.e. sitting, standing, lying down. Depending on where your leads are, a tiny change in posture can make an enormous difference in stim pattern.

Thinking of you - I'm sorry you feel like the jester right now, but hopefully you'll be Queen of the World again very soon!!

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 7/4/2011 9:26 AM (GMT -6)   
My unit is on the left side and I sleep on the right side. I have four leads. I've never had a problem with the right side, if anything that side has had to be turned down because it feels stronger than the left side but now I realize that there was no feeling on the left side. I thought everything was fine and I was still healing but since there has been on and off pain relief I suppose it's time to go back to the dr.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/4/2011 2:46 PM (GMT -6)   
Hi Kat, my name is Kathy (aka nini53) in May 2010 I had my neurostim. installed with several lead wires going down my right leg, and lead wires to the left side of my back.  The stim has not worked since the day it was installed.  First problem, they said was the unit had been installed to deeply to be charged.  Ok.
 
My next surgery was approx. 6 weeks later, supposedly to correct the unit that was installed to deep to begin with.  Ok.  I waited for the surgery to heal.  The surgery healed, I attempted to charge the unit again, and nothing, I called the reps from the company who never left my side during the time they were trying to sell me on the idea of this miracle, funny thing after all was done and I was making myself crazy trying to charge this unit, I couldnt even get one of them on the phone.
 
So after trying many, many, many, times I explained to my pm doctor, it was not working and I was finished trying.  Now I am just waiting a very little while to have the unit and lead wired removed.  Needless to say, I am no big fan of these units.  But in truth, what works for one person doesnt alway work for another.
 
Good luck to you, I hope you will start feeling the relief that I know they capable of giving. 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 7/6/2011 9:43 AM (GMT -6)   
Thanks Kathy, I needed that. Sometimes I do get ahead of myself. Calling my rep is starting to become a hassle already. She is a real sweetheart and will meet me when ever I want and my drs office where we meet is only about 20min away but that's not the point. This wasn't suppose to be a monthly check in procedure.
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