Your condition, medications, and libedo....

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snobrdgrl321
Regular Member


Date Joined Jul 2009
Total Posts : 278
   Posted 7/7/2011 1:40 PM (GMT -6)   
Hi all...

I wanted to touch on the subject of libedo.
I am a 35 yr old female and as you can see from my signature, have many issues... Lol.. And take ms cotin and hydrocodone for the pain.

I have Zero desire. My husband (of 18 years) is very frustrated....
I wonder, do any of you out there suffer the same?
How to do handle it? Do you take anything for it? Is it caused my your condition or medications?

Thanks for posting a reply on this touchy, private issue.
Donna
Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~
 

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 7/7/2011 1:50 PM (GMT -6)   
 
      Hello Snobrdgrl!
 
          We had just touched this subject a few weeks ago, so you might want to do a quick search on it as well.
 
   Many of us have had this problem, so you're not alone. When I myself, started the Oxycontin, I had the same reaction...nothing interested me, and I went to have myself checked out. Everything checked OK...and the problem went away gradually as my body became used to the med's.
 
    Is this a long on going problem, or have you had a change in your med's recently?....if so give it some time. Other than that, I will let the ladies answer you're question. It is an adult conversation, but the members have done a pretty good job in keeping it safe of our minor members here. wink
 
      Take care,
 
 SE wink
Moderator Chronic Pain Forum

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snobrdgrl321
Regular Member


Date Joined Jul 2009
Total Posts : 278
   Posted 7/7/2011 3:02 PM (GMT -6)   
Sorry, I looked, couldn't find it.... What's the post title?
Donna
Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~
 

Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 7/7/2011 3:39 PM (GMT -6)   
I have been noticing this problem with our relationship. After speaking with my doctors, I have noticed it is for several reasons. Mine is not so much loss of desire all the time, but lowered interest and inability to achieve completion some times. For me, it is a combination of medication, hormone changes and my pain levels.
My chronic pain is pelvic and I have adhesions that pull organs and muscle out of place and in wonderful ways with movement of any kind. Add to it endometriosis, and growing my 3rd ovary on the right side, and it makes for an intimate mess! I have had a hystersalpingo-oophorectomy, meaning no uterus, fallopian tubes, or ovaries. The ovary regrows from tissue left fused to bowel and adhesions. This causes menstrual cycles, ovarian cysts, and more endometriosis developing. Right now my desire is at 0 because I just feel disgusting.
Then add gabapentin and fentanyl. Toss in some antidepressants and voila! You get libido or completion issues.

My advice is be patient with yourself. Work on it by talking to your doctor and partner honestly. Don't give up on yourself. This happens to EVERYONE, not just those with CP or medical issues.

Thinking of you. I am sadly at my limit of comfortable sharing on a public forum, but feel free to email me if you wish. Shyness is not a good virtue to have!
Good luck,
Mindy

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/7/2011 4:53 PM (GMT -6)   
Try this!wink

www.healingwell.com/community/default.aspx?f=16&m=2090178

SE wink


Just type in the word Libido chronic pain narcotics....and it should have plenty for you to read on the subject.
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 7/7/2011 6:29 PM (GMT -6)   
Hey snow,
Because I have so much chronic pelvic pain the pain medication actually helps..add some anti-depressants and then there is a problem..
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,Interstitial Cystitis,Ileostomy,Severe Scoliosis,Chronic Pain,Arthritis,BP1,Anxiety/Panic attacks,Several reconstructive surgeries..

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/7/2011 10:32 PM (GMT -6)   
IMHO it is a wonder if anyone has much desire between the pain and the medications.

For me, at least, it is a somewhat vicious cycle and every other step on the circle is the loss of desire.

In pain...don't feel like it most of the time...loss of desire (LOD)
Know if I do engage in it that I will pay=LOD
Pain medicine reduces physical sensations so it doesn't feel as good=LOD
Don't get enough sleep due to pain=LOD
Lack of physical contact for long periods of time=LOD....Kind of a twist on the old adage of "use it or lose it".
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/7/2011 11:37 PM (GMT -6)   
what libido???? hahaha- not sure if its the meds or just that i feel like crap all hte time...
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 7/8/2011 7:32 AM (GMT -6)   
I was on the fentyal patch for over 10yrs. The less it worked the higher my pm dr increased the dose. Then she added pain meds and anti-depressants. Not to mention what mtgman just said about feeling like crap all the time, it's a wonder my poor husband even got a kiss for years!

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/8/2011 10:26 AM (GMT -6)   
Hello from nini53, so sorry to hear of your problem, as a matter of fact, just a few months ago, I asked the same question, and sorry to say, there is no good answer.  You might ask your ob/gyn if there is anything on the market that can help.
 
I am 58 years old, I have been through menopause, and have been celibate for yes count them 11 years.  No one is more shocked than I am at this turn of events.  I mean I am a child of the 70s, sex, drugs, and rock and roll.  It could be said about me that I was well a little ****ish in those years, lol.
 
So there is karma for you, it always come back to you somehow.
 
Good luck, and seriously check with your doctor, if they can make a little blue pill for men, they really should be able to do something for us.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 7/8/2011 11:53 AM (GMT -6)   

It's all due to the meds.... I know cuz now I am off them....

I also just wanted to say that when I was on Opana.... I didn't get my menstrual cycle for 9 months.... Dr's couldn't figure out why...... even started me on hormone replacement therapy.... nothing.....

4 days off the Opana and I got my .

No one ever made the connection even though I told them I thought the meds were the reason.

C3 through C7 right open door laminoplasty, C2 through C10 hemilaminectomies, C2 through C7 right forminotomy, and left C5 through C7 foraminotomies, C3-C5 structural rib allograft and local vertebral autograft & C7 with the same allograft & local verterbral autograft & Vertex instrumentation C3-C5

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3696
   Posted 7/8/2011 12:52 PM (GMT -6)   
well I might as well put my two cents in here! As a male I found that with the herniated and torn disk at T-12 and other disk problems at other locations, all the way through my spine. That the act it self, was painful, and completion was often not possible because of the pain. How ever I never lost the desire nor the will or the urge to try! My spouse at that time said she did not like to see me in pain, or to see that it caused me pain, and her answer to the situation, was to nolonger engage in the that activity. That decision on her part caused many many problems! Along with the other things that were going on in our marriage,....well it did not last! It was not the determining factor, but,  I definitely feel  that this was a contributing cause to our divorce. In fact I know it was, as I am the one who filed for it!

I do think that intimacy, in all its different forms, does help to bind and hold the marriage together. When one loses that, then as in my marriage we became like distant room mates, and that is indeed a sad thing to have to say! As I had once told my counselor ( I was going to marriage counselling alone as she would not go) ""If I am going to be alone, then I might as well really be alone!"" So after just more than 35 years of marriage we divorced! I do not regret filing for/ or getting the divorce, I do regret that it had to come to it in the first place! I hope that makes sense???

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 7/8/2011 11:55:31 AM (GMT-6)


snobrdgrl321
Regular Member


Date Joined Jul 2009
Total Posts : 278
   Posted 7/8/2011 2:29 PM (GMT -6)   
Oh my White Beard! I am sorry to hear that. 35 years is a long time!

My husband docent understand my conditions or pain at all!
He complains every night how he is sore and I have to rub his arms (we own a landscape business). And I am dying in pain every night. But I bite my tounge about it cuz I figure he is working now and since I am not I better not compain. But the intimacy part is so hard. Not only painful, but not arrousing because of meds, and defiantly feeling under appreciated for all I do and have to suffer thru it. (I was working 40hrs a week till got let go, assistant coach girls u14 soccer team, run my house do all the cooking and cleaning. Raising 2 kids, and one headed off to college in fall.
Ok, I think I done for now.
Again, so sorry to hear it, but somedays, I wish I was divorced so I didn't have to deal with that issue too....
Donna
Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~
 

jessupl73
Regular Member


Date Joined May 2011
Total Posts : 28
   Posted 7/8/2011 3:04 PM (GMT -6)   
Same problem for me. Most of the time I feel like crud and that really doesn't put me in the mood. I think when your body is injured, that is where all your energy goes. Sex is great and all..but it's not a requirement to live..like food, water, etc. When you are just trying to survive or "get through the day", sex seems like the absolute last thing you want.

I do have to say though...it's mostly antidepressants that kill my libido and ability to finish. Any of the SSRI's or SNRI's kill me. When this whole pain thing started I very reluctantly let them put me on Cymbalta since it's supposed to be so great for pain. It didn't help with the pain at all...only killed my sex life...so I finally stopped taking it. I think it did help with the depression a tiny bit..but the trade off for me wasn't worth it. The thing that was truly awful was that it lifted my depression just enough to actually want to have sex...then I couldn't finish because of this same med. NO THANKS!! Done with those.

Even if my husband and I don't engage in a lot of sex, when we actually do at least I can enjoy it now.

Stupid SSRI's, SNRI's. I hate them alll!
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