Its been a while and new FL LAWS!

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shaw31
Regular Member


Date Joined Mar 2007
Total Posts : 166
   Posted 7/6/2011 11:00 AM (GMT -6)   
Hi all!  It sure has been a while.  I am doing ok but I want to let you all know what I am going through here in the sunshine state.  My meds have changed so many times I cannot even keep track of it.  Whether it is an actual change in the medicine or a change in dosage it has gotten out of hand. 
 
  Because of all the new laws regarding pain management clinics in FL many legitimate pain patients are suffering.  I go to a legitimate PM docs office with several docs.  They take insurance and do not dispense meds on site.  You get a prescription to take to the pharmacy.  I get my meds every month and get them filled.  I never go to another doc and get meds, I take my meds as prescribed and do not sell or give them to anyone else. 
 
 Now,  because of all these drug dealing clinics I and many others like me suffer.  I was on methadone for long term control and oxycodone ir 15mg for bt.  That was changed because the FL legislator decided to make it hard on docs to prescribe the methadone.  This medication worked great for me and I took it as I was supposed to and did not sell it or give to others.  I was forced to change.  I changed to morphine after many trials with other medications. 
 
 This medication is ok but not as good as the methadone.  I have many more side effects with the morphine and feel like I am medicated when on it.  I did not feel this way with the methadone.  After that issue came my short acting med.,,, the oxycodone 15mg ir.  Many of you may have heard of all these clinics in FL that only accept cash, have lines around the corner, dispense on site and give way to many pills to people.  I saw a special on this and one of the clinic owners was a exfelon, not an MD and his house was full of coke, guns, pills and cash! 
 
 Because of this problem in FL I and many others have been forced to change our treatment plan.  I have injections about twice a year to help with the pain and it does help but not completely and not for bt pain.  I was switched to Lortab after the oxycodone 15 ir.  It did not help and I was taking two at a time.  My main concern for the bt meds were the tylenol in them.  I did not want to take tylenol on a regular basis. 
 
 Now my doc put me on percocet.  It to has tylenol in it but every doc at the practice I go to is so scared to prescribed Oxy ir that you just have to deal with it or find another doc which in central FL you cannot cause there all scared.  Docs here would rather you take a medication that is more harmfull to your liver than a more safer one because of fear. 
 
 Before all this started I could go in and let my doc know how I was feeling and if I needed injections or an increase or decrease in meds or if I needed to change meds all together.  Forget it now.  They will not increase your meds by dosage or amount with fear of the state of FL breathing down their necks.   I am really so sick of it all!  I am so so so so so tired of the government leading my life. 
 
It is so sad what has happened here but I quess I have to blame it on the drug dealers in these clinics.  I also have to blame the state of FL because they should have never let it happen in the first place.  They let it get way way way out of hand.    I am sorry for my rant but I had to vent.  I have vented before on this same issue as some of you may have remembered.  I have to keep you all informed.  I really believe one day I will only be allowed to take tylenol and advil for pain!
 
 
 
(Edited for easier reading) Thanks! SE wink

Post Edited By Moderator (Screaming Eagle) : 7/6/2011 11:56:29 AM (GMT-6)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/6/2011 11:12 AM (GMT -6)   
Dear Shaw, gosh so sorry for the dilemma that the government has put on you and all the others

that are in your situation. Just not fair eh. You should not have to suffer like this. I don't have any suggestions

but wanted you to know that I care.

Hang in there
Suzane

shaw31
Regular Member


Date Joined Mar 2007
Total Posts : 166
   Posted 7/11/2011 9:43 AM (GMT -6)   
I just wanted to push this topic back up top so many more of you can read this.  This is what is happening if Florida and I imagine one day in your state.  This is not right.  It is a vialtion of my right to recieve proper medical care and I am about to get legal with it.  When my pain flares up like today and all of last week I have to take 1 of my b/t that does not help so I try and take an aleve or something with it which I should not have to do.  My doctor should titrate my medication to my pain levels but wont because of the govt.  Some of you may say,  get a new doc.   That is much easier said than done here in Florida as most of them are running scared.  Anyway, sorry for the rant.  I just feel like I am living in a socialistic society!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/11/2011 10:52 AM (GMT -6)   
Hi Shaw,

Good to hear from you.... and thanks for all of the information.  Really unbelievable....  and horrible.  I understand about the need for doing something about the pill mills that exist there.... but there's got to be a better way to do it that doesn't also punish the CP patients.
 
Also, I sort of remember following your medication history here.  I can't believe that you are down to percocet... and I do understand your concerns re: the acetaminophen.  Really - the main point, though - is that you were on meds that were holding your pain... and to be switched, is just wrong.
 
--Tina

Hound-Dog
Regular Member


Date Joined Oct 2005
Total Posts : 183
   Posted 7/11/2011 5:51 PM (GMT -6)   
Hi Shaw :I see the whole issue as the State, Fed and County governments fault for selling so many licenses to shady characters for pill mills.The Gov's only concern was to increase their revenues.Now that the whole deal has spawned a generation of illegitimate drug addicts, the chronic pain patients are getting the bum's rush out the door when seeking legitimate pain control.I'm not sure how much good it will do but writing to your Senator,Congressman and President to explain how their laws are targeting the wrong people can't hurt.Considering the amount of elderly people in Florida that are not getting their pain issues dealt with properly, they must make up a significant block of voters.Start by getting the politicians worried about losing their cushy jobs if they don't solve this problem of their making.I sure hope you can get back on the meds that worked for you.Take care and may God Bless You ...........Rod

shaw31
Regular Member


Date Joined Mar 2007
Total Posts : 166
   Posted 7/12/2011 9:31 AM (GMT -6)   
I really appreciate all of your kind and informative feedback.  I see my PM doc later this week and I will have a little chat with him.  Dont get me wrong.  THe office I go to has great staff.  They are wonderful!  I really just think they are scared for their jobs and possibly their entire business even though they are a legitimate pain management office.  Thanks for all of your input and have a great day!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 7/13/2011 9:50 AM (GMT -6)   
What the Government should be doing is a background check on a clinic, first before
allowing it to prescribe these medicines. That would get rid of a few of those bad clinics...
But the State of Florida just takes things too far and it is hurting us...some of these clinics are even
started by illegals, so again the Government needs to do it's job...We are seeing more crack downs going on
here in Texas, but the Doctor's running these clinics are getting off to easy when caught, and the clinics
are then back and up and running...I think this issue upsets us all that are taking our meds as prescribed.
I feel like a criminal when I have to do the pee in a cup, I don't miss use my medicines...plus my insurance
is not covering the pee in a cup and I had to pay over $130. for that test, if the government is going to mandate
these tests then insurance should be mandated to pay the full costs of them...I also think if you pass it then
it should only have to be done yearly...just my 2 cents worth...sorry but this issue does make me upset...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/13/2011 6:14 PM (GMT -6)   
Dear Shaw, problems like yours are just what I am talking about, something has to be done about the mistreatment of cp patients.  Yours unfortunetly is a story told over and over again by those of us thrust into the world of cp.
 
It is beyond me why anyone would think that any of us have chosen this life.  What has happened to cp patients is totally beyond our control.  I hate to sound like a broken record, but if some of the legislators who are so worried about the abuse of the meds needed to make us feel human, let them walk one day, one hour in our shoes, I think it would change peoples minds.
 
This is why I urge everyone, without mentioning HW/cp forum, to act, start writing letters, all we have to say about each of our disabilities can be proven with tons and tons of medical records.  I have mri's from back to 1994, ct's not so many but enough.  We all know how we feel each and every day, I for one am so tired of justifying why I take what I take.
 
Its time for us to speak up, to tell all how difficult it is to get thru one day.  Each day is painful, without the medicines we are forced to take so we can have some quality of life, well it would not be so easy, and I use the word "easy" cause I cant think of another word, anyway life would be so awful without these medicines that help us live as well as we can, its far from perfect, but without them,
 
Ok, enough said, its time for action.  Start writing to your law makers, its not going to be easy, letting strangers into our lives, but if that what it takes so be it.  Its got to be better than the daily grind of wondering if your doctors going to give you the medicine you need.  Its just got to be.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

shaw31
Regular Member


Date Joined Mar 2007
Total Posts : 166
   Posted 7/15/2011 10:40 AM (GMT -6)   
Thanks NiNi and all others who have responded or read this.  This is a problem that shows inadequate healthcare.  I cannot be treated appropriately because my docs are affraid to prescribe certain meds or to prescribe over a certain amount of a med.  If I need to take 6 pills a day as b/t medicine because it helps my pain that would equal 180 pills a month.  Legistlators think that number 180 is to much without realizing a true legitimate chronic pain patient may need to take 6 a day to get relief and live a somewhat normal life.  All I have to say is let them live 1 day in my shoes and we will see if tylenol helps them and if it does what does it do to their liver!  I went to my doc a few days ago and asked why I could not be prescribed what worked for me any more.  Why could I not take 15mg oxycodone with NO TYLENOL TO HURT MY LIVER!  He said it has gotten to the point where the pharmacies in this area (central FL) are going to totally eliminate this medication.  They will stop stocking oxycodone 5, 10, 15 and 30mg because of the bad rap.  That is absolutely insane!  I am forced to take a oxycodone product now with tylenol in it and at a smaller dose and less frequent not because of anything I have done but becuase of the FL legislators and the Drug Dealers in this town who have brought the pill mills in FL to the forefront.  It is insane and I am tired of it.  I cannot get proper medical care because of this and am done with it all together.  I am very pissed now so I have to leave.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/15/2011 6:34 PM (GMT -6)   
Hi Shaw It's horrible that you can't get the meds that you need to control your pain because of the idiot legislators and pain meds. This makes me so angry. I'm so very sorry. shakehead I guess they expect you to ruin your liver. I just ahhhhh

love and lots of soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/15/2011 8:04 PM (GMT -6)   
Hi Shaw, don't know if you remember me or not? I live north of you and replied to you several months ago.
I was at my doc a couple weeks ago and in horable pain, walking w/ a cain again. I asked him (for the very first time!) if he could raise my meds cause the dose I was taking just wasn't doing it anymore!
He told me that a new law came into affevt July 1st. He didn't go into what the law stated but he was worried that if this ness keeps up, he may no longer be able to treat his patients which troubled him greatly!!!
I take oxicodone #15 and methadone #10 and was very surprised when he told me he could raise my methadone by one pill a day but not the oxi!!! He said that it's the drug that is under the microscope now! Heck I really thought it was methadone!! It's soooo crazy how they can change the "bad pill" just by what the press is saying about them! It seems that way anyway!
A year or two ago, it was methadone that was killing all the addicts and got all the press, now Oxicodone? Remember when it was Oxicontin? Guess they never made the connection between the two?
It makes me sick to my stomac to think that we can't be medicated the way we should be because of these addicts and the scum that sell them the drugs!
I now have to give urin every time I go to the Dr. I have no idea if they test it every time or just try to scare the ones who should be scared?? I don't worry about giving it to them if it will help me! I just want my meds! I know I have it better than you and others here Shaw but who knows for how long???
Well, my hands hurt so thats all Y'all are getting from me tonight> Hang in there and like NiNi53 said, we better start writing letters! I'm starting on mine tomorow!!!
Love Yuze Gize>
Your Bro>
Pete  
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