What do you do during nights of no sleep?

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Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 7/6/2011 8:35 PM (GMT -6)   
Tonight ends the last day of my fentanyl patch. For me this means that today was a hard day and tonight will be pretty much sleepless. My meds for sleep aren't working, the house has quieted down around me, and even the cats are quiet. My sons were kind enough to bring the TV and DVD player in so that I can watch movies quietly, but many of them wake my fiance if I am not careful. We are not blessed with central air, so my sons are in the living room lying on the sofa bed in the air conditioning.

Tonight I make plans for the weekend camping trip. I can hardly wait for Friday night! We go about a half hour away for 3 days, 2 nights. I have many of the meals we will need prefrozen and ready to reheat. There are 2 that are strictly cooking, like bacon and eggs in a paper bag over the fire and pineapple upside down cake in a tuna can. I am checking my lists, fixing the grocery lists for coupons and sales to get the best bargains, and then when that runs out I will read and crochet.

I am just curious to see what others do on sleepless nights. This is always the hardest part of CP for me. The watching hours of the night in the stillness and silence. Early dawn becomes a comfort with the first bird song of the day greeting the gray light compared to the alone times of the night. Still, nighttime storms are always welcome to me, so that our garden grows more!

I hope that you are all sleeping sweetly and soundly.
Mindy

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/6/2011 9:16 PM (GMT -6)   
Hi Mindy,

I often stay up way beyond what I should even though I probably could sleep. But if I'm awake I have so many things to do I could keep at it til morning. I love to read. Also I do digital scrapbooking, love to work on my photography with Photoshop, do some clay modeling, painting or sewing/quilting. I never run out of projects.

On the other hand, is there a reason why your doctor can't work on your sleep problem? You shouldn't have to plan a life of sleepless nights because of your medications if your doctor is doing his/her job. If sleep medication doesn't work then you should be trying a different one. If your pain patches aren't lasting long enough then you either need a different dose or breakthrough medicine. Maybe I'm missing some information here but I hope your medical team can go to bat for you and find a solution for these sleepless nights.

Warm hugs,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
~~~~~
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

kittycreation
Regular Member


Date Joined Jul 2011
Total Posts : 36
   Posted 7/6/2011 9:17 PM (GMT -6)   
I eat (which is NOT good and I am trying to find ways to stop doing it), read, check my email, or sometimes turn the tv or portable dvd player (I use earphones so as not to wake my son) on for a bit. They all seem to put me back to sleep but I tend to wake up again after approx 30 min. It is a bit of a game each night. One thing that does help a bit is using ear plugs. Some days it really helps to block out extra noises and that makes it easier to go back and stay asleep.

It sounds like your camping trip is very well planned and you are going to have a fantastic time. I have never had bacon and eggs in a paper bag over a fire...it sounds amazing!

Hoping you sleep well tonight :)
I pray and wait for God to do His thing in His time...til then I am waiting with chronic pain...

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 7/6/2011 9:48 PM (GMT -6)   
Hi Mindy - I'm sorry that you've got this problem too. I have major problems with insomnia as well as CP, so I have pretty severe chronic sleep deprivation, and I'm yet to find any sleep medication that helps.

I do anything that takes my fancy - sometimes I will be on the computer, listening to music or watch a film. Sometimes I will do some gentle stretches, even run a hot bath or have a shower with some relaxing oils. Nothing works to make me sleep, but it does fill in the time. If you can find something that works for you, let me know.

Wishing you the best of luck *hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 7/7/2011 1:32 AM (GMT -6)   
Mindy
 
When I cant sleep i fire up the computer and look up different recipes.  I to have never heard of bacon and eggs in a paper bag.  I will have to look that one up and try it.  Thanks for the idea.
 
I dont turn on the tv because I dont have ear plugs or headset to tv so Hubby wakes up when he hears the tv.
 
I read a book, or I crochet.  Do you knint or crochet at all?  I make dishcloths and pot holders for on the table.
 
I have been having insomnia to.  I will check out the chat room.
 
Betsey yeah

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/7/2011 8:47 AM (GMT -6)   
 
     Morning Mindy! wink
 
          Hey!...sounds like you have a pretty neat trip planned there! Enjoy! Wished I was going!
 
     I also have a terrible time sleeping, but I cat nap in the late afternoon, and I think that is robbing me of some of the night sleep. It's just that i'm so worn out after worrk, that I need some rest and or sleep as soon as I get home.
 
    One think I have found to be relaxing, is the "White Noise" machines, which puts out a nice roar, and you can adjust the loudness of it. I have been using it for years, and seems to do pretty well. A good cool shower, right before hitting the sack, seems to help me as well. If I do wake up, I get up, and empty my bladder, and go for a short walk outside. Good thing it's dark out, and of course I stay on the property, which is out in the country a bit.
 
    I also have that nasty habit of smoking...so I light up a couple while out and about. (I know..I know..I need to quit!) nono  
 
      One thing I have learned not to do...is tap the wifey on the shoulder, and say "Hey!...you up!" shakehead
 
     Since we sleep on a split King Tempur-Pedic, I can get up without bothering my partner....oh and lest I forget, I do usually check the forum to see if everyone is behaving. (you usually are) wink ....sometimes, I check the chat room, and it amazes me to find a group there at 2:00am shocked ....they must all be British! (time zones difference)
 
       Take care Mindy...and have a wonderful time this weekend! ....I also have heard of cooking in the brown paper bags...but have not tried it myself yet. Many of my friends on other forums smoke roast in them. ...don't know the purpose behind it though.
 
     SE wink
      
 
Moderator Chronic Pain Forum

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Post Edited (Screaming Eagle) : 7/7/2011 8:56:29 AM (GMT-6)


Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 7/7/2011 12:11 PM (GMT -6)   
Chutz, I have trazodone for sleep and depression. Ambien, remeron, lunesta, all have the nasty habit of making me gain weight. I gained 30 pounds in 6 weeks and had not changed my diet. I was also a zombie during the day. All of my doctors agree to just continue trazodone. As for increasing the pain meds to stop that 3rd day of agony, again, I end up a zombie and still have pain on the 3rd day. My PM doc thinks my temperature runs higher than normal from the endometriosis and or RA, which causes the meds to release more quickly than on a normal temperature person. Its odd, but I would rather have 1 day in 3 be a bad day than be a zombie and not interact with my family. My insurance does not allow every 2 days.

Ah the camping.... I am so excited! The bacon and eggs in paper bags are easy. You spray water on the bag until it is damp, not wet. Cut bacon strips in half. Put the bacon on the bottom, 4-half strips per bag just until the bottom is covered. Roll the top of the bag down 3 times, spear onto a green stick or camping fork and cook over the fire. When the bag has bacon grease on the bottom, about halfway cooked bacon, break an egg on top of the bacon and continue to cook over the fire until the egg is done. If the bag begins to darken or smoke, spray with water again.

I also will cook baked potatoes this way by rubbing them in olive oil and sprinkle with salt, wrap in damp paper bags and put near the coals. If you have foil, place the potatoes in foil. There are so many easy ways to cook over the fire.

All good ideas and thank you for them. I use a sound machine for waves, white noise, rain, etc on my laptop sometimes. It doesn't always help.
Betsey, I do crochet! I make prayer shawls, wash cloths, socks and slippers, a little of everything. Currently I am working on the last of 6 silk shawls for my wedding. This one is all white silk....for me. The first thing I have ever crocheted for myself.

Glad we all have ways to busy ourselves on days of rest and or sleepless nights!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16302
   Posted 7/7/2011 2:11 PM (GMT -6)   
I am always up all night, this started almost three years ago. I do not take any sleeps meds as I do not like the hangover they give. If I am lucky I can sometimes lay down around 5:00am for a couple of hours and then I am wide awake.

I do laundry and a lot of cleaning at night when hubby is asleep. I have been known to go out on the back porch at night and water my plants and yard in the wee hours, lol. I also come here late at night and keep on the lookout for spammers, lol. The spammers like to show up when most folks are in bed asleep.

I never run out of things to do at night in this house.
Moderator Chronic Pain Forum

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/7/2011 8:54 PM (GMT -6)   
Hi Mindy. I love the idea that you are crocheting the silk shawls for your wedding. That's so cool. I've never saw silk crochet thread. I bet it has a wonderful feel while crocheting with it. I love to crochet, but all I know how to make are blankets, pot holders, the things you put on the back of the couch (can't think of the word). I would love to learn more, but my granny taught me how, and she passed away in 2005.

I take Seroquel to help me sleep. I am a nightowl. You can ask Michael (SE) about that lol. I wish you luck with finding something to help you sleep. You take care. I hope you're having a low pain night.

love and soft hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
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