Dear Shaw, problems like yours are just what I am talking about, something has to be done about the mistreatment of cp patients. Yours unfortunetly is a story told over and over again by those of us thrust into the world of cp.
It is beyond me why anyone would think that any of us have chosen this life. What has happened to cp patients is totally beyond our control. I hate to sound like a broken record, but if some of the legislators who are so worried about the abuse of the meds needed to make us feel human, let them walk one day, one hour in our shoes, I think it would change peoples minds.
This is why I urge everyone, without mentioning HW/cp forum, to act, start writing letters, all we have to say about each of our disabilities can be proven with tons and tons of medical records. I have mri's from back to 1994, ct's not so many but enough. We all know how we feel each and every day, I for one am so tired of justifying why I take what I take.
Its time for us to speak up, to tell all how difficult it is to get thru one day. Each day is painful, without the medicines we are forced to take so we can have some quality of life, well it would not be so easy, and I use the word "easy" cause I cant think of another word, anyway life would be so awful without these medicines that help us live as well as we can, its far from perfect, but without them,
Ok, enough said, its time for action. Start writing to your law makers, its not going to be easy, letting strangers into our lives, but if that what it takes so be it. Its got to be better than the daily grind of wondering if your doctors going to give you the medicine you need. Its just got to be.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson