Vent: The latest news blitz related to CP

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Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 7/6/2011 12:51 PM (GMT -6)   
Has anyone else noted how many news stories in just the past few weeks there have been about "alternative" treatments for chronic pain and/or all of the stories about the use of narcotics to treat CP? If you have seen many of these stories have you noticed the common thread in all of them?

If you haven't, the common element in all of them is how narcotics are bad, bad, bad. Most of these stories have at least several quotes from doctors, many of which are suppose to be "experts" in dealing with chronic pain, who are coming out and making blanket, absolute statements that narcotic medications do not work for treating chronic pain. Many of these doctors base their findings on how many people with CP need to have their medications adjusted upwards to get any relief. Some of these quacks have taken it even farther with saying that narcotics really do nothing at all to ease pain but rather provide the illusion of pain relief due to making those taking it high. In other words narcotics merely cause a distraction to the pain a person feels. Then of course you have those, mainly neurologists, who like to go on record as saying that the use of narcotics for more than a few days actually causes pain.

On top of that in one article I read one doctor, who is suppose to be the head of a large pain clinic in California, has gone on record that people who are on narcotics and balk about going off of them are nothing more than drug seekers. He says that when he sees a new patient who is on narcotics the first thing he does is take them off them and if the complain then he knows they are only wanting the drugs.

Documentaries and news reports about prescription drug abuse has caused enough problems, but now we have this too. I am sick of it. I am tired of all the false information, the misguided public opinions, the faulty studies, etc. I feel like I am, because I suffer from CP, under attack from all sides.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/6/2011 1:07 PM (GMT -6)   
Wow, that's crazy news Jim. Of course we are not hearing from the doctors that know narcotics can help

those with chronic pain. I am in Canada and haven't heard of any of this news. Was it on tv, paper, radio??

Was there anything good mentioned? new forms of treatment?? I am always on the search for something

that might help me. I have not had one medication of any type be it narcotics or other help with my headache

pain. I would have no problem taking anything, even if it would help in the tiniest bit.

How have you been doing Jim?

Suzane

Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 7/6/2011 1:27 PM (GMT -6)   
These articles have been popping up a lot lately in my Google news feed. They come from sources like Time, CNN, LA Times, NY Times among many others.

Some of them started out about the benefits of massage therapy vs more conventional physical therapy before getting off on a narcotic rant, others talked about the "alternative" medications available for controlling pain that most of us know about already like using anti-depressants, or other drugs like Lyrica and Neurontin, etc.

There really was nothing new and most of these articles seemed to me to use these topics as a jump off platform to bash the use of narcotics outside of a hospital.

While I know it will not likely do any good I have taken, when possible, to writing to the editors and/or the writers of these articles and letting them know how one sided it is and how much BS it is.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/6/2011 1:31 PM (GMT -6)   
As far as how I am doing, I am grumpy. My legs have been killing me since being forced off of Cymbalta and if I take enough of my dilaudid to make a dent in my leg pain it makes me feel dopey, not to mention it is a lot more than I am Rx'd to take and since I finally got the doctor to allow me 4 doses a day instead of 3 I really don't want to risk losing it all.

I don't doubt that the way I have been feeling, not to mention the battles I have been and am fighting with the state of IL over my Cymbalta has allowed these stories to really get under my skin.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 7/6/2011 4:42 PM (GMT -6)   
I was just told that here in FL..... patients who get surgery will only be prescribed 30 days of any narcotic.... after that.... nada.

Not everyone is the same in healing.... too bad for the people who do need the help....
C3 through C7 right open door laminoplasty, C2 through C10 hemilaminectomies, C2 through C7 right forminotomy, and left C5 through C7 foraminotomies, C3-C5 structural rib allograft and local vertebral autograft & C7 with same rib allograft and local autograft, Vertex instrumentation C3 through C5

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 7/6/2011 4:55 PM (GMT -6)   
Jim.....I am in pennsylvania and I am on the internet everyday and I havent noticed this horrible doctor statements . I will have to check google news and check that out. I do know that my orthopedic trauma surgeon prescribed narcotics for my pain in my leg for 4 months and then informed me that he could no longer prescribed narcotics for me. That is when i started with a pain clinic and they prescribed narcotics without any problems.

Take care Jim

Betsey
crushed lower knee and vertical fx of yibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected legcontinously without improving/allergic to metal in left leg/leg isnt straight/need metal removed in July/wait 6 months for healing/then toatal knee replacement/straighten out leg/more phsyxical therapy/take opana er

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/6/2011 5:13 PM (GMT -6)   
Jim why were you forced off of Cymbalta?

Sorry you are feeling so badly.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/6/2011 6:26 PM (GMT -6)   
"Insurance". More precisely Medicaid. My doctor and I are fighting to get it approved but it is being one hell of an uphill battle.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/6/2011 6:45 PM (GMT -6)   
I have went back an attempted to find a few of the articles that really got my blood boiling and they are either no where to be found or have been rewritten and the comments made on those articles deleted.

The one that really ticked me off was from the LA Times and I just spent the last 10 minutes trying to find it and it's gone. The Times is one of the papers I sent a letter to the editor about the BS that was published in that article.

I swear I am not making any of this up.

One thing I did find in my search was several rather recent articles that talked about how the "rush" to stop the prescription med abuse problem is doing a lot of harm to those with legitimate needs. I also found a few articles blasting away at the overall lack of research into treating chronic pain and providing more alternatives to the use of heavy duty pain meds.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 7/7/2011 6:51 PM (GMT -6)   
Jim - If you don't get Cymbalta approved, probably because it is expensive, you might try some of the other meds in similar categories that are cheaper.

I didn't get any pain relief from Cymbalta, tried a whole bunch of other stuff, pain doc recently put me on Topamax for pain. It comes in GENERIC! I don't tolerate anything much, so started on 25 mg once a day(he Rx'd 50, but I usually have to try half a dose first). That was too much, so I was on 1/8 pill, worked up to 1/4 twice a day, where I may stay. At this level I don't have side effects, but I do get some pain relief, so I was able to cut my tramadol from 4 to 3 a day, which is what the pain doc wanted. (Actually he'd like me on 2 a day, but I'd have to start something else to help because tramadol is only good for 4 hours for me.)
Alcie
 
 
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